My mum is dying

My name is Sara I'm 31 and  my mum is terminally ill with bowel cancer. Her life is coming to an end, she has had it 4 years she is only 56 she has stopped all treatment now and there is nothing more they can do for her. Every day she gets worse she is deteriorating very fast and has it everywhere now even on the brain. Lately she has started to say things that don't make sense. I'm so scared that soon she won't know who I am that would devastate me!  I'm petrified of her dying, I've never lost someone close to me I'm scared beyond words I feel like I won't be able to cope with this I'm not strong.  My sisters getting married in just under 2 weeks and we are praying she makes the wedding. My sister moved it forward for my mum. I also have another sister who turned 21 yesterday. My mum and dad both remarried but they still get on and my dad Is also a mess to as his 3 girls are Loosing there mummy. I'm so scared of what's to come, no one understands. I live with my boyfriend and he is very supportive but it's still hard to explain how I feel. I'm working in London everyone carries in as normal having there fun lives while I go through this nightmare every single day.  Any advice is much appreciated. I need all the support i can get. Love Sara x

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  • Dear Sara, 

    I am so so sorry to hear your very sad news. I just wanted to respond to say I know what an awful time you are going through. I lost my dad to bowel cancer 7 months ago (I am 33 years old). I understand what you mean when you say it seems like everyone else is getting on with their lives, when yours is crumbling around you. However, despite all the desperate worry and emotion, our bodies do find the strength from somewhere to cope and you will too. 

    There is not much advice I can give you, except just be there for your mum when you can.  I wrote my dad a letter saying how much he meant to me and recalling happy childhood memories etc and I feel that this has helped me to cope knowing that he knew how I felt. 

    It sounds like you have a supportive family around you and hopefully the wedding will give you all a happy focus and something to aim for. 

    You really will find the strength to cope even though right now it seems such an unimaginable and massive thing to deal with. 

    This forum is such a good place to keep in touch with people who really understand.

    I will be thinking of you lots. Please keep in touch. Take care. 

    Love Emma xx

  • Hi Emma

     

    Thanks so much for getting in touch with me. It does sound like you have a similar situation :(how long was your dad ill for?  how are you feeling 7 months on? is your mum around?

    I actually did a similar thing for my mum a few weeks ago while she was in hospital i gave her a lovely card and wrote in it i wanted to make sure she knows how i feel about her, it was hard for her to read and hard for me to write. I was in tears.

    The wedding is 10 days away now and i pray to god she makes it, it is her dying wish although she is getting worse every day. I will be happy if she sees at least one of us girls get married even if it is not myself. I dont feel like i will cope, i have never been to a funeral and i cant accept the fact that one day i will never see her again, never hear her voice, never see her face i just find that hard to understand?

    Do you have a supportive family around you? how do you feel about things now?

    Look forward to hearing back from you. Sara xx

  • Hi Sara, 

    Thank you for your reply. I am glad that you gave your mum a card, they are very difficult to write and read but I really feel looking back on it now that I am so glad I had the chance to say how I felt. I am sure your mum was very touched by it. 

    My dad survived about 2 years after diagnosis, although he had symptons for a very long time before hand, he was typically stubborn and no matter how hard we all tried to get him to go to the doctors, he just refused until it was too advanced. That said however, the original plan was to cure him, but after treatment it continued to spread (liver and lungs in his case).

    My mum is still with us and I have an older sister. We are very close and that has helped so much. I live about an hour from my mum but my sister is currently living with her.  Both of us are not married and I do feel very sad that my dad will not be there on those special occasions. I really hope that your mum gets to share such a happy occasion and although it sounds silly, the oncologist told my dad that staying positive really does help and I am sure that went on longer with a fighting spirit and positive attitude. 

    Everything you say I can totally agree with, I felt just the same, the thought of losing a parent is just so awful and I too felt like I would never cope, or want to continue or even feel like myself ever again. But 7 months on and although I miss my dad still terribly and he is always not too far from my thoughts, you do start to feel more normal again, you just learn to live your life in a slightly different way. My mum, my sister and I laugh about the good times and still cry over the sad times. We keep ourselves busy by going for lunch or days out when we are altogether and we do find ourselves gradually enjoying life again.We look at photos lots and video clips of him, it is still hard but I enjoy the memories we have. I also feel grateful that we had time with him and could be there lots in his last few weeks. I often find myself saying, "oh dad would have said that or he would have laughed at this" etc and I feel that talking about him, somehow keeps him with us. 

    I also couldn't imagine going to my dad's funeral, but I think we put ourselves in a 'different zone' to get through it and we did and despite how awfully tough it was we actually enjoyed meeting up with family and friends to talk about dad and remember his life. I can honestly say the day wasn't as bad as I thought it would be. But don't worry about any of that, enjoy being with your mum in the here and now.

    I am not a confident person or one that has ever been strong with anything in life before my dad's illness, but in times like this it is amazing where we do get our strength from and I promise you, although it is a tough old journey, you will be ok. But equally you shouldn't worry about crying, shouting anything to cope with what you are going through. Talking to others also helps and like you I talked to my boyfriend lots, but again as supportive and lovely as he was, I dont think he really understood the amount of stress and worry and sadness that I felt. 

    My heart goes out to you. Keep the wedding as a really happy target for you all to get to. Keep talking to your mum about happy things and enjoy being together. 

    Keep in touch, I will be thinking of you lots. 

    Big hugs 

    Emma xxx

  • Hi emma

    thank you for your wonderful reply you sound like an amazing person and im sure your dad was lucky to have you.  It's so nice to speak with people who totally understand! Your message made me smile. How is your mum now? Did it bring you all closer together? Was your boyfriend able to support you afterwards? I'm very scared of pushing mine away or being  nasty to him after, I just don't know how I will react? Do you feel like you have become a different person because of your loss? Thanks so much for all your messages they mean so much to me.  Sara xx

  • Hi Sara = you have so many wonderful replies. All I want to add is prayers for you all. I do well know how aweful it is and difficult it is to cope. 

    I am so happy you have a good relationship  = lets hope Mum makes it to the wedding and she enjoy it. 

    All the best to your brave mum and to you all = I think you are all amazing

    steven xxx

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  • Hi Sara = you have so many wonderful replies. All I want to add is prayers for you all. I do well know how aweful it is and difficult it is to cope. 

    I am so happy you have a good relationship  = lets hope Mum makes it to the wedding and she enjoy it. 

    All the best to your brave mum and to you all = I think you are all amazing

    steven xxx

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