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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hello Brian just read your text to Jules ,and the CANT word isnt or has never been allowed in in my Grans home my Mums home and my home and now also in my son Justins home  ha ha no such thing as Cant ..I hope you and Mrs B have a lovely weekend ..Its so hot today my weather station is saying 28.9degs  outdoors and 21 in so im in ha ha  take care ...Susananne

  • [[ ]]Thanks lass our girl, beverley as worked all her life apart from having two great lads  she met up with stoma nurses and they have been great she may not have a pouch as I have had for 7 years to the day .

    But the top nurse said I will be there when you come round we are there for yor you .We have cancelled our holiday untill after her operation we are a strong family and we are as one on this ..

      regards for now urostar (george )

  • Hi Brian

    Another fleeting visit.  Am sure your sister really appreciated being abe to chat through her feelings with you.  Somehow once its shared it feels just that little bit easier though obviously still very raw for her.  Its hard to believe where the time goes as its already over a month since my friend passed away.  I pass her house twice daily when I go into work and it still feels strange to think she is no longer there.

    Are those 'nuts' still giving you lots of enjoyment or have they vanished into thin air.  I have just managed to mow the lawn and it has been mostry dry following the sudden shower that caught me out!  We have also had the benefit of seeing Spitfires, Lancaster Bomber, helicopters which were returning from the Trooping of the Colour into our local airport which also happened to be having its own open day today (my son went along so suspect I will see some good photos when we visit tomorrow).  Saw some good aerial displays over the garden and the finale was  parachute jumps (counted 5 as they leapt out all with Union Flag 'chutes and trailing smoke).  Our next-door neighbour had his fancy camera (huge lens) and managed some good shops (my little camera made the spitfires look like a couple of seagulls in the distance) but hubby and I watched from the back door/garden and is was free entertainment for a while.

    Have been asked to take our Swingball with us tomorrow so sense there will be fun and games with the youngsters. Keeping fingers crossed that the weather stays dry as promised.  Hope to be chatting again soon.  Regards to you and Mrs B and hope you find your Dad in good form tomorrow (love that 'can't is not a word he relates to - have never liked that word much myself - much prefer 'try and try again' (though its b...... hard sometimes!!).  Jules xx

  • Hi Susananne

    Nice to see you posting to Brian and love the sentiments that your family generations hold  - not a fan of 'can't' myself either.  Hope you having a good weekend and that baby James is doing well and bringing lots of happiness into your life (and his parents' of course).  Will be seeing our own grandchildren (and children) tomorrow and weather is supposed to be dry (hope so as they have BBQ planned and our daughter is running the Race for Life is memory of one of the young Mums at her son's school (along with lots of the other parents too)).  Sending hugs  Jules xx

  • Hi George

    Just wanted to send you, your daughter and all the family big hugs during this new battle you are all facing - you are all winners in my eyes as you have each other and there is definitely 'strength in numbers'.  Bless you.  Jules xx

  • Hi Annabel

    See you have been wearing yourself out 'working for no pay. just love' on the holiday cottages and no doubt pretty tired.  Do take care of that back and am thinking of you.  Sending hugs and hope that all the family are keeping well.  Jules xx

  • Hi Jules,

    I had a change of mind and phoned dad a few minutes ago. It was so nice to be able to talk to him as at one stage I didn't think I would get the chance. He says he is still very weak and tires easily but still has a good sense of humour. I wished him a happy fathers day for tomorow and a happy birthday which is only a few days away. I told him how proud I am of him after all he has been through. He told me he is getting a little deaf as several times I had to repeat myself to him. I told him our next door neighbour has just got some hearing aids and how it has made a big difference to her.He also told me it's nice to get back home once more.

    You are very lucky to have had a free Ariel display. I do love to see (and hear) the Lancaster and spitfires, they really do have a sound all of their own. I hope the weather is kind to you tomorow when you visit your son. Sounds like it could be an energetic day with the swingball. My son has just visited and ha gave me a card for tomorow which I can only describe as a card, for a nutty person, namely me. Peanuts have almost disappeared so will have to make a visit to the nut shop. Mrs B is just putting on the highlights of today's test cricket.

    Have a great day tommorow, best wishes to you both ,Brian


  • Hello Jules ,I hope all is good with you and hubby ,yes little James is doing well smiling and cooing oh and poooooing ha ha .The weather has been so hot and sunny, Rusty has been in and out dosnt like the heat too much not much shade in my garden ,was thinking I may get a little gazeebo for him to lie under .I hope the weather stays nice for you and your family to enjoy the B B Q and race for life  our race for life is at The Eden Progect ,a bit hilly in places my grandaughter Jodi is doing it again this year in memory of Tony bless her  ,Take care Jules  big hug returned xSusananne

  • Hi Brian

    Just doing a last look round before I give my laptop 'away' for a 'look over'. Not sure when I will get it back but hoping not too long.

    So pleased you managed to have had a chat with your Dad; he really is a marvel after all he has been through.  Am sure you must feel greatly relieved to have had the opportunity and bet he was 'made up' too.  Stayed up to see the football (though not usually into it!!) just a shame about the result.  Hope you enjoyed watching the test cricket and that you stay well and truly into your nut treats.  Stay well and hope to be back before long.  Jules x

  • Morning Susananne

    Hubby and I are coping quite well though he does find the fatigue side of things a real nuisance.  Just as well the pain is under control but his back does cause some discomfort though sitting most of the time is not helping this.  Appetite comes and goes - did well yesterday so we just make the  most of it and get as many calorie laden goodies(in the smalled portions imaginable) into him when he feels able.  Feels full pretty quickly and can no longer enjoy a beer (but then he prefers whisky anyway) and is still managing his Friday night social evening which is about as normal as it gets.

    Glad little James is bringing such joy though am sure today will bring very many mixed emotions for a lot of people here.  Letting hubby having a good lie in this  morning so he can save his energy for this afternoon with the family.  It usually takes him a couple of days to recover whenever we go out and his consultant just says its important to take the rest before and after such occasions.  To be honest he rarely does much now other than spend time watching the tv.  For such a 'workaholic'  I can see why he used to say he never wanted to retire but I never hear him complain or get angry with the illness (just shows displeasure when I nag him to increase his 'liquids' - just following his consultants instructions which she feels is the cause of his low BP/energy levels).  Stay well and love the idea of a 'doggie gazebo' - we have a teepee for the baby to lay in but suspect it will not be long before he crawls out!!  He has his first words now - dada, brother and mama (in that order!!) - also very close to getting hello.  How the time flies. best wishes  Jules x