carer going crazy!

Hi,

Hubby has found out that the radiotherapy hasn't worked and that the tumour in his rectum is still too large to remove (no margin around it).  In addition, he now has a tumour in his liver so has been diagnosed as Stage 4!.

He has been prescribed 4 cycles of 3 weekly IV Chemo, with 14 days of Chemo tablets to see if that helps shrink the bowel tumour.  However, this time round the Chemo is kicking his butt...the IV Chemo was awful, he was violently sick throughout which has resulted in the Consultant prescribing an 'A Grade' anti-sickness drug for future sessions.  He is struggling to sleep, anything cold to touch gives him electric shocks due to the Chemo having Platinum in it, severe diarroah and constant nausea...!

All the above has meant that we're living with the most miserable, short-tempered man and the atmosphere in the house is horrendous! :(  We have a 15 year old daughter that locks herself in her room most of the time to avoid arguments, and a 3 year old son that obviously doesn't understand and has now gone backwards with his toilet training :(

I, myself, work 3 days a week as well as having to do all the shopping, cleaning etc and am at my wits end...my perfect little family has been destroyed and my perfect, kind & very calm husband has vanished,

Not sure how we're supposed to 'keep our chins up' or 'stay strong' when going home is dreaded so much (even my 3 yr old says he doesn't want to go home after a day at nursery!!)

My husband always said that I had the biggest heart of anyone he knew, but now i'm not so sure...how can I feel angry/upset with the man I love when he's so ill - it's like i'm losing myself :confused:

Parents
  • Hi Cheryl

    I don't really have anything useful to add to what Jules has said. As she says - she has been through this part of the journey so she has the wisdom of experience. 

    I am experiencing a grumpy husband too but I don't have the added strain of coping with a family too as my daughter is grown up and our grandaughter is only 13 months old so really too young to have any grasp on the situation. That said in her own little way she must be confused as to why her beloved Paapaa is no longer the happy smiling man he was. 

    This is one of those times when PMs would be helpful. I have found it particularly helpful to have personal contact with new found friends via email or text as sometimes you just want to vent off steam in private or share more personal details or just chat about normal things (although Im not sure what normal is anymore). 

    I have found a group on Facebook for cancer carers. It's a small not too busy group which I have found very useful. Perhaps you could find such a support group helpful? 

    Our Macmillan community nurse gave me a leaflet for a carers group  in our county (Lincolnshire) It has Lincolnshire county council logo on it so I'm assuming it's a local authority thing. A friend in Yorkshire says there's something similar in operation in his area. Perhaps you could ask your Macmillan nurse if one operates in your area if you haven't already done so?

    Please don't be afraid to come on to these forums and rant and moan and vent and say whatever you feel you need to. Nobody here will judge you. We will support you as best we can. You are amongst friends here

    Sending you good wishes and virtual hugs

    Netty

     

  •  

    Hi ladies, thanks for taking the time to reply - it's good to know I'm not the only one going through these feelings...

    Hubby has just finished his first cycle, so a quarter of the way through....we have had a chat about the atmosphere as little man started crying that he didn't want to go home whenever I took him out!!!  Thankfully since then the shouting has calmed down considerably so fingers crossed...!!

    X

  • Hi Cheryl,

    Sometimes it pays to clear the air and I hope your little boy will be a little happier.  No matter how hard  you try its not always easy to cope with everything going into melt down without speaking out about how it affects you all. My fingers are also crossed that you have a peaceful family weekend (and beyond) but as Inula has said forum is here anytime you need to let of steam or just fancy a chat away from day to day crisis. Virtual hugs  Jules x

Reply
  • Hi Cheryl,

    Sometimes it pays to clear the air and I hope your little boy will be a little happier.  No matter how hard  you try its not always easy to cope with everything going into melt down without speaking out about how it affects you all. My fingers are also crossed that you have a peaceful family weekend (and beyond) but as Inula has said forum is here anytime you need to let of steam or just fancy a chat away from day to day crisis. Virtual hugs  Jules x

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