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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

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  • Morning Jules,

    Was just wondering how you got on when you visited your Mum this week, and also how your daughter got on at hospital?  I do hope things are not too stressful for you and that you can try and have a relaxing weekend.

    I'm waiting for my eldest to come home, he has spent somewhat of Freshers sleeping on fellow pupils floors after social events - latest was a toga party last night!  I'm off to my counsellor this morning, had originally been thinking I wouldn't need to see her for too much longer but have been so emotional this week so will talk things over with her.

    The weather is forecast to be nice this weekend but is looking a bit gloomy at present.  Here's hoping it brightens up and the sun shines on us all.  Take care  Hope x

  • Hi Hope

    Hope you visit to the counsellor was helpful and its good for you to be able to talk things through and this should last as long as you need it.

    I have just returned from visiting Mum and she was ok though I am sure a little concerned at how long she will be able to stay where she.  She has amazed the staff at how forthright she was when social worker 'interviewed' her and they are left in no doubt as to what she wants. All the care staff came to see me whilst I was visiting to make sure I was okay too - very sweet.  I stayed until she was due to go into lunch and we even managed a bit of a laugh when I showed her latest photos of her great grandson.  He has really enjoyed his first week in Reception and keeps telling his mum that his teacher is the most beautiful one in the school!!

    Hubby and I picked him up from school on Friday as my daughter had to return to hospital for a second day of tests and monitoring.  Specialist blood tests with regard to her liver function have been sent off and unless she hears otherwise she returns to clinic next Friday.  The last set of bloods were borderline but all readings for the baby were good.  If the new blood tests show certain 'rises' she may have to be taken in and possibly induced (she is now 37 weeks and would probably welcome is being over and done with!!).  Anyway so far so good.  I have an overnight bag ready and waiting and she has several friends on standby to get her to the hospital if her hubby is at work.  Mind you she is still driving herself at present!!

    When we met our grandson at school (its only 10mins to his home) he told Grandad that he could meet us there as it was healthier to walk!!!  My hubby's face was a picture as he drove off and I walked the little tyke home!!

    Life's stresses seem to come and go but having the forum to offload certainly helped me to see things in perspective this week though I think my mood swings are more due to hormones than current circumstances.

    Sounds like your eldest having a great time during Freshers but will no doubt be looking forward to some home cooking.  Have a great weekend with the family and will catch up again soon.  All the best and look after yourself. Jules xx

  • HI JULES Brian as said it all we are all thinking of you GOD BLESS   george XXXXX

  • Am so sorry to see all that you have endured over the past few weeks Jules. My love and thoughts are with you x

  • Lisa, George and Max

    Just to say many thanks for your kind words.  The support of my virtual buddies means so much and it always feels better to have 'got it out'.

      It's really now trying to prioritise and hubby has and will always be my first concern. Though I still find it distressing that I have to second guess his feelings about so much these days I have accepted that this is the 'fault' of the illness/drugs and not of my man.  He spends his days sitting watching tv or sleeping and when he is awake just looks so miserable it could break your heart but, and its a big but, he wants me to carry on as normal and this I  must try to do as I do not want to fail him. Am really hoping that his visit to our sons workplace on Friday gives him a lift (just like his days fishing a few weeks ago).  When he goes out and does 'normal' (like his Friday night beer with his friend) I still see a glimpse of my real hubby so long may these times continue.

    As you can imagine the death of my friend had emotions at boiling point which had a knock on effect when trying to take in the added concerns regarding Mum but hoping that my one day at a time logic will kick in and  with my kids' support (and giving the forum the occassional ear bashing) I can draw enough strength to see us all through the problems that are part of life.

    Hope you are all doing okay at present and wish you all a good weekend ahead.  Hugs  to all  Jules x

  • Hi Jules,

    So sorry I have not responded sooner. I spent most of yesterday woodturning and last night was my usual visit to see my grandchildren. When I got home, I feel asleep on the settee. I can tell I am still tired from the amount of typos I am having to correct.

    But enough about me. I am really feeling for you at the moment, what with the loss of your dear friend, your mother and the constant worry about your husband all combining to cause you distress. Your husband is a lucky man to have you looking after him Jules, and I feel absolutely sure you will never fail him. I am pleased that you have a very supportive family who understand the many problems you have. Please feel free to come on here and offload anytime Jules and we will be happy to respond. You have been so supportive of so many people including me since you have joined, it's our turn to support you now.

