40yo husband terminal cancer two young kids feeling truly ov

Hello to anyone who’s listening. 

I’m Liz and in April last year, when our second child was just 4 months old, my fit, slim, healthy husband was diagnosed with terminal cancer. It’s a rare form of pancreatic cancer called pancreatic neuroendocrine carcinoma. It’s stage 4 and aggressive. 

Hes had 1st line chemo and this Monday he started on second line chemo. After that there’s nothing else they can do. Surgery has never been an option. 

Hes currently laid up in bed as the chemo has wiped him out and I’m trying to work from home but my levels of stress and anxiety are so high I find it difficult to function, yet I know I must stay as strong as possible for myself, my husband and two young children. We are lucky that we have lots of support available though with my and Will’s parents, friends and other relatives and in the meantime the only thing I know how to do is to continue normally. We are also both seeing a therapist individually to help us. 

Anyway I think everything has finally hit me this past few weeks as he’s deteriorating in terms of now being in significant pain and he can no longer lift or carry our children (neither can walk yet). 

I’m finally reaching out as I’m feeling so overwhelmed at times that I feel like I’m losing my mind. I’m also struggling with insomnia and paranoia (I keep thinking that Will’s parents think I’m no good/selfish/whatever - I have an anxiety disorder by the way and am on the maximum dose of antidepressants. I’m terrified of wasting the time I have left with him due to focussing on such stupid thoughts, but I can’t get them out of my mind! I’m also terrified that once he’s gone I’ll punish myself by self-harming or end up being sectioned and losing our kids. 

I also feel so utterly terrible for him. When we met he said he didn’t just want kids, but that he looked forward to being a grandfather too. This will never be. He won’t even see his kids start school. This tears me apart even though I’m the one who’ll keep on living. We thought we’d spend the rest of our lives together and we won’t. I can’t get my head around this at all but at the same time can’t stop thinking about it. Not sure how I’m going to survive this to be honest. 

Many kind words/peer support/similar experiences greatly appreciated, and if I can in return support any of you guys it would be an honour. 

Thank you x

Parents
  • Hello Liz,

    I just wanted to say it sounds like you are doing a brilliant job with looking after your husband , dealing with all the illness brings,your two young children and working. With everything going on for you it is no surprise you have  insomnia, some increased suspicious thinking around other people's perceptions that you are not good enough etc.  when under immense stress  your thoughts can  snowball to I'm going to get sectioned I'm going to lose the kids .... our minds have a knack of going to the worst imaginable.  Then obviously off of this comes further anxiety emotions and the thoughts and paranoia go deeper. You recognize already you have this tendency . This is a really really tough time liz and you need a tool kit of things you can pull out the bag .... small things that will help you every day to harness some strength for yourself to cope with this.  

    If you do think your mental health is slipping  or self harm has been an issue for you in the past and it's being triggered now ask your gp for a referral to the community mental health team . If I can reassure you as far as is possible mental health services want to keep people out of hospital and sectioning someone is a very last resort .

    Might sound flaky but If you can spare 15 minutes I know just with the kids it's hard but  do some bodily and mind relaxation just to give your brain  a break xx thinking of you my lovely xx

Reply
  • Hello Liz,

    I just wanted to say it sounds like you are doing a brilliant job with looking after your husband , dealing with all the illness brings,your two young children and working. With everything going on for you it is no surprise you have  insomnia, some increased suspicious thinking around other people's perceptions that you are not good enough etc.  when under immense stress  your thoughts can  snowball to I'm going to get sectioned I'm going to lose the kids .... our minds have a knack of going to the worst imaginable.  Then obviously off of this comes further anxiety emotions and the thoughts and paranoia go deeper. You recognize already you have this tendency . This is a really really tough time liz and you need a tool kit of things you can pull out the bag .... small things that will help you every day to harness some strength for yourself to cope with this.  

    If you do think your mental health is slipping  or self harm has been an issue for you in the past and it's being triggered now ask your gp for a referral to the community mental health team . If I can reassure you as far as is possible mental health services want to keep people out of hospital and sectioning someone is a very last resort .

    Might sound flaky but If you can spare 15 minutes I know just with the kids it's hard but  do some bodily and mind relaxation just to give your brain  a break xx thinking of you my lovely xx

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