brain tumour in a young man

at a loss as to what to expect...my grandson hes 15 was diagnosed with anaplastic astro cytoma level 3 december last year,we have had a year of radiotherapy and chemo ending in sept .mri scan indicated 4 weeks ago good signs of the tumour shrinking...this week after he complained of a headache while in school led which  us in the space of 3 days being told after another mri scan that the tumour has started growing with avengance and hes at stage 4...all that can be done is palliative at home...in the last week ive seen him increasingly lose memory,balance and the use of his hand on his left side...im so scared at the speed of this change.hes on steroids at present...but finding it destroying to watch him and dont know what to expect or how to cope

  • Hi, first let me welcome you to this forum which has helped me enormously.  Can I also say how saddened I am to hear your terrible news about your grandson.  My situation isn't the same but it is in the respect of my husband who's 46 has a stage 4 Glioblastoma brain tumour.  But to see someone so young suffer when he should be enjoying life must be so hard, and my heart and sympathies goes out to you and your family.  Brain tumours are so destructive and heartbreaking to watch.  I can relate to that. It changes the person you love, my husband is not the man he was in so many ways.  Somehow you will find the strength to cope, I have no idea where it comes from but you will.  But there will be many many moments when you will feel utterly destroyed by it all, but his love will help you to help him.  Your grandson will keep you strong.  I wish you strength and comfort, x

  • my grandson ,reached his 16th birthday  a week before christmas,but sadly we lost his battle yesterday on 10th jan...thankfully it was peacefull,painfree and at home with his family.he will be missed for all our lifetimes.

  • Hi it doesn't feel fair,

    All of us at Cancer Chat would like to offer you our condolences on the loss of your grandson.

    We hope that you willl find our forum a friendly and supportive place to come and share your feelings..

    There are others here who will understand how you are feeling now so please let us know how you are getting on.

    Our nurse helpline is also available to you if you would like to talk to our team. You can call: 0808 800 4040 from Monday to Friday, 9am to 5pm.

    Best wishes to you and your family,

    Jane

  • Really sorry to hear your story

    When my wife died people told me it was the hardest thing you could go through and I said second hardest as the loss of a child in such a way seemed to me to be worse - Grandchild too I guess.

    I'm glad to hear that he died painlessly with his family not everybody is so fortunate.

    Do come and talk to us in the coping with loss forum when it all starts to get a bit much