Hello lisa

The third week is always the best week, your never a 100 per cent but better, how did he cope withe fatigue? It can be very frustrating not being as active as you were previous, but as I might have mentioned a bit of excersise goes a long way.

Hope he does well on his next visit things do get easier but he must keep his Tempreture daily, infection can happen any time, but hopefully he will be ok.

joe

Hello lisa

How is the second session going ? Some of the side effects might start to show, one I did not like was losing my taste buds everything had a kind of metal taste, but it does go after the chemotherapy therapy finishes, hope he's coping.

joe

Good morning Joe, so so far so good with the second chemo, slight pain but not as bad at the first session - yet. We hope it stays that way but you never know. Thanks for asking about him, it's good to have people on here for advice and answers. It's all overwhelming 

 Hello guys, I have read your thread with interest. My husband has just completed his first week of chemotherapy. Day one  on 27th September was intravenous at the hospital . Day 2 to today have been Capecitabine tablets – 800 mg twice a day. He goes back to the hospital on 20th for round two. Thus far there have been very few side-effects; fatigue, dry mouth and a slight tingling sensation. We are not kidding ourselves, and are expecting side-effects to escalate as he goes through  his nine weeks pre-op chemo  but we are hopeful that they will not be as severe as some of the horror stories we’ve heard.  It’s good to hear you guys are doing so well and coping with what this God awful disease throws at you. You have my total admiration. One tip I was given, but I can’t actually vouch for it because we haven’t been in the position of testing it yet, is that pineapple juice helps with the metallic taste.  If either of you try it, perhaps you can let me know if it actually works! 

 Keep on keeping on. Have a great weekend 

R x

Good morning R, welcome to the forum. I find it helpful & also comforting talking to people going threw the same journey on here. My FIL has had 2 sessions of chemo & he will go for his third on the 20th Oct also. The first session was sorer on him than this second one (so far anyway) I must get him the pineapple juice to try, he has that metal taste but it usually goes by the 3rd week. He also has ulcers this time, if anyone has any tips of tryin anything for them let me know

Kind Regards

Lisa  

Hello Lisa and r

Not heard much about pineapple juice, you have to be carefull as certain juices are not good while having chemo, if it helps a bit you can get a moisturiser spray from the doc for dry mouth I have one it's not to bad.

You are right not all side effects happen straight away, some can even happen weeks or months after the therapy finishes, but everyone is different and this does not happen to all unless your me grrrrrr.

Hope your both keeping a log of Tempreture I cannot stress how important this is, but sounds like your FIL and husband are coping well, I know it's hard but if they can manage a little excersise it all helps and plenty of water.

Take care

Joe

 Good morning both  I hope you and your loved ones are all doing well. yes, definitely taking Steve’s temperature every morning and logging it along with Any side-effects and any medication taken  that are prescribed or supplementary. Good tip about pineapple juice but I got it from somebody who was on the same chemo medication as Steve so I’m guessing it’s safe, at least in this instance. For mouth sores I have been recommended bicarb of soda solution. I’m sure you can google it but from memory it’s quarter of a teaspoon in half a glass of  warm water and gargle rather than swallow. But I could be wrong so doublecheck that.

Wishing you a lovely weekend and will keep in touch. Best wishes

Hi

Not certain what's happened to our post, I have to go into my personal files to check if anyone has replied or if anything is wrong.

hope your both well and the males are coping with the treatment, once you get past the third session apart from fatigue things get slightly easier.

I know I keep mentioning Tempreture, as after my third session I got neutrippenna my temp went over a hundred and I was hospitalised for three days in a isolation room because of my low blood count, although I felt fine I was given drips every six hours to combat it, looking back I suppose it was very dangerous, after that they dropped my chemo 25% at one stage they wanted to stop but I insisted to finish the course.

So sorry to keep going on about it, 

Take care

joe

Hi Joe

Please don't apologise for offering advice and trying to help.  It is gratefully received.  Steve's temperature is holding steady between 36.3 and 36.8.  We aren't kidding ourselves.  We know at some point things will start to escalate and we need to be ready.  I've packed an overnight bag and even shoved £50 in the side pocket in case we need to get to the hospital PDQ on an evening when I've had a glass of wine. 

We all know that everyone's journey is unique to them and symptons, side effects, etc. etc. will be different but the more we share, the more aware we all are and the better prepared, so keep sharing - your experience is priceless!

R x