Husband has lung cancer

Hi, My husband has lung cancer and was told this 2 months ago, seems to be taking ages we dont know staging results and last saw hospital 3 weeks ago.  Im trying to be positive but finding things hard have two older children at home my husband is self-employed so I cant afford to sit back.  Frustrating waiting and worrying about the future. My Dad died of Mesothelomia 2 years ago and stayed at home so I have seen first hand the affects of lung cancer. Never wanted to let my children see their Dad like that especially not so young. They may operate depending on results but not sure how massive this is and as he has tumours in both lungs will be even worse. Anybody seen the effects of a lung cancer op?

  • Hello jlm,

    I noticed you hadn't yet received a reply so I thought I would come and say hello and this way bring your message back to the top of the pile! We have many members here who have been affected by this cancer or are looking after a loved one who has lung cancer so I am sure someone will see your post and share their story with you. Many here have also gone through the effects of a lung operation. If you have any questions on the operation or on anything at all, feel free to ring our mega friendly specialist nurses on freephone 0808 800 40 40 Monday to Friday 9am to 5pm.  They also have an Ask the Nurses topic area in this forum.

    One of our lovely regular users, jules54, is looking after her husband who has, like your dad had, mesothelioma so she would be a great person for you to talk to. You will see her name crop up on the forum quite often!

    Best wishes,

    Lucie, Cancer Chat Moderator

  • Hi JLM,

    I'm afraid lung cancer is outside my experience but if you are in the UK and using the NHS you probably should have received your results by now. As a rule of thumb it takes up to two weeks for urgent results to come through. Occasionally longer if re-tests are needed - been there too and that is pretty worrying!

    It would be worth ringing the hospital on monday and asking when to expect the results. these are normally given during a face to face appointment with a consultant or registrar, so worth chasing that up too.

    If you're not happy chasing these up yourselfd - talk to your GP by phone and get him or her to chase it up on your behalf! Sorry if this sounds arsey but I've been around the system for a long time and have learned not to wait because sometimes things do get missed - hospital staff are only human and often over-worked and under-staffed.

    Best wishes

    Dave

  • Thanks,appreciate the replies just hope someone who is in a similar postion can offer some advice xx  Although we have now got an appointment for Monday to see yet another Dr so hope to have some answers soon x

  • Hi

    Just been browsing the forum and saw the Moderator had given my name as a possible contact. Whilst I do  not have any info regarding possible surgery for lung cancer (hubby's Mesothelioma was inoperable and he has been on palliative care for over two and a half years now) I just wanted to add my welcome to the forum and as I see you have an appointment for tomorrow, hope you get some answers to your questions.  Somehow, whatever the outcome, I feel able to cope better once I know what is/is not going to happen.  I am happy to chat and check my inbox most days (the forum buddies have been my support for a good two years now and are helping me keep my sanity during this difficult journey).  It may help to write down  your questions (minds go blank when faced with so much info) when you go with your husband and feel free to come back to this friendly place if you need to talk.Jules54

  • Many thanks for your message Jules, lost my Dad 2 years ago to Mesothelioma so can relate to that, but still feel lost. Dad stayed at home the whole time as he wished and I hoped I would never be put in a similiar situation ever let alone while things are fresh in my mind.  Thanks for tips, we have waited so long for this appointment I shall write myself a set of questions for tomorrow. If I can be any help with questions re Mesothelioma feel free to ask XX Julie

  • Nor great, Dr evasive, will perform surgery but investigate glands whilst in there 40% chance of cure. Feeling so down

  • Hi

    Its so hard hearing somewhat indifferent news as to what lies ahead for your husband. I can see the plus side being that they are able to begin treatment with surgery and suspect the doctor has been vague because until they perform surgery/investigation they will not have a full picture.  Its difficult to take it all in and initial appointments like this still leave so many unanswered questions (and many we would rather not have answers to, if we are honest).  How is your  husband dealing with the news?  There is little I can say to make you feel stronger but the hope of even a 40% cure possibility is something good to grab hold of.  Try to cope on a day to day basis and come and chat anytime you need to offload. Your kind offer as regards our journey with Mesothelioma is appreciated and I will keep it in mind, many thanks. Look after yourself. Virtual hug  Jules

  • Thanks for kind words, I will try and stay positive. Husband not feeling too bad very quiet and tired but always been a very whatever will be man! xx

  • Hi JLM, any update on hubby, Thinking of you K
  • My hubby is doing well, is taking only paracetamol for pain and is able to take short walks but frustrated can't do more have an appointment on Weds with consultant. Feel nervous as should have results and staging x