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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Susananne,

    Thanks for the reply. That word CANT is not recognised in my house either.  Glad to hear Rusty still loves his walks, dogs do love them don't they. We have neighbours near us who have dogs and neither me or Mrs B has ever seen them take them for a walk.

    Can understand what you say about Rusty not liking the heat though as Mrs B is much the same. One of the medicines/drugs she takes means she has to avoid strong sunlight.

    Take care, best wishes Brian.

  • Hi George,

    Sorry to hear about your daughter, this must have come as a big shock to you. Having family support means so much as I know from when I had my prostate cancer. Wishing you all the very best, Brian.

  • Hi Jules,

    Thanks for that love.

    Today is great as It's a day off, however there I was thinking I could do some gardening.

    I tried. I got well bitten by midges, so I have come in.

    Now looking for priority in indoor jobs with the thought of ironing in front of the telly later on.

    Hope your having a lovely day

    Annabel. xx

  • Hello Jules ,have just said goodbye To Dylan and James who I fed and winded changed his nappy and was smiled at also frowned at then cooed to  Bryony his mum is working today evening shift .I remember Tony suffered with fatigue badly also feeling full quickly,sadly all part and parsel of the illness .But im glad hubby is still able to enjoy his evening out with his friends something for him to look forward to .Hope you both enjoyed B B Q . We have just had a heavy thundery shower so hope it clears the muggy feeling .take care Jules and a big hug as usual ...Susananne

  • Hello Brian ,you neighbours are being cruel if they dont walk their dogs they wont be getting enough exersize and their claws will get too long poor things I would report them if they lived near me for the dogs sake .We have just had a heavy thundery shower so not so muggy now hopefully ,like Mrs B I dont like it so hot but I suppose we mustnt complain .Rusty met his girlfriend Jessie another greyhound in the park at 8 this morning so they had a lot of fun running  together lovely to watch them together.hope you had a nice Fathers day Brian and were spoilt .Take care then Brian ...Susananne

  • Hi Brian thanks a lot she had a emicolctomy in stepping hill stockport today I have just called the unit she is in high dependency? that was all Iwas told  could son-in-law will go tonight to see her and will let us know jusy how she is

    it was a tumour in the bowel but in a good place they said.She is in the Bobby Moore unit a great place to be .It is 7 years since I had my prostate and bladder out almost to the day .she is 54 and a good lass .many thanks .[[ ]]

  • Hi Brian .Just had a call from our son-in-law Brad,Bev was in theatre for 7 hours but in the hi dep ward now she as not got a pouch as I have had for 7 years the staff are pleased with her condition  sound like all is well

    she will have to on cemo we think but she will cope .fantastic result for us all .regards george .xx[[ ]]

  • Hi George

    So pleased to hear your daughter is doing well.  I am sure she will cope with the chemo especially as she will have you supporting her.

    Very best wishes to you both.

    Gill

  • Hi George,

    Thanks for the update regarding your daughter. Glad she has come through the op well and as Gill has said with you to advise and support her I feel sure she will make a good recovery. I send best wishes to you and your daughter, Brian.

    p.s Love the photos.

  • Hi Jules

    Just thought I would check in on you and the lap top.  Having an ex computer nerd for a husband I only ever use the lap top on a table or a try never on my lap.  Purely as I would never hear the end of it.

    Do hope you and hubby are keeping well and that your Mum was okay during your weekly visit.  Good luck with the PofA forms.  They seem never ending.

    Gill