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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hello Brian,


    Haven't spoken to you for a while but noticed it was your birthday last Monday, just wanted to send you belated happies and hope you had a lovely day.  Hope x

  • Hello Jules thankyou for your kind supportive words they mean so much as do Brians you have both helped me through my darkest days what would I have done without you both ..I am glad you are enjoying the lovely weather and able to get out into your garden to work and enjoy does hubby like sitting and admiring your lovely garden so relaxing the lovely smells of plants  talking of plants I saw a bush while out walking and found out it is salvia hot lips little red lip shaped flowers turning white and the smell is gorgeous I bought small plugs on line My daughter had 3 my friend had 3 and i had 3 and we are so pleased with them and they are still growing  and have grown to 2 feet and doing so well they smell minty and lemony mixed together ...I do look around on the forum often and was wondering if anyone had heard from Beryl I miss her chats ..Yes Jules our grandchildren do bring so much happiness kisses and cuddles my grandaughter Hollie who is 10 in Dec always wrote grandad Tony little letters saying get better soon and how much she loved him but now she writes notes to me and its so toutching and tearjerking   she only lives 10 mins away and I see her almost every day as her school is just over the road and mum parks in my drive so she hands me her noteand gives me a kiss  I give her an apple or some raisens in return bless her they keep us young to dont they ...So thankyou for your continued support Jules especially as you have so much going on in your life with work Mum and hubby look after yourself though Jules make time for you  .....I think of you often too as I have been where you are along the long hard cancer trail evil cancer...Hugs back Jules .....Susananne x

  • Hi Susananne and Hope and Jules,

    Thank you all so much for the birthday wishes.

    No I didn't get 71 bumps Susananne; even though I have lost weight lately, anyone would have great difficulty in doing this and would probably be utterly exhausted at the end. I would also be black and blue for they would probably drop me a few times.

    Hope, I see your name cropping up quite often offering help and support, something so many on this site do. I hope you enjoyed you break from the school and managed time with your family.

    Jules, I took Mrs B to our local garden centre yesterday and bought her a 12" high Tawny Owl which can either be used in the garden or indoors. It's not her birthday until November but they didnt have many left so have given it to her early and will get her some flowers on the day. Her face lit up when I told her to put it in the basket. I am convinced in her afterlife she will come back as an owl!!!!!!!!!

    take care my friends, hugs to you all, Brian.


  • A very happy belated birthday Brian from the Cancer Chat team!

    Now tell us the truth: did you eat nuts or carrot cake on your special day?

    Lucie, Cancer Chat Moderator

  • Hi Everyone

    Just a little update following hubby's trip to the GP this morning.    Though he had not lost any more weight  in the past two weeks he had not gained any either and the GP was not best pleased apparently.  We managed a little chat about things when I got in from work but he does find it incredibly difficult still and so I do not push too much.  The GP has arranged a change to oral morphine rather than tablet form so the prescription is with the chemist and should be available by the weekend.  He has also got more 'shakes' coming his way and the doc has asked that I go along with him next time (suppose I will get the third degree on what I should be doing by way of encouragement!) as apparently she wants to make sure I am okay (goodness knows what hubby has been saying!!) . Another appointment in two weeks (she has made it for a day I do not work just to make sure I get there though it will mean changing the time I visit Mum but doubt that will  matter much to her and I can forewarn her next week.

    Thanks to everyone for your continued support.  Like Susananne has said not sure where we would be without such a friendly forum to offload.

    Susananne - thanks for  your input which I know cannot be an easy reminder for you.  I expect we will see daughter and family over the weekend if they have no plans (the eldest likes the swingball in our garden!!).  Hubby is due to go fishing with our son next Tuesday so am thinking I might organise a little treat for myself as its my day off and I still have some birthday vouchers to spend.  Hope you have a good weekend and your garden continues to give you peace and relaxation - the new salvias sound lovely and what a great idea to share them around so you are all getting pleasure from them..  Its only me that sits in ours - hubby has never really been an 'outsider' unless he was involved in adventurous activities (no wonder he misses it all).

    Brian - Your thoughtfulness in the early birthday gift for Mrs B was lovely and I am sure she will get many hours of pleasure looking at her new ' Tawny' wherever it resides. She and I are very lucky to have such generous men in our lives.  I love wondering round the garden centres and rarely leave empty handed and most have lovely gift areas too - our son and his other half are really enjoying spending money on their own gardens and I am looking forward to some rhubarb next year!

    Take care everyone, Jules x

  • Susananne - forgot to say that I have not seen Beryl's name cropping up recently and  like you, hope she is coping okay. Jules x

  • Hi Lucy,

    Thank you for the birthday wishes. I did have some nuts Lucy, a mixture of Kent cobb nuts and salted peanuts, after all I would not be my nutty self without them would I. I now have a reputation for buying nuts at most of the local shops. They probably say here comes the Nutcase again

    Mind you, Mrs B doesnt help for she is way too honest as she always tells them I am a nutty person.

    Joking aside, thank you for your kind thoughts. Best wishes to you all at Cancer Chat, Brian

  • Very funny Mrs B! I thought she banned you from nut shops . I for one can never go to a nut shop having a child with a severe nut allergy so I can't even eat them myself anymore!

    Glad you had a good birthday full of nuts

    Lucie

  • Hi Brain hope jules doesn't mind but wanted to

    Wish you a belated birthday wishes.

    Glad you a happy nutty birthday lol.

    Good job I wasn't invited as I'm allergic to peanuts

    And almonds xx

  • Hi jules

    Thought I'd say hi and to let you know I'm thinking

    Of you, happy to read your hubby's GPS appointment

    Went as best as possible.

    My husband is abit like yours he likes to deal things his way

    And keeps most things to himself,I always have to ask but can't

    Push it or you get know where..... Men hey!!! Lol

    Hope your looking after yourself and a little treat on Tuesday

    Sounds lovely. Xxx