Feeling my Dad has Advanced cancer.

My Dad has an ulcer under his tongue so after 2weeks his GP sent him to see a consultant at hospital within a week & told us it was not an ulcer but cancer & that my Dad has had it a long time not just 2 weeks & it was under his teeth & in his jaw as well, he said it was big (over 3cm I think)  he is waiting for a biopsy, cat scan & he already had a full blood test on the day,my Dad didn't ere all of it.Consultant said it would take 4 weeks & if I had any questions  but I couldn't think at the time. My Dad was 76 on the 14.04.15  & his appointment was the same day.He in as lost weight because he's not eating as he's in a lot of pain plus having difficulty chewing & some times he is finding it hard to talk, he is now on stronger painkillers & morphine as well, he has toothache & ear ache as well as not having any energy in him as that's not him. I know there will be no treatment for him as not in good health plus they would of got him tested by now. I am only just holding it together as I'm with him every day so it's going to be so hard when we find out it is & knowing I will lose him one day, just don't know how to cope with it.

  • Hi mower

    Glad that your Dad was able to go ahead with the biopsy and at least it is out of the way now.  Hoping that the GP can help with pain and bowel problems. As Pauline has said its like being in a no win situation. Not sure if your Dad is eating much but when my hubby found it difficult we were able to get nutritional shakes on prescription (several different varieties so could find something he enjoys).  They are also sold through most large supermarkets. Hope the appointment in a couple of weeks gives you some up to date information/understanding. Look after yourself too.  Jules

  • Hi Jules

    Thanks for your reply, i have got some drinks off gp for him & he has been to the lol  :-)  just got to wait for appointment, it hard as can't wait to find out but then again I don't want  to find out as I know what they are going to if you know what I mean, his teeth are playing him up a bit as well as his tongue because it's in his tongue & jaw but my Dad don't know this as don't know if I should tell him or leave it till the appointment & let the consultant tell him? Has my Dad didn't here him say cancer so don't know what to do for the best.you take care x

  • Hi Mower,
    Re telling your dad, I would suggest letting the medical experts do this.
    In our situation hubby was diagnoses with sciatica, we had scans done and took them to chiropractor as those guys can do things for sciatica.  He checked out the scans and told us they didn't look good, he also read report and urged us to get back to docs.  He mentioned bone cancer but for some reason hubby failed to take the info in.
    On returning home there was a message from gp requesting an appt asap.  Still hubby couldn't understand why doc wanted to see him.
    I chose to let the doc do the explaining as it gave hubby a few more hours of living in ignorance before we were thrown into the hell this disease is.  In  a way I was privy to all results before hubby as he chose not to want to know until it came out of the specialists mouths, whereas I opened the results and read them as soon as I picked them up.  This in a way made me able to face what was happening and be strong in front of hubby as forewarned is forearmed and knowledge is power.
    Guess what I am trying to say is the medical guys are trained as to how to deliver news be it good or bad, we are not.
    As the lovely Jules has said look after yourself too.  Hope you can go off and have a coffee by yourself or sit in a park for 30 mins.  You need time out too honey.
    Sending you a virtual hug
    Kathy x
     

  • Hi Kathy

    Thanks so most for replying, I was thinking the same as you, the long he don't know the better for him as he knows they are doing tests for cancer but he hadn't got his head round to thinking it is bless him, so going to leave it up to consultant to do it, take care x

  • I don't believe it my Dad just had a letter for a care co-coordinator for cancer care (squamous cell carcinoma) thank god he didn't read it & gave it me, what a way for him to of found out, I told him it's in case he needs a doctor when they are closed as I didn't want to tell him he has cancer &  even I wasn't 100% sure he had it.

  • Hi Mower,
    Is the letter offering help if required?  Are the results of biopsy though so quickly?
    Cannot believe this is the way folk over there are notified via post.  It's still not your job to tell him.  The gp should be doing it.  Minding my language as would love to type something inappropriate. Grrr
    Kathy xx
     

  • Hi Kathy 

    yes it is offering help & care so don't have to go in to hospital when the time comes, one way of finding out he doing have long left as not seen consultant yet or had it confirm, I think he knows it is as seen flu jab on the letter & above that is says cancer care, but not saying anything as don't want to upset me so I'm going to see if he comes out with it in a bit,  take care x

      Ps I'm hopping I didn't accidentally press report post by mistake sorry if I have x

  • Hi Mower

    sorry for not replying sooner but  do agree with what Kathy has said and am sure it will be easier for your Dad to understand matters when he has the appointment with consultant. Definitely annoying that the letter should arrive before he even knows what is happening.(though good to know you will have necessary support when time comes). So glad you were able to intercept post. Its quite possible that your Dad is aware of what he 'thinks' he has but would find it hard to talk to you about just now as needs time to process it himself. (My husband  chose to find out for himself (went to appointment on his own and then told me). Terribly emotional time for all concerned but the forum is here when you need to talk things through and I hope all will seem a little clearer once the appointment takes place.

    Hope the drinks are  helping your Dad and he is feeling  more comfortable but do not hesitate to go back to the GP if either your Dad or you need support before the appointment.  Sending a hug.Jules

  • Hi Suz, 

    I hope things are more bearable for you and your dad. Just wanted to let you know we're still thinking of you. 

    Wishing your dad well

    Hugs Aemi x

  • Hi jules

    Thanks for getting back to me, he said to me today it could be cancer & I said yes it could be & left it at that as going to see if I can get hold of the care coordinator on Tuesday & see if some one can come out & explain it to him as it will be to much for him to take in when we go back & see the consultant, plus I would like to know what  [m] squamous cell carcinoma NOS mean, I know what scc is. This is all from his blood tests as they wouldn't of go his results because the care plan is dated 28.04.15. Take care x