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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hello again Brian my goodness what a huge amount of chestnuts you have I bought a bag of pre cooked vacum packed ones and put them in the stuffing I have made for Christmas quite a few portions now in the freezer ,do you eat yours raw or cook them I laughed at what Mrs B said, and , I wonder how long they will last you  .Rusty and I did go for a lovely walk earlier lovely and dry and at the moment the temp is 19.9 I dont believe it .I have brushed the garden path and cut back some ferns that were a little untidy there are still roses on Tonys bush {yellow }his favourite colour and on some fuscias and salvias ..Enjoy your chestnuts Brian  I should have said Charles Causley was a cornish poet as well as a school teacher I dont know if you have heard  of him but he was well know here in Cornwall ..Hope you and Mrs B enjoy the rest of the weekend ....Sueanne

  • Hi Sueanne,

    Youve no doubt heard of that programe, "The price is right" well Mr Tesco charges £6.99 per kg and I bought 5kg for £12 so I nearly bit the guys arm off. I eat them raw and slit the outer skins and roast them in the gas grill. I have also deep fried then in the past but you need to take off both inner and outer skins to do this. This is the only cooking I do as I am hopless at anything else, at least thats what I tell Mrs B as it get me out of cooking.

    It's quite foggy here this morning but I hope it is going to be another nice day. I bet Rusty looks forward to his walks. All dogs do seem to love walkies. We have several people who live near us and they never take their dogs out and we think they are so mean, after all it's not as if they are not able to do it, its more a case of cant be bothered.

    Anyway now Ive got that off my chest, take care and have a great day, Brian

  • Yea - people are rotton to their own animals half the time = and walking in this weather is so cool! Yup on the chestnuts = you can get loads of sweet chestnuts here under the many trees as they fall down. They are a little small this year - maybe the wrong sort of rain! We live near Portsmouth. I got some miniature roses in the Pound Shop = they are really pretty and I think will look good over XMas by the front door. I have the pot! Otherwise - rain has stopped play in the garden for a while.

    HAve a lovely week

    steve

    We are up before the consultant fro a check up this week = Tuesday infact. It feels like being up before the police or the old head mistress (the stern one!). Lets hope its goes okay.

  • Hello again Brian as you mentioned The Price Is Right ,well do you remember Johnny Morris the hot chestnut man on tv many years ago , maybe as you have so many chestnuts you could make a cart and sell some too make enough money to buy another sack ooh I love hot chestnuts ..Well as the weather was nice Rusty and me and my son and his jack russle went to the beach for a good run lots of other people and dogs had the same idea ..Take care Brian and say hi to Mrs B ...Sueanne

  • Morning Brian

    Glad that you managed to convince the roofers round to your way of thinking just a shame it needed strong words to get things sorted. Will keep virtual fingers crossed that the next rain stays on the outside.

    No win at the bingo and at the last moment hubby decided not to go out (having a bit of a dodgy tum). On Saturday we enjoyed seeing our eldest grandson open his birthday present and then we had Zack for the afternoon whilst our daughter and son in law took birthday boy bowling/pizza treat with three school friends - a great time was had by all if the photos had anything to go by.  Zack was his cheerful bubby self and I took him for two hour stroll to break up the day.  Hubby also enjoyed the visit.

    Yesterday our son(with his other half) drove us over to the inlaws so we could join their 'at home goodbye' get-together for a couple of hours.  Our daughter and family also managed to make it there, having cut short a visit to his gran, so that added support for us which was appreciated.  Hubby was his usual controlled self and did enjoy catching up with other old friends who went along but I know he will be relieved to have been able to be there.

    Another week begins and today I am putting a letter in the post to Social Services as yet another month has passed with no word from them and this is a stress I could really do without just now and I know that hubby shares my concern and he certainly does  not need to be stressed about me!!!

    Wishing you and Mrs B a peaceful week ahead.  Take care.Jules x

  • Hi Garf

     

    Thanks for your continuing support and kind words.  At the end of the day we know we can only do our best and support each other during this journey in the only way we know how and the necessary tears along the way are all part of it.  Hubby's eating is spasmodic to say the least but I have had to 'step back a bit' from it all as the emotions it causes will not help .  I make sure there is 'easy eating' available/close at hand but though he says he would like to gain some weight (whilst we were saying our cheerio's to his siblings yesterday) unfortunately is not able to take in nearly enough calories in his waking hours (still sleeping for long periods).  Maybe the steroids will kick in and offer him a bit of an oomph but the disease is definitely taking its toll understandably.

