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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

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  • Morning Jules,

    Was just wondering how you got on when you visited your Mum this week, and also how your daughter got on at hospital?  I do hope things are not too stressful for you and that you can try and have a relaxing weekend.

    I'm waiting for my eldest to come home, he has spent somewhat of Freshers sleeping on fellow pupils floors after social events - latest was a toga party last night!  I'm off to my counsellor this morning, had originally been thinking I wouldn't need to see her for too much longer but have been so emotional this week so will talk things over with her.

    The weather is forecast to be nice this weekend but is looking a bit gloomy at present.  Here's hoping it brightens up and the sun shines on us all.  Take care  Hope x

  • Hi Hope

    Hope you visit to the counsellor was helpful and its good for you to be able to talk things through and this should last as long as you need it.

    I have just returned from visiting Mum and she was ok though I am sure a little concerned at how long she will be able to stay where she.  She has amazed the staff at how forthright she was when social worker 'interviewed' her and they are left in no doubt as to what she wants. All the care staff came to see me whilst I was visiting to make sure I was okay too - very sweet.  I stayed until she was due to go into lunch and we even managed a bit of a laugh when I showed her latest photos of her great grandson.  He has really enjoyed his first week in Reception and keeps telling his mum that his teacher is the most beautiful one in the school!!

    Hubby and I picked him up from school on Friday as my daughter had to return to hospital for a second day of tests and monitoring.  Specialist blood tests with regard to her liver function have been sent off and unless she hears otherwise she returns to clinic next Friday.  The last set of bloods were borderline but all readings for the baby were good.  If the new blood tests show certain 'rises' she may have to be taken in and possibly induced (she is now 37 weeks and would probably welcome is being over and done with!!).  Anyway so far so good.  I have an overnight bag ready and waiting and she has several friends on standby to get her to the hospital if her hubby is at work.  Mind you she is still driving herself at present!!

    When we met our grandson at school (its only 10mins to his home) he told Grandad that he could meet us there as it was healthier to walk!!!  My hubby's face was a picture as he drove off and I walked the little tyke home!!

    Life's stresses seem to come and go but having the forum to offload certainly helped me to see things in perspective this week though I think my mood swings are more due to hormones than current circumstances.

    Sounds like your eldest having a great time during Freshers but will no doubt be looking forward to some home cooking.  Have a great weekend with the family and will catch up again soon.  All the best and look after yourself. Jules xx

  • Hi Jules,

    Managed to get door painted okay and luckily we didn't get any rain here yesterday. Am going out to turn some larger cord pulls , something I have been meaning to do for the last five years or so but have never got around to doing it. Went to see grandson last night and found he had slipped over at school and cut his head. So he was having to sit still and watch a video. He wanted me to sit next to him and the video was Kung Foo Panda. After it had finished he said, "Now you have seen it, next time you come to visit me, would you do me a story about him. There are no flies on him.

    You say your hubby is glad you are back to work but I bet he appreciates all that you do for him in trying to encourage him. We men don't say "thank you" as much as we should do to our women folk. You must get very frustrated at times. Hope you have a good chat with your late best friends husband,

    Take care Jules, best wishes to you and you family, Brian.

    See below for new range of cord pulls.

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  • Hello Jules Just catching up on your post .What a worry

    watching hubby losing weight and eating very little I cant remember if he is on steriods ,only when Tony was feeling rotten and not eating a lot the macmillan nurse suggested steriods and his appetite increased and he felt a lot better ,and he put on weight too so they helped a lot . I am so sorry you had so many problems and bills when you were on leave it never rains but it poors , still all sorted now .Well Rustyand I went for a lovely walk on the beach this morning we did stay dry but got back just in time because it decided   to rain but now 24degs and sunshine .Little James is doing well he weighs 13 lbs and is 11 weeks old now smiling and cooing he is so lovely I wish Tony could see him .I miss him so much .Jules I was wondering have  book sales dropped  Tony bought me a kindle a 4 years ago and I havnt bought a book since  well only on kindle I either get free books or sped no more than 99 pence for one and my 3 daughters have kindles too so just wondered ,I thought I would miss a book to hold but I didnt ..I hope you and hubby have a lovely weekend and the weather is kind to you .Hugs as usual Susananne ..

  • Hi Susananne,

    Have spoken for a while so nice to see your name crop up. Pleased to read rusty and you are still enjoying your walks on the beach. I cant believe little James is 11 weeks old now. I know what you mean about wishing Tony could see him for I often think the same about my mother and my youngest grandson. He was born while she was very ill in hospital and he was also in and out of different hospitals so she never got to see him or hold him. She would have loved to see how all three grandchildren are growing up and would have been so proud of them. I still miss talking to her and having a laugh like we used to do so I do understand how you must miss Tony even more.

    Take care now Susananne, have a great weekend, big hugs being sent your way, Brian.

  • Hi Brian,

    Sorry to read that your grandson has hurt his head and hope he will soon be recovered and enjoying a new story from Grandad (he is certainly crafty in the way he twists a story out of you).

