Dealing with the waiting

My wife was diagnosed with peritoneal cancer in Oct2014 and after struggling with bowel blockages and  having chemo was told that she was clear last July - Aug. She then had respiratory problems, non cancer related,  and had a ct scan t,his was seen by the oncologist  at a follow up who then told us the cancer had returned. Although chemo was started my wife became worse and eventually on christmas eve was admitted to our local wonderful hospice. With no surgery or chemo available and her bowels again blocked she  was given "  short weeks". She has battled on and improved in that her bowels started to work again and managed to celebrate her birthday on the 24th Jan but the future is certain but the timing is not. I am 66, my wife now 63 with 3 grown up children ( late 20s) with their own lives. This time where we all visit daily waiting for the inevitable is one of the hardest things I have ever done. We deal with it day to day as although she is visibly getting weaker and weaker there are good days when we can have conversations and interaction  and days when we are just there holding  her hand.

As I  said this is the hardest time and although I have good friends who try to support it can be very lonely and worrying for the future. 

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  • Hi Deggsy I can completely relate to this

    My wife died of primary peritoneal cancer back in October. She was at high risk of ovarian cancer and had had a hysterectomy to prevent this so when she showed up with symptoms but no ovaries it was very confusing for all until PPC was diagnosed!

    Amazingly she had few symptoms until the last week - never seemed to be an actual blockage but the best guess seems to be she had a bowel shutdown then an associated infection which she was unable to throw off with a compromised immune system. And yes her last 2 or 3 days were the hardest thing I've ever lived through.

    All I can say is be there for her, make sure she's as comfortable as possible and gets the pain relief she needs - ask to talk to the palliative team at the hospital they can help you in this and can explain what it will probably be like to be there when it happens so you know what to expect - I found that took so much of the worry out of it for me.

    Don't worry too much now about afterwards - you'll have a lot of grief as so many of us on here have but your friends and familly will help and so will people on here

    spend these last days with her well, if you can, try to take her mind off it a bit and be strong for her so she's not worried about what will happen to you when she's gone.

     

    And stay with us on line and we'll see if we can't help you pick up the pieces 

  • Thanks Graham,

    My wife is recieving the very best care that anyone could wish for at our local hospice and the staff are there  for all of  us and as you have said have prepared us all for what is going to happen. What I didn't say was the prognosis of short  weeks was given when she went  into the hospice on christmas eve and here  we  are at the end of Jan. she's a  real fighter. Living with the fact that there is no long term future and trying to make every day  special has been hard and then coming home each night wondering if that will  be the last time I see her, over such a long time causes me to question so many things.

    I will keep posting as it does help to keep my emotions in check

    Thanks again.

  • Hi Deggsy

    Just wanted to let  you know I am thinking of you, your wife and family. We also found the cummunity and palliative care nurses of enormous support and a wealth of knowledge during my hubby's last weeks.Jules x

  • Just to say Deggsy I am thinking of you all today, take care. G

  • Hi all,

    Thanks for your kind thoughts, home again tonight, wife ( Gill ) is still with us and the nurses say she will do things in "Gill time".

    I can come home knowing that the hospice is giving excellent care, a nurse will sit with Gill all night.

    As all people who have gone through this will know, you want to be there but at the same time you don't and whatever you do you you will doubt if you made the right choice 

  • Thinking of you Deggsy

    Not a great way to spend Valentine's day eh?

  • Thinking of you, Deggsy, this is such a very hard time for you.  I wish both you and Gill much peace. x

  • Gill made it through the night, a real survivor. 

  • Dear Deggsy

    My thoughts are with you and Gill. The greatest comfort at such times is knowing that you were rested by the fact that your loved one was in understanding hands and there is no right or wrong way to be at times like this.  I hope Gill had a peaceful night and that you managed some sleep yourself.. Jules x

  • Thinking of you Deggsy you wife is some fighter. Hope you can find time to relax even though this is happening at the moment -Diane x 

  • Thinking of you and Gill Deggsy 

  • All the Cancer Chat team is thinking of you Deggsy. We are all here for you anytime you need to talk. You've got some great friends here I can see and I hope this brings you a little comfort during these difficult times.

    Lucie
     

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