What can we do?

Hello everyone,

I'm Mandys mate - and if you knew Mandy you'd know what an amazing lady she is and how lucky I am to have this wonderful woman as my friend. Mandy has been in remission 5 years, completed surgery - double mastectomy a d reconstruction and full chemo / radio treatment plan. Mandy is 46,

well, recently life sent us a massive shock, Mandy was diagnosed with secondary advanced metastatic breast cancer (Lymph Nodes) 

she's been unable to have anyone with her at her appointments and today, she had a face to face apt with her consultant/ oncologist who told her the disease is incurable, no option for surgery chemo or radio therapy - they'll prescribe targeted therapy Palbociclib (Ibrance). She couldn't focus on much of the information after this - she asked how long? The reply was "we will try to keep you well for as long as possible"

mandy has two young daughters and has been protective of what was shared with them, keeping Hope. The dr advised her to tel the children, told her she was referred to the palliative care team and sent her home with a bundle of paperwork, an end of life plan booklet and told to expect a call from a nurse?

The telling the children thing has always been her threshold, the bench mark for no going back time and the top of the serious-o-meter! 

Help - what do I do? What can I say? I love her and her family with all my heart and I cannot imagine what they're going through right now this very second....

 

id really appreciate some advice from those of you who are ir, have been in a similar position to my gorgeous friend (or me) and have experience, knowledge, ideas of what a good friend can do?? 

  • Hi. 

    Incurable doesn't mean that's it, she is still having treatment, the idea of that is to slow it down or even stop it. I've been incurable for over four years now, it is classed as palliative care, but that still doesn't mean that's it. Being positive helps, i know its not easy but you both have to fight help each other. Remember she can live with her uninvited guest just like i am. 

    Don't know if I've made much sense of what I've put but that's what I believe helps. 

    I was still working till my darling wife got ill im now her official carer she needs 24 /7 care so I've plenty to keep me occupied.

    Remember keep positive and keep fighting. 

    Billy 

  • Hello Mandy's friend,

    Yes. I totally agree with Billygoat on here.

    And please reassure your friend that she will find others who have been through what she's suffering now.

    Yes. Telling my children was the worst day of my life. I still can't talk about it without tears. At that time my own prognosis was very short and my children had to know. They were teenagers, and I was only 44, with a sudden incurable diagnosis. Breast cancer throughout both my lungs and liver, and more.

    But, take heart, everyone is different. And the medics cannot say how long people have can they?

    Nine years from metastatic diagnosis and I'm still going, 5 grandchildren and one on the way, saw all kids through their education, and so much more! I still ride my bike and my quality of life is good.

    After my diagnosis I worked on (part time) for 7 years as a teacher. I am now retired at 53.

    I would be very happy to chat to Mandy anytime.

    Yes those experiences at the start were incredibly traumatic, but the medical team, hospice and everyone else involved were incredibly professional and helpful.

    There is so much I could say here, and honestly quite a lot of funny stories along the way.

    Thank you for being such a good friend; I needed my friends more than anything because I could let things out to them more than I could to my family. I couldn't bear seeing my children hurting.

    I feel for my friends. They took the brunt of a lot of my pain. I think they also needed support in their turn.

    I am here and happy to chat anytime.

    Thinking of you and your friend, and sending you all best wishes.

    Mary

    Ps. It served me well at the start of my cancer journey to ask for, and accept, all help offered. Especially counselling/ help with coping.