My Mum is palliative but I am worried she is deteriorating

My Mum has incurable lung cancer - surgery in Sept 18, Radiotherapy Nov/Dec 18 and chemo Jan-April 19, supposed to be starting immunotherapy in two weeks.

Her last scan was 4 weeks ago and had shown cancer spread to lymph node and around the air ways in the same lung, not  to liver or stomach etc. But she is waiting for an appointment for brain CT.  Because she has gotten more tired etc within 2 weeks of them last seeing her, my Mum's oncologist wanted her to start immunotherapy asap and that's why it is the 14th August.

 She has been incurable since January due to fluid - this was drained and it hasn't built up since but  her last was obviously bad.

 

She's had such a rough few weeks in terms of nausea etc but especially today

How am I supposed to tell if it's just her symptoms in general that MAY ease with immunotherapy or if she is starting to deteriorate. I have heard a lot of people have had family members that have deteriorated within days, it worries me so much.

 

I am heartbroken...my Mum is my best friend

 

  • Hi Hedwig_1995,

    I'm so sorry to read about what your Mum is going through at the moment. I'm sure this is incredibly hard for you and everyone involved, and I know there's not a lot I can say to make anything easier. I just wanted to say that you'll always find support on this forum if you ever feel you'd like to discuss anything or just to write down your worries or concerns.

    As for your question, I'm unfortunately not able to answer it and it is likely going to be best answered by your Mum's medical team as they're best placed to help with the medical questions.

    If you'd like to discuss anything with our nurses, you can reach them on freephone 0808 800 4040 - Monday-Friday, 9-5.

    Wishing you all the best and I hope you're able to find out more soon,

    Ben
    Cancer Chat Moderator

  • Hey ime so sorry you and your mum is going through this . Ive learned that no one realy can tell how long but its such  an unpredictable diese all i can say is spend as much time with your mum do all the things possible she wanted to do and tell her you love her not much advice realy but best i can wish i could make it eisier with words .but there aren't any but your not alone many on here have been in your possition so we understand and your not alone and your mums lucky she has you and speaking as a parant i know and its all we need .best wishs paul 

  • She passed away 6 weeks after me posting this x