    Hope the pulled muscle eases soon (they can take their time!) but good news that keeping  busy is helping with your demons for now and hope ongoing therapy/hectic worklife continues to 'block, if not cure, the little blighters.  Pleased to here you managed a good golf game before you were injured though.

    Continue to take care of yourself and hugs to you and Mrs G.  Have a good week.  Jules x

  • Hi Sueanne

     

    Thanks for your continuing support and understanding and I think the emotions have been building for some time and in the end the dam burst so to speak.  I suppose it has cleared the air and if nothing else hubby has no doubt about how it affects us both! 

    Though he could not  manage his Friday night evening out as he had a dodgy tum (one off) we did manage to see family over the weekend and say cheerio to his siblings yesterday (their move now due to take place on the 16th) and he enjoyed catching up with some friends we had also not seen for a good while.  We had the support of our children/grandchildren and also a lovely afternoon on Saturday looking after little Zack (that saw me acting like a kid chasing him round our dining table on all fours - he crawls faster than ever!!.

    Well just seen the time slip away and I had best wash up and get off to work and see how the rediculous 'black friday' episode affected our place.  No doubt lots to do and am on my own today.

    Look after yourself and wasn't it lovely to have sunshine over the weekend to enjoy - you walked with Rusty and I had Zack to take on my walk for a change.  Sending virtual hugs for the oncoming week.  Jules x

  • Hi Jules,

    I hope the Black Friday didn't affect your workplace too badly.  I honestly could't believe the news footage of people who had queued for hours in the cold to then argue and fight with eachother and then promptly get arrested all in the name of a bargain.  Crazy!:confused:

    Mrs G and I went to a 60th birthday do on Saturday night which neither of us were really looking forward to. It was in a village hall so the evening was spent drinking warm beer while the dj played "oldest swinger in town" in a room full of people we didn't know.  In the end though it turned out to be a good night and she was a little the worse for wear yesterday although I felt well enough to play badminton and managed a draw.:)

    I will keep my fingers crossed that hubby's steroids will kick in and manage to improve his appetite a little. I will also keep toes crossed that his upset tum clears quickly enough for him to get back to his Friday night outing.

    Hugs and best wishes as always.

    Garf. x

  • Hi Garf

    No problems for our town centre re Black Friday apparently (I kept away!!).  The workload on Monday was obviously a little heavier as people have been paid and suddenly its 'let's get it done'.  As it was just me on shift for the morning it was a case of get done and dusted and then home for a sit down. I did get a surprise visit from sister in law and her friend (the first time she has been to Uxbridge for over 40 yrs ) to the store but I was obviously not able to say much more than hello and they went on their way.

    Hubby had the nurse for his dressing change and is still in more discomfort from the sore area than the cancer itself - very annoying for him. He is trying to eat a little more as he says he would prefer proper food to the shakes but there is not much he enjoys as his tastebuds well and truly 'shot' and its difficult for him to find motivation.  Still managing good breakfast and am still hoping the steroids may give him some help (we are a week on them now and small improvement noticed so far).  I think too with the emotional build up to seeing his siblings at the weekend has played a part and now that has passed he appears less strained (or is putting on a good show!).

    Off to see Mum this morning and looks as though it will be a wet walk grrr. Have also sent a letter to Soc. Services as after two months still no contact regarding her assessment and this is causing  much concern all round.

    Glad to read that, in the end, you enjoyed your Saturday social event and were capable of drawing at badminton the following day whilst Mrs G recovered.  I stayed on soft drinks when with hubby's family to avoid any 'loose tongue syndrome'.

    Continue to look after yourself and hope the rest of your family are keeping well.  Hugs  Jules x

     

  • Hi Jules, I just want to reinforce what others have said here, you are an utter bleeping marvel, the support you offer to us all while managing your own situation is amazing. You are truly a godsend. So glad you and hubby have have a good heart to heart. You are his right hand man so to speak and walking this walk side by side with him, what more could a person ask for or desire. He is a very lucky man. Just back from time with son and family. Lucky to have house sitting mate willing and able to do it again soon for another 5 day break but don't want to take advantage of the friendship. Bit strange not having work to look forward to ( yes have always been a bit mad) . Thinking of it as a holiday at the moment . Mother in law fell and broke her hip last Fri so didn't have to nag her about getting checked out, while in hosp she will checked out. Thank goodness she has come through hip Replacement op ok at age of 88 . Had such fun chasing sons dog around their back yard,dodging and weaving and basically acting the fool. The littlies laughed their heads off, what a beautiful sound that is kids giggling and laughing at their silly old Nanna Boo chasing dog who is only 18 months to no avail. Kathy xxx