Need to get it all out

I have no idea why I am writing this. Perhaps it's that everything has happened so fast and I am struggling to process it all. Maybe writing it all out will help.

My partner passed away at the end of January. We weren't married and had different houses but, we were together for 22 years. The situation worked for us - we had the best life and none of the day to day arguments. No children so just us and going on holiday and having fun.

He was diagnosed at the end of November with inoperable lung cancer. The only symptom he had was being hoarse. I forced him to go to the doctor as I thought it was a throat infection. Things happened really quickly after that. As soon as we had the diagnosis I moved him in with me. I remember helping him into my house and I instinctively knew that we were already at end stage. I made him comfortable and he was happy to be with me. He slept most of the day and couldn't eat much. I was also taking him for more tests.

Around Christmas I noticed a slight change in how he was being with me and I just knew that it had progressed to his brain. A week or so later his eye lid closed in one eye and he couldn't open it. The test results were still not back at this point. The week before he died he had what I can only describe as a siezure. I brought him back waiting for the ambulance. It is amazing how you remember first aid. I remember being so calm. We got him to hospital and for the following day he was unresponsive.

He came back round and recognised me but, was seeing things and imagining people. We got the results back and he had cancer in both lungs, lymph nodes, kidney and brain. They told us there was nothing that could be done. One thing I will always be thankful for is that he didn't understand what was being said and sinply asked me if we were still going on holiday. I lied and said yes. The next day he had a massive stroke. He managed to squeeze my hand when I asked him questions but, a few hours later there was nothing. I slept beside him at the hospital until he passed away.

This all happened so quickly. In a way I am glad for his sake - he didn't know it was the end and for that I will always be grateful. He also wasn't in any pain which I don't understand. I have looked back at messages and thought over everything and I can't think of a single warning sign. I feel guilty that I have missed something. By the time we found out I felt like I was chasing an out of control train. I couldn't stop it. He was 51.

His father passed away 3 years ago however, his mother is still alive. She is in a care home with Alziemers which is advanced. I didn't tell her about the death of her only child because I don't want to take the risk of her living in a hell for the rest of her life. I feel so guilty lying to her but, I can see no benefit in her knowing. I am in the process of applying for guardianship to look after her.

I am also the executor of his estate as well as the main beneficiary. He has left me well looked after and this is the thing I feel most guilty about. I have money but, the cost was too much.

As I said I am not sure why I am writing this. I am struggling, I have so much to do but, have trouble getting the energy to do anything. I miss him and I feel guilty about not being able to help and also for lying to him and telling him he would be okay (when I knew he wouldn't be). 

I have no idea what my life should be now. We had so many plans and now there is nothing.

If you have managed to read this then thank you. I just needed to get things off my chest. I have also been very independant and I can't share how I am feeling with people face to face so hopefully this can help me.

  • Hi KatieC950,

    I'm sorry to hear about your partner and want to send my condolences on behalf of everyone on Cancer Chat. I can understand how much this would take toll on you, not only are you coping with grief, but there's a lot work you're doing to support his family. I do hope writing this post has helped in some way. Please be afraid to reach out to people you can trust. 

    The Cruse breavement helpline is 0808 808 1677, if you'd like to have a confidential conversation and the forum is also here for you whenever you need it.

    Best wishes,

    Moderator Anastasia

  • Hi Katiec950,

    I'm very sorry for your loss. 

    I haven't lost a partner but I lost my lovely dad in November 2022, 8 weeks after a cancer diagnosis. My Dad had throat cancer in 2020, doctors were doing three monthly checks and giving him the all clear. Doctors  told us the only thing to look out for with reoccurance was throat pain.

    In April last year my dad developed back pain. Dad saw a GP, physio and chiropractor and was told it was just age (70). When it didn't go away I asked him to get a private scan and in September we found out it was metestatic cancer. My dad deteriorated rapidly after this and ended up confused, he passed away 8 weeks later. 

    I can't offer any advice with the loss of a partner but I wanted to reach out to say that sometimes there sadly are no warning signs for advanced cancer. I have an extended family member who's mother was unexpectedly diagnosed with lung cancer in January and passed away two weeks ago. It's very traumatic to lose a loved one so quickly and unexpectedly. 

