My husband age 57 was diagnosed with glioblastoma brain tumour 2 years ago. He has had two successful debulking surgeries , radiotherapy and chemotherapy. From the onset he was told he was stage 4 and terminally ill. From day one he gave up the fight. Infact my daughter once said my dad isnt living with cancer , he has always been dying with Cancer . Its so sad.
In truth my husband is doing amazing , yes you can see some confusion with short term memory , but he is still very much able to do many things. Not working but still mobile.
The saddest thing is the shear hate towards myself and his three children. He doesn't want to spend time with any of us. My heart breaks after 27 years of marriage.Our children desperately want to spend time with their dad but no is always the answer. We all walk on eggshells all the time , if we say or do anything wrong it ends with him going to his moms house. More often than not it feels like he picks an arguement to go to his moms. People have tried speaking to him and he says he is trying to protect us but its so wrong , its not the memories the children should be left with. (They are in their 20's but still our kids in my mind ).
He is beyond nasty to me and told me l mistreat him and when he is dead l will have to live with guilt of how badly l have treated him. Hand on my heart l know l could do no more than what l have done, its been a rollercoaster of a journey but l know l have been there for him everyday. My heart is breaking.
I am doing my best to keep myself together , to support my husband , my children , keep the house going and still work fulltime. Between us there is always someone at home everyday with my husband. I go to Maggies once a week to see a councillor. My family live the other side of the country. I have friends but haven't really seen any of them throughout this journey, if honest its a very lonely journey. My husband actually uses his mom as a weapon and goes and stays with his mom sometimes for days on end , telling people he is teaching me and the kids a lesson and we need to learn to behave.
I know he has a brain tumour but he isnt as angry with anyone else infact the opposite and thats whats so upsetting for me and the children. Why do this? I don't understand how the ones you are supposed to love the most you hurt the most. Has anybody else suffered in this way ? I love my husband , my children are all heartbroken , its so sad because my husband could have years to live and he has never fought this awful disease and in the process he is also destroying his family. What l don't understand is why he treats his mom differently , he doesnt show any resentment to her and you'd think he would as he is very close to her. I don't understand why he is doing this to just us.