    Take care Jules, Just take it one day at a time as you say.

    sending best wishes and kind thoughts your way, Brian.

  • Hi Jules,

    How are you today?  Just to reiterate Brian's words, "you will always support your husband and will never fail him".  I hope his visit tomorrow lifts his spirits and perhaps he will share his day with you when he returns.  It must be difficult to talk when every day is the same and I know he doesn't want to talk about his illness.  That said it is equally difficult for you to "carry on as normal"; however it sounds like you are doing a very good job - you are a star.  Take care.  Hope x

  • Hi Jules

    So pleased to hear that your daughter will be with you when you meet your Mum's team.  I am sure just having her there will be a help.  It is also nice to know that your Son in Law will help with the paperwork if you need it.  I know having gone through the same for my mother it is not a quick and easy process and only takes effect once it is registered with the Public Guardianship Office which can take some weeks.

    I really hope hubby has a good day tomorrow at your son's work.  He must really be looking forward to it and as you say hopefully it will give him a lift before the next big appointment.

    Big Hugs to you.

    Gill

  • Hello Jules ,I am so sorry you have so many worries ,of course hubby must be your priority,and glad he has the visit with sons boss to look forward to things like that can be a great benefit to him and with your familys  support will help too .I would like to say hope all goes well on Tuesday  too .I can remember when Tony was first diagnosed I had to say to my children dad is my priorty now as i was taking one of my daughters to and from work picking grandchildren from school busy all the time with one thing or another , so with chemo lasting most of the day hospital visits and things something had to give ,so I know how you feel being torn from pillar to post .Hard I know but you need some me time and hope you have a relaxing weekend , and that the weather is good ,its awful here in Cornwall today rain rain rain so fingers crossed for more sunshine  , take care Jules  and a big hug  x Susananne

  • Morning Brian

    Just a quick line to thank you for your kind words. Like everyone here says its a relief to have the forum for an outlet.

    Hope the woodturning has gone well and your 'wood family' is growing.  Hope you enjoyed the time with the grandchildren (even though it leaves us grandparents weary their young outlook and generally happy outlooks bring so much into our lives) and those visits are so precious and rewarding.  Hope too that you and Mrs B are keeping okay and that you will manage that call (if not done so already) with your Dad.

    Am pleased to report that today my hubby has managed very well to get himself out of the house and off to enjoy visit to our son's place of work.  He left with a smile on his face and you all know how much that can mean. (I am, for a little while, in charge of the remote  and the tv is OFF!!!).

    Wishing you a very pleasant weekend though think we may be dodging the showers.  Sending hugs.  Jules x

  • Hi Jules

    So pleased hubby left smiling and looking forward to hiis day.  Can't say I blame you for turning the tv off.  Having seen quite a lot of daytime tv over the past few months I can attest to the fact that whilst it has improved from years ago it still has a long way to go.

    Make the most of today.

    Gill

  • Morning Hope

    Thanks for your kind thoughts.  Have decided that when 'times are tough' need to 'deal with it' and move forward. Easier said than done of course.  Very quiet here at present (I am in alone and its a small blessing that I can  switch off TV for a few hours)  and despite the time of day have a scented candle on the go. You may have guessed (or read post to Brian) that hubby has gone on his 'sightseeing/factfinding' trip to our son's workplace so fingers crossed that his returning smile is as big as his departing one.  We are also looking forward to our usual 'socials' this evening.

    Am still keeping you in my thoughts and know the coming days will be emotional rollercoaster for you - take your own time to do what you want to do when you want to do it.  Am here if you need to chat.  Sending big hugs and thanks again for your continued support. Jules xx

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  • Morning Hope

    Thanks for your kind thoughts.  Have decided that when 'times are tough' need to 'deal with it' and move forward. Easier said than done of course.  Very quiet here at present (I am in alone and its a small blessing that I can  switch off TV for a few hours)  and despite the time of day have a scented candle on the go. You may have guessed (or read post to Brian) that hubby has gone on his 'sightseeing/factfinding' trip to our son's workplace so fingers crossed that his returning smile is as big as his departing one.  We are also looking forward to our usual 'socials' this evening.

    Am still keeping you in my thoughts and know the coming days will be emotional rollercoaster for you - take your own time to do what you want to do when you want to do it.  Am here if you need to chat.  Sending big hugs and thanks again for your continued support. Jules xx

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