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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Brian,

    Sorry to read that your grandson has hurt his head and hope he will soon be recovered and enjoying a new story from Grandad (he is certainly crafty in the way he twists a story out of you).

    The cord pulls are looking very happy and would cheer up any home - wood is so tactile and I am sure your love of nuts is now truly reflected in the work you produce.  It would seem that you 'go to work on a NUT' rather than an egg thus keeping Brainitus alive and well.

    I spent a lovely hour and a half with my late friends husband and we put the world to rights and caught up on family news.  I even had coffee and cake (just to keep him company you understand).  He has re-arranged his part time hours so that he is out three days a week instead of the two he was doing whilst his wife was sick (he had a heart atttack a few years back, took early retirement and now works because he wanted something to do!).  He loves to chat so it was a very social visit and will keep in touch occasionally (told him it was my turn to make the coffee next time).

    Thanks for your kind words, appreciated always and hope you and Mrs B have a good weekend ahead. Jules x

  • Hi Susananne

    Lovely to see your name pop up and envy you and Rusty those Cornish walks - many happy memories of walking in that part of the world (have been known to take a 'hotel dog' for a walk too!!!).  How quickly time goes by with little James being nearly 3 months already (our youngest almost 9mths and they bring so much sunshine into our lives.  Tony would have loved it too I am sure from what you have written and feel  your loss in your words.  I spent an hour or so with my late friends other half today and know he is feeling the same way but like you he has grandchildren which are 'lighting up' his life and told me they help enormously.

    My hubby is not currently on steroids though has had a course in the past (last time we had a weekend away) to help with appetite issues.  He raised this with his GP last week but she feels he could benefit with more exercise first!  He has next consultant's appointment at end of August and think we will raise the question with her and get her opinion.  Trouble seems to stem from the fact that food is uninteresting (its not my cooking honest) as nothing tastes like it used to.  He does still enjoy fish and chips but you cannot have the same thing every day.  He managed a small plate of Chinese yesterday and we have managed some cold platters that seem to work but its not an exact science as some days he eats more than others just as, in the same way, some days he sleeps more.  Thanks for your kind words and hope you are keeping well  yourself.  Jules x

  • Hi Jules

    I know what you mean about same old same old.  When I got back to work after 4 1/2 months I expected many things to have changed but no it was all pretty much the same and even some of the files I worked on before I was off were still on the go.

    I can understand that it is nice to catch up with colleagues and regular customers.  It is great to talk to different people about so many things other than cancer.  Do hope you had a good chat with your late friend's husband.  It really does not seem that long ago that you posted to say she had passed away.

    I am sure hubby appreciates you more than you realise even if he does not say so.  He might not be interested in food but at least by leaving food for him he is eating something so you are defitnely good for him.  I am sure if he did take some gentle exercise it would help his appetite but I can also understand that he probably feels it will not change anything.

    Hope you have a good weekend.

    Gill

  • Hi Brian#

    Love the cord pulls.  I am sure they are very popular or will be.

    There certainly are no flies on your grandson!  I hope his cut head is ok.  Have you any ideas for a story about Kung Foo panda?  It will have to be good.  Perhaps some nuts will help inspire you.  I often find chocolate is good if I need inspiring but nuts are deifntley more  your thing.

    Best wishes.

    Gill

  • Morning Gill

    Hope you  have a good day and enjoy your weekend.  I spent a good hour and a half with my late friend's husband and caught up with family news/photos as well as going through old times and putting the world to rights (put it down to age!!).  He had just returned from a few days in Wales staying with good friends and has three young grandchildren who are keeping him 'grounded'. Time passes very quickly but the memories are fresh and good to draw on.

    Am hoping for a less eventful weekend ahead and am out this evening.  Work next week will be busier as my colleague is on her annual leave so will be mainly on my own in the department and also have the delights of a mammogram to look forward to!

    Look after yourself and you are doing a great job at supporting others on the forum as well.  Jules x

  • Hello Brian I hope Jules dosnt mind me using her  blog to answer your text thankyou for your kind words of comfort , I miss so many things about my Tony  grief takes so long to ease .I hope Mrs B is well and I love looking at your lovely woodwork you are so gifted .My son Justin has just finished making me a hedgehog home but isnt sure what to paint it with that wont hurt the hogs maybe you could advise something .Yes Rusty and I go for a walk twice a day Par beach or there are a few lovely trails around the Eden progect which is around 5mins from where I live so ther are some lovely places to go I am going to a Fetethis afternoon with my son Dylan and little James its where Bryony James mum works at an old folks home  so if weather remains dry its outdoors if wet indoors so that sold be nice .I hope you and Mrs B have a nice weekend...hugs to you too   ...Susananne

  • Hi Susananne,

    Hope you enjoy youself this afternoon at the fete. I came across this and thought how nice it was, because I often feel my mother's influnce.

    Take care Susananne, best wishes to you, Rusty and family, Brian.


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  • No problem Susananne; its lovely that others feel they can chat alone on my thread.

    Yesterday was beautiful here and today we have showers so will be dodging them later with a visit to the local shops.  Hope you enjoying the weekend and that the fete went well.  The care home where Mum is  have regular 'afternoon' events when the weather looks good and their summer fete certainly benefitted from the good weather (beautiful cream teas too!!).   Unfortunately my Mum will not join in but its good to see many of the residents (34 at present) and other relatives making the most of time outside.  Will be visiting this week (my cold kept me away last Tuesday) before keeping my mammogram appointment (not a great way to spend my day off but needs must).

    Enjoyed the visit of a hedgehog twice this week into our garden (have not had them for years so a welcome return though doubt the slugs think so) and the neighbours' cats still strolling in to say hi through our open patio doors..  Look after yourself.  Jules x

  • Hello Jules ,yes the fete went well Local town band played and the residents realy enjoyed that also a dog obedience show which was lovely 6 black dogs large and different breads went from owner to their own beds that were in a circle then told to run around allthe beds then lie down again then back to owner it was a lovely show ,and of course cream teas and a lovely cake stall it was a lovely afternoon and the weather was good too enjoyed by everyone and the residents met James who was asleep and said how lovely he is and how much they love his Mummy who cares for them which was lovely .Im glad the weather is good for you today and you enjoy your shopping tripand treat yourself to something nice maybe ..Lovely that you have hedgehogs in your garden they do certainly help with with the slugs and ther seems to be loads of snails this year yuc ,well Jules I must get on and give Rusty his dinner Ive roasted some chicken thighsso he can have one,  bone taken out chopped up and on topof his greyhound dry food ,hope you enjoy the rest of the weekend ...Susananne...

  • Hi Jules

    I really hope you have a quieter week this week.  You can do without another like last week for the next 20 years I would think.

    It was great that you were able to spend time with your late friends husband and catch up on new.  Alhtough it can be painfull talking about someone who has so recently died it keeps their memory alive and fresh in your mind and can help.

    I hope your weekly visit to you Mum will go well and also hope that even if you are likely to be bsuy at work that you get time with Zack as it will not only cheer you up but hubby as well.

    Best wishes.

    Gill