Hi Alfie,

Welcome to Cancer Chat. I am sorry to read about your dad. I have just lost mine to prostate cancer so I understand your fears. I can tell the love you share with your family from the way you write. That closness will help as long as you can all talk openly and honestly to each other. It may sound simple but so many families find trouble in doing this as they are worried that they will only make their family worry more. Just as you said Writing helps, well so does talking wither its to your family or to someone on here. 

Take care, best wishe's to you and your family, Brian

Hi Brian,

I'm sorry to hear about your father. I hope you are looking after yourself and remembering the happy times.

I think you are right about talking openly and honestly. It has been very hard to hear him talk about wills / getting finances in order but I suppose they are conversations we need to have... He has been in the hospital for the last 2 weeks and it is difficult for him to be positive whilst in there. 

Thank you for your reply.

Take care and warm wishes.

Hi, my husband too has been diagnosed with the same GBM stage 4 with the same prognosis. They found it in August, operated in September and he is now having chemo and radiotherapy.  He is 46 years old with a daughter of 19 and a son of 10.  It is a nightmare believe me.  I have seen my strong husband change so dramatically over the last 3 months. And being a brain tumour, he's not the person he used to be.  He has lost the ability to deal with my tears and sadness.  I just cry alone... I've had to sort out everything, finance/mortgage wise as he has lost the ability to do that too.  I can understand so clearly how you are feeling right now and I will help you as much as I can..

Take care, Mandy xx

Hi Alfie,  sorry to hear that about your dad.  For whatever it's worth, the prognosis is "generalized".  Everybody responds differently to the treatment. Don't go online looking for info as it is 98% doom and gloom.  I am 3+ years GBM4 survivor, I know someone who is 15+ year survivor and another guy who is over 40 year survivor.

All the best,

Mike

I just joined and searched 'GBM' and saw that you are the most recent to post about this. It's bizarre because I feel like I am in the exact position you are in. I am 19, Dad is 57. Close knit family of 4 and Dad was diagnosed with GBM a couple of months ago. He also was fit as a fiddle, with many plans of travel and retirement with my Mum. It's killing me. Our situations seem so similar. 

I know I'm not offering any help, as that's what I am also looking for. But it helps to know that there are people in such a similar position. I am going to try focusing on enjoying the present moment, rather than worrying about the future, and thinking more positively. Although I'm not sure how that's going to work out..

I hope you are doing well.. Gina x

hi mike, i wondered how you were now..im sure you probably dont read this...but if you do, please let us know how you are now..it was good to read of longer survival:)...

It appears that so many people's stories are similar.

My superman dad (61 at the time) was diagnosed with GBM4 in June 2015 after having issues with balance and then he collapsed. He had all the treatment but no surgery and he was fine for almost 12'months and since then to now his decline has been hard to take.

I am 33 and married and my poor mother and sister are really finding it tough. It's just the 4 of us and my wife and all our family is scattered around the world.

i honestly can empathise with the posters above and I have been by my dads side since diagnosis, balancing it with work and attending every consultation, hospital visit, chemo dose but my poor dad is slipping away.

I feel like I am in a dream and I will wake up and it's all a big joke. 

Gbm4 really is a horrible cancer as it takes the mind away from the patient and is awful to watch.

hi  again  Rahuliogeordio.  it is hard,  i suspect you,  like me just want to fix it all....and we just cant.....im staying strong and positive on the outside.:)