    The cord pulls are looking very happy and would cheer up any home - wood is so tactile and I am sure your love of nuts is now truly reflected in the work you produce.  It would seem that you 'go to work on a NUT' rather than an egg thus keeping Brainitus alive and well.

    I spent a lovely hour and a half with my late friends husband and we put the world to rights and caught up on family news.  I even had coffee and cake (just to keep him company you understand).  He has re-arranged his part time hours so that he is out three days a week instead of the two he was doing whilst his wife was sick (he had a heart atttack a few years back, took early retirement and now works because he wanted something to do!).  He loves to chat so it was a very social visit and will keep in touch occasionally (told him it was my turn to make the coffee next time).

    Thanks for your kind words, appreciated always and hope you and Mrs B have a good weekend ahead. Jules x

  • Hi Susananne

    Lovely to see your name pop up and envy you and Rusty those Cornish walks - many happy memories of walking in that part of the world (have been known to take a 'hotel dog' for a walk too!!!).  How quickly time goes by with little James being nearly 3 months already (our youngest almost 9mths and they bring so much sunshine into our lives.  Tony would have loved it too I am sure from what you have written and feel  your loss in your words.  I spent an hour or so with my late friends other half today and know he is feeling the same way but like you he has grandchildren which are 'lighting up' his life and told me they help enormously.

    My hubby is not currently on steroids though has had a course in the past (last time we had a weekend away) to help with appetite issues.  He raised this with his GP last week but she feels he could benefit with more exercise first!  He has next consultant's appointment at end of August and think we will raise the question with her and get her opinion.  Trouble seems to stem from the fact that food is uninteresting (its not my cooking honest) as nothing tastes like it used to.  He does still enjoy fish and chips but you cannot have the same thing every day.  He managed a small plate of Chinese yesterday and we have managed some cold platters that seem to work but its not an exact science as some days he eats more than others just as, in the same way, some days he sleeps more.  Thanks for your kind words and hope you are keeping well  yourself.  Jules x

  • Hi Jules

    I know what you mean about same old same old.  When I got back to work after 4 1/2 months I expected many things to have changed but no it was all pretty much the same and even some of the files I worked on before I was off were still on the go.

    I can understand that it is nice to catch up with colleagues and regular customers.  It is great to talk to different people about so many things other than cancer.  Do hope you had a good chat with your late friend's husband.  It really does not seem that long ago that you posted to say she had passed away.

    I am sure hubby appreciates you more than you realise even if he does not say so.  He might not be interested in food but at least by leaving food for him he is eating something so you are defitnely good for him.  I am sure if he did take some gentle exercise it would help his appetite but I can also understand that he probably feels it will not change anything.

    Hope you have a good weekend.

    Gill

  • Hi Brian#

    Love the cord pulls.  I am sure they are very popular or will be.

    There certainly are no flies on your grandson!  I hope his cut head is ok.  Have you any ideas for a story about Kung Foo panda?  It will have to be good.  Perhaps some nuts will help inspire you.  I often find chocolate is good if I need inspiring but nuts are deifntley more  your thing.

    Best wishes.

    Gill

  • Morning Gill

    Hope you  have a good day and enjoy your weekend.  I spent a good hour and a half with my late friend's husband and caught up with family news/photos as well as going through old times and putting the world to rights (put it down to age!!).  He had just returned from a few days in Wales staying with good friends and has three young grandchildren who are keeping him 'grounded'. Time passes very quickly but the memories are fresh and good to draw on.

    Am hoping for a less eventful weekend ahead and am out this evening.  Work next week will be busier as my colleague is on her annual leave so will be mainly on my own in the department and also have the delights of a mammogram to look forward to!

    Look after yourself and you are doing a great job at supporting others on the forum as well.  Jules x

  • Hello Brian I hope Jules dosnt mind me using her  blog to answer your text thankyou for your kind words of comfort , I miss so many things about my Tony  grief takes so long to ease .I hope Mrs B is well and I love looking at your lovely woodwork you are so gifted .My son Justin has just finished making me a hedgehog home but isnt sure what to paint it with that wont hurt the hogs maybe you could advise something .Yes Rusty and I go for a walk twice a day Par beach or there are a few lovely trails around the Eden progect which is around 5mins from where I live so ther are some lovely places to go I am going to a Fetethis afternoon with my son Dylan and little James its where Bryony James mum works at an old folks home  so if weather remains dry its outdoors if wet indoors so that sold be nice .I hope you and Mrs B have a nice weekend...hugs to you too   ...Susananne

  • Hi Susananne,

    Hope you enjoy youself this afternoon at the fete. I came across this and thought how nice it was, because I often feel my mother's influnce.

    Take care Susananne, best wishes to you, Rusty and family, Brian.


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  • Hi Susananne,

    Hope you enjoy youself this afternoon at the fete. I came across this and thought how nice it was, because I often feel my mother's influnce.

    Take care Susananne, best wishes to you, Rusty and family, Brian.


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