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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Jules,

    How are you today?  Just to reiterate Brian's words, "you will always support your husband and will never fail him".  I hope his visit tomorrow lifts his spirits and perhaps he will share his day with you when he returns.  It must be difficult to talk when every day is the same and I know he doesn't want to talk about his illness.  That said it is equally difficult for you to "carry on as normal"; however it sounds like you are doing a very good job - you are a star.  Take care.  Hope x

  • Hi Jules

    So pleased to hear that your daughter will be with you when you meet your Mum's team.  I am sure just having her there will be a help.  It is also nice to know that your Son in Law will help with the paperwork if you need it.  I know having gone through the same for my mother it is not a quick and easy process and only takes effect once it is registered with the Public Guardianship Office which can take some weeks.

    I really hope hubby has a good day tomorrow at your son's work.  He must really be looking forward to it and as you say hopefully it will give him a lift before the next big appointment.

    Big Hugs to you.

    Gill

  • Hello Jules ,I am so sorry you have so many worries ,of course hubby must be your priority,and glad he has the visit with sons boss to look forward to things like that can be a great benefit to him and with your familys  support will help too .I would like to say hope all goes well on Tuesday  too .I can remember when Tony was first diagnosed I had to say to my children dad is my priorty now as i was taking one of my daughters to and from work picking grandchildren from school busy all the time with one thing or another , so with chemo lasting most of the day hospital visits and things something had to give ,so I know how you feel being torn from pillar to post .Hard I know but you need some me time and hope you have a relaxing weekend , and that the weather is good ,its awful here in Cornwall today rain rain rain so fingers crossed for more sunshine  , take care Jules  and a big hug  x Susananne

  • Morning Brian

    Just a quick line to thank you for your kind words. Like everyone here says its a relief to have the forum for an outlet.

    Hope the woodturning has gone well and your 'wood family' is growing.  Hope you enjoyed the time with the grandchildren (even though it leaves us grandparents weary their young outlook and generally happy outlooks bring so much into our lives) and those visits are so precious and rewarding.  Hope too that you and Mrs B are keeping okay and that you will manage that call (if not done so already) with your Dad.

    Am pleased to report that today my hubby has managed very well to get himself out of the house and off to enjoy visit to our son's place of work.  He left with a smile on his face and you all know how much that can mean. (I am, for a little while, in charge of the remote  and the tv is OFF!!!).

    Wishing you a very pleasant weekend though think we may be dodging the showers.  Sending hugs.  Jules x

  • Hi Jules

    So pleased hubby left smiling and looking forward to hiis day.  Can't say I blame you for turning the tv off.  Having seen quite a lot of daytime tv over the past few months I can attest to the fact that whilst it has improved from years ago it still has a long way to go.

    Make the most of today.

    Gill

  • Morning Hope

    Thanks for your kind thoughts.  Have decided that when 'times are tough' need to 'deal with it' and move forward. Easier said than done of course.  Very quiet here at present (I am in alone and its a small blessing that I can  switch off TV for a few hours)  and despite the time of day have a scented candle on the go. You may have guessed (or read post to Brian) that hubby has gone on his 'sightseeing/factfinding' trip to our son's workplace so fingers crossed that his returning smile is as big as his departing one.  We are also looking forward to our usual 'socials' this evening.

    Am still keeping you in my thoughts and know the coming days will be emotional rollercoaster for you - take your own time to do what you want to do when you want to do it.  Am here if you need to chat.  Sending big hugs and thanks again for your continued support. Jules xx

  • Morning Gill,

    There's me just catching up with my posts and you already on the ball this morning.  Am having a lazy morning now (have done washing ironing and daughter has borrowed my 'Henry' so have good excuse not to hoover.  Have made myself a huge bowl of mixed fresh fruit and got my feet up - what a change a day makes!!   At least I can give the old  bones a rest (still trying to compartmentalise my thoughts but not complaining!!).

    Hope you are feeling okay and taking things slowly yourself.  Bet you are now beginning the countdown to your phased return to work and no doubt your daughter will soon be home from uni for the summer break.  My son works at a research facility at Brunel and always says that campus suddenly seems like a ghost town when the students leave for home (but parking is easier!!).

    Hope you have a good weekend and that we all manage to see some good weather. Got caught in hail/thunder storm on my way home from work yesterday and was greeted by the man of the house saying 'did you get wet?'  with me dripping all over the carpet despite a brolly.

    Thanks for your continued support - the forum community is amazing place to be part of.  Sending hugs  Jules xx

  • Hi Jules

    Love the comment of your hubby as you stand there dripping wet!  I was really lucky as I was about to head out when the thunder started.  I thought I would wait a bit to see what happened.  Needless to say I did not bother to go out at all as it was not absolutely necessary.

    Alice is coming home this weekend and then back for summer on 14 June and starting work on 16 June.  As she has to be out of her flat on campus by 10am we are going up the weekend before to pack most of her stuff and bring it back then so there is only the minimum to bring back on 14.  Apparently if they do not hand their keys in by 10am they are fined.

    Make the most of your day of rest.  You deserve it.

    Gill

  • Morning Susananne

    Thanks somuch for your continued kind thoughts and understanding.  It means a lot to be able to chat to people 'in the know' even though I am sure it is never easy reading posts when you  have such insight from a personal point of view.

    Hope you and the family are all doing well and am sure  baby is thriving.  I love the first year - such a cute and cuddly time - though of course every age brings its own rewards.

    Have a reasonable weekend ahead and if the weather allows will relax outside if possible.  Yesterday dealt me a drenching as I walked home from the station in a hail and thunderstorm which even a brolly could not totally keep at bay.  Today so far is dry but the clouds are gathering (and some are very dark indeed)  but its keeping the roses happy having been well watered.

    Take care and sending hugs. Jules x

  • Hi Jules

    Sorry I haven't responded sooner but have been in loads of pain with back problems again.

    I think with all the lovely weather we have had I have done too much digging so soon after the back went when I was with Ava.

    I have been reading your thread and keeping up to date with things.

    I just want you to know I haven't forgotten you my friend and I hope things go a bit better for a while to give you a bit of respite. You deserve it as you are such a giver in life.

    Hugs

    Annabel. xx