    I have struggled with feelings of guilt since my dad passed away. I feel guilty that I didn't know my dad was ill and that I couldn't save him, but doctors didn't even know. I took care of my dad and I know he felt safe and trusted me and that brings me some comfort. 

    I hope someone else will be along to offer some insight. 

    Xx

  • Thank you both.

    Lulu I'm really sorry to hear about your dad. Is really is devastating. Thank you for sharing about advanced cancer and lack of symptoms, I keep going over everything in my mind and feel guilty so that has helped thanks

  • Hi Katie,

    I am so sorry to read your post, the loss of you very loved partner and everything you have been through. My Mum also passed of incureable lung cancer (diagnosed February and passed away in May 2022). I think the awful thing about Lung cancer (and many other types of cancers) there is often little symptoms and many symptoms can be passed off as something else, once it is diagnosed it is often too late. 

    My Mum had a lung biopsy in 2017 on her left lung, it was fine so despite seeing many nodules on her right (which they didn't biopsy) they stopped all future CT Scans and said come back if you notice anything. Here lies my guilt. I didn't persist for CT scans. I should have persisted they do at least one a year for my Mum then they would have noticed the cancer growing in her right lung and something could have be done in time. I should have persisted they biopsy the right lung too. I have guilt, so many regrets so I understand your guilt at having possibly 'missed something.' I think we possibly put too much on our shoulders. Its easy in hindsight to say 'if only'. The fact is I have learnt vital lessons for the future regarding my health and that of anyone I care about. I just wish I had pushed more for my Mum. I did the last few years with her kidney cancer but it wasn't enough for her lung diagnosis. We cared and loved them though and cared for them when they needed us.

    I understand your feelings about mentioning they would be ok when you knew your partner would not be. On the day my Mum passed away her oxygen was dropping fast and she asked me if she were dying, she saw me transfixed at the machine showing her oxygen levels and I lied. I told her 'no' she wasn't dying. I actually at this stage still thought she would pull through but also I wasn't going to ever tell her she was actually 'dying' because I didn't want to scare her, I didn't want her final hours to be scared. I wanted to protect her from all of it. We do this to protect our loved ones, you protected your partner and I think you have nothing to feel guilty for. 

    Your grief is in such early stages. All of last year I was numb and in disbelief. I lost both my parents within 6 months of one another. My Mum lived with my partner and I and she was my whole world. I also do not have children and my parents were my whole family and now they are gone. The grief and reality is only just hitting me now. Please be kind to yourself. I realise now how traumatic these experiences we go through are and we really need to self-care afterwards over time. 

    I feel grief of a loved one never 'goes away'. We will always miss them and feel immense heartbreak but I am hoping in time I will also find light in the darkness, some joy and happiness again. I wish this for you too in the future. We have to somehow slowly pick up the pieces and make a life for ourselves without them physically here with us. I feel I need to do this as much for me but also my parents too. Life is so precious. You have a lot of soul searching to go through and grief is a hard journey but I do believe in time we walk alongside the grief and learn to live a little again, not in the same way as before, everything has changed, we have changed but we have to forge a new life. Always here if you need to talk. Take good care. 

    CJ x 

  • Hi CJ

    Thanks so much for your reply. It helps to know that what I am feeling is 'normal'.

    I'm so sorry to hear about your mum and dad. That must be so difficult for you.

    I know what you mean about being numb. I still can't actually believe it. I'm scared at the thought of a new life but, I'm just trying to take everything one moment at a time.

    Take care xx

     

     

  • I am so sorry for your loss and very moved by you writing your most personal memories , I can relate to you feeling why didn't you notice your partner had cancer , I feel exactly the same I was celebrating New Year's Eve had a day out on New Years Day and the next day my husband started with sickness , he thought he had food poisoning but after three weeks trying to get help after a trip to AE he was eventually diagnosed with gastric cancer , he didn't want to know the timeline of his particular cancer and was just hoping the chemo would be a miracle , I am like you thinking did I not notice anything different but I can honestly say he looked well and that's what has been the biggest shock , he lasted 12 weeks and he just deteriorated 2 days before ge died , I think what you have done has been brave and gave him hope in his last hours and don't feel guilty for that as if he passes thinking about a holiday that would have been a more peaceful passing , I was fortunate to be with my husband when he died and he just went to sleep . It's courages not  to tell his mum as it would cause her anxious and with her illness she may not cope , I also feel low and lost and it's true grief is love with no where to go