Loss of an adult child

I lost my beautiful kind and talented daughter to stomach cancer at the age of 26 in October 2014. I see so many posts from people who have lost parents and partners to cancer but nothing from bereaved parents. I am struggling to cope with my grief I have two other daughters who need me to be strong I am divorced and am supporting a male friend who has just had his third liver resection for secondary bowel cancer. I have days like today when I can't eat or get out of bed but I have to work full time as a primary school teacher to support myself. I would love to hear from other bereaved parents who know what I am going through

Parents
  • Hello, I think I know how you feel. I am so sorry for your loss. I too just lost my adult child. The age of our children who die doesn't lesson the pain, these are still our children. 

    My son was diagnosed with a benign brain tumor at 2 years old. He underwent radiation and chemo. My son is 38 years old now and on his birthday of July 27th he was diagnosed with glioblastoma multiforme grade 4, and had 6 weeks of radiation and chemo. Due to his already fragile condition from his first surgery, he was very small in stature and weight only 82lbs, his little body quickly became very week and my son past away on December 9th 2018. He stopped talking, eating, drinking, for 9 days, and then one morning he stopped breathing. 

    I live in  AZ near my other children. I have 2 adult daughters and a 16 year old still at home. My son, the eldest, lived with my elderly parents in CA and my son  lived with them for the past 18 years, and to them, they have lost a child not just an adult grandson.

    I left my home for 4 months to care for my son. I used all my paid time off along with 12 weeks of unpaid FMLA. I raised some money through a *** page to help me out and my folks helped me as well. If it weren't for them I wouldn't have been able to care for my boy till the end. 

    So I understand how it feels to worry about how your going to make ends meat and still care for yourself and your sick child, and not go insane, while still being strong for your other children, and your sick friend. It's a lot! I feel like I was in a tornado and the only one that didn't survive was my son, now i'm left with trying to pick up the pieces of this once perfect puzzle. I haven't really been able to grieve and I need to go back to work. I feel numb.

    My heart goes out to you and your family. I pray you find peace.

  • Hi I lost my 36yrs old daughter my only child this September 2018 to pancreatic cancer .She had been back and forth to her GPS for 2 years with burning feeling in stomach and yeast infections and cystitis like feelings ..had antibiotics ..blood tests ..liver function tests ..ultrasounds ..bladder tests ..then had a cyst on ovaries ..also had IBS or that's what she was told it was ..but she kept getting thrush like symptoms as well .the pain got worse and she got back pain as well GPS said it was gastritis gave her tablets etc we then took her to a&e she had blood in urine and pale stools and pain and itching ..they said jaundice and transferred here to another hospital she had a stent put in they thought gallstones she had mri..CT scan etc They found a mass on her pancreas and spots on her liver stage 4 they said could not operate but could have chemo ..to cut a long story short it took far too long to wait for biopsy 2 she had one failed ..she came home for two weeks and seemed brighter but pain etc Then she got acites in stomach and had to go back in for a drain etc again on morphine etc pain I wanted her to have chemo to try .she wanted to go into jospice for pain management which I did not want her to but they promised she could still go for chemo so reluctantly I agreed .at first it seemed to help pain on methodone but she would not come home ..she was losing lots of weight and not eating that we etc ..but alert .in till they used a sedation drug as well as morphine .which I did not want ..she was not the same after that ..we never got to chemo .didn't even see a oncologist and it was horrible to watch your daughter die like that not being able to talk but trying to ..from diagnosed in June 30th to Sept that's how quick she went ..I blame the GPS for not sending her for a CT earlier and I also think the hospitals are far too slow at treatment and that hospices also trick you into a false sense of hope and are too quick to use sedation drugs dissgissed as something to make you feel comfortable ..we are devastated ..lost without her my best friend and again that thing of too young to get it ..so mot true x

  • Re loss of adult child

     

    hi. - I lost my only child in May last year.   She had neuroendocrine cancer which was very rare.  She had been backwards and forwards to gp loads of times - was even worried about cancer and told dr she was.   Dr said she was too young and would not look like she did with cancer.   Eventually she found out in a and e it was such a dreadful shock!   She had chemo - lost all her hair - a chemo tablet - her skin went yelow and hair went white - nuclear medicine for a year in a specialist hospital in London - nothing worked - she then lost all her hair again with another type of chemo - so I’ll all the time.    Then she did an American drug trial in London - we live 150 miles away from there and had to go every week for the trial - staying in hotels for one or two nights in central London.  The drug had never been tried on humans before just animals but she had no choice - they ran out of options - she was the first person in uk to go on it but  after 9 months they took her off it as things had progressed.   Her stomach swelled then her legs although her upper body got thin.   They said she should go for a week to a hospice to see if they could get rid of fluid - she got worse and worse and was there for six weeks and then couldn’t wake up and that was the end.   It was so dreadful.  3 years of dreadful suffering.   She lived at home - can’t bear to move anything - still have her  oats in the hall and shoes everywhere.  Same with her bedroom - so so difficult.  She loved her long dark hair but it never grew back properly - came back curly which she hated.  We have no one now!  She was all we had.  What can you do to get over it?

Reply
  • Re loss of adult child

     

    hi. - I lost my only child in May last year.   She had neuroendocrine cancer which was very rare.  She had been backwards and forwards to gp loads of times - was even worried about cancer and told dr she was.   Dr said she was too young and would not look like she did with cancer.   Eventually she found out in a and e it was such a dreadful shock!   She had chemo - lost all her hair - a chemo tablet - her skin went yelow and hair went white - nuclear medicine for a year in a specialist hospital in London - nothing worked - she then lost all her hair again with another type of chemo - so I’ll all the time.    Then she did an American drug trial in London - we live 150 miles away from there and had to go every week for the trial - staying in hotels for one or two nights in central London.  The drug had never been tried on humans before just animals but she had no choice - they ran out of options - she was the first person in uk to go on it but  after 9 months they took her off it as things had progressed.   Her stomach swelled then her legs although her upper body got thin.   They said she should go for a week to a hospice to see if they could get rid of fluid - she got worse and worse and was there for six weeks and then couldn’t wake up and that was the end.   It was so dreadful.  3 years of dreadful suffering.   She lived at home - can’t bear to move anything - still have her  oats in the hall and shoes everywhere.  Same with her bedroom - so so difficult.  She loved her long dark hair but it never grew back properly - came back curly which she hated.  We have no one now!  She was all we had.  What can you do to get over it?

Children
  • Saddened me to read you post and awful the way your daughter suffered. My heart goes out to you. I’m on hear due to having lung cancer but I’m one of the lucky ones. At this moment in time Cancer free. In the last 12 months I’ve lost my sister in law and my dearest friend to Lung Cancer.

    I lost a son (my only child) many years ago ( not to Cancer) He was hit by a car on a country Road, just 15 at the time. I often wonder what he would have been up to if he was still here with us today. I try and stay positive and remember how blessed we were to have him in our lives and the good years we had. 

    They say time is a great healer and up to a point it is, we never get over the loss of a child but learn to live on without them. My heart was broken and now has a crack that will never mend. 

    Be Strong and try and find something good in each day,