Meeting hospice nurse about my brother for the first time

I am terrified, it is the very first time I have met a hospice nurse and am struggling to know what to say and am scared I will get too upset and let everyone down who I need to be strong for - my dad, my younger brother and most of all my precious big brother Alan who is severely mentally disabled and has stage 2 secondary testicular cancer in his lymph nodes.

He lives in a carehome and because of his disability will not be able to have enough treatment to definitely cure his cancer, but they are going to try some carboplatin in lower dose on April 16th, but he has to have any treatments and tests under a general anaesthetic as he will not let anyone near him with needles etc and infact even needs heavy sedation just to get him to hospital every time. He has just been started on Morphine for his pain as it keeps getting worse. He is under the palliative care nurses from the local hospice to him to help manage his pain and because it is not massively likely they can give him enough treatments to cure him. I am dreading meeting the hospice nurse and scared my dad will not be able to cope if she talks about death as its only 2 and a half years since my mum died (and my unborn son) Has anyone got any experience of meeting hospice staff or anything they think can help?

Parents
  • Hello Serendipity, 

    Hopefully one of the other community members will be along soon and able to share their experience of meeting hospice nurse. 

    I just wanted to reassure you that it's okay to be yourself. You are meeting this nurse because you love and care about your brother and you want to be there to support your Dad as well. It's natural that you might become upset during the meeting. The nurse will be used to talking with patients and family who are worried and upset. It's important that you are honest about your feelings to her so that she can help you and your Dad and importantly your brother. If she doesn't know and understand your questions and concerns she might not be able to give you answers, information and support. 

    Thinking of you, 

    Jenn
    Cancer Chat moderator

     

Reply
  • Hello Serendipity, 

    Hopefully one of the other community members will be along soon and able to share their experience of meeting hospice nurse. 

    I just wanted to reassure you that it's okay to be yourself. You are meeting this nurse because you love and care about your brother and you want to be there to support your Dad as well. It's natural that you might become upset during the meeting. The nurse will be used to talking with patients and family who are worried and upset. It's important that you are honest about your feelings to her so that she can help you and your Dad and importantly your brother. If she doesn't know and understand your questions and concerns she might not be able to give you answers, information and support. 

    Thinking of you, 

    Jenn
    Cancer Chat moderator

     

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