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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Jules

    So sorry you've both had a let down. Can feel like such a crushing blow when you look forward to things at the best of times and are let down.I bet his confidence and self esteem have taken a real knock. And I bet your heart was hurting. Hope it all works out for tomorrow, and thanks so much for your support earlier on the branchial thread.

    Lots of love

    Lisa xX

  • Thanks Lisa

    My 'cyber army'  'friendly strangers' have pulled rank and me back into line.  It seems even the little things can still rock my boat and bring out of the worst  in me!!  Still am up and raring to go (actually fell asleep in front of the tv too early last night and then tossed and turned till the early hours so got up even earlier than usual (probably pay for it again later!!)).  Iam now sitting in anticipation that hubby's phone will go off again which all seems a bit stupid.Hey ho just another blip to normal.  No doubt by 7.30 I will be on the way to work and being busy will keep the mind otherwise occupied.  My daughter keeps telling me to remember that there are things that are outside my control so I should not 'worry' about them and I know she is right(but have not been installed with and 'off switch').  Of course hubby just accepts it all without need for conversation (leaving me guessing as to what he really thinks) -no change there then.

    Hope that when you return to work today it too will help the waiting period you have to endure for  more of Paul's ' date retrieval'.  Sending hugs. Jules xx

  • Morning Jules,

    Have only just caught up with your thread and was sorry to read about your disappointment regarding hubby's trip to work.  I really do understand how the slightest thing can send you into "sad mode" when you are already feeling low - happens to me ofte. If only we really did have an on/off switch as you described, but in reality we are governed by our emotions that tend to run riot when we've been under a lot of stress already.  Thing is I don't think other peope i.e. hubby's boss, really understand the impact of their actions, he probably thinks there is no problem changing from one day to another, not realising that hubby had probably been building up to and looking forward to his trip so much.  Anyway I really hope he gets there today and in turn that you feel a little brighter. Sending you a virtual hug.  Hope x

  • Thanks Hope. Am much calmer today (or should I just say 'accepting the inevitable') and when I got in from work hubby was not here so he must have made it to Milton Keynes.  Am sure he will be shattered  but happy when he returns.Not sure yet if he will be back tonight or if he will need to stay over  as this depends on what imput is needed.  Took overnighter just in case though!.  I thought I would  be rushing around doing housework whilst he is not here to disturb(!) but just decided to relax and catch up with my mail over my usual late lunch.  Also had chat with my daughter as was able to pick up a reading book for her eldest (put his world book day token towards it).Apparently the swimming goggles I bought for him yesterday have been paraded around their flat along with the Sports Relief wristband. Tonight he has a swimming lesson so hope they do the trick there too!!!  My daughter has also signed up for Race for Life (team of Mums from the school are doing it in memory of a parent who lost her fight last year).  She has had a two year break as we have both done it in the past.  Its not going to be so easy for her this year with it becoming more personal but she will be far from alone on the way round.

    Hope you are managing okay and sending peaceful hugs your way.  Jules xx 

  • Hi Jules

    Hve caught up with the thread.  I am sure your hubby reached MK and hopefully was not to worn our when he returned home.  Those of us who live in Milton Keynes often call it MK.

    My neice did the Race for Life both lat year and the year before for both her aunt abnd mum who both suffered breast cancer and have been given the all clear.  My neice was trying to get a family team together.  I had to opt out as the race was the day we returned from Cyprus at 4am.  Her mum was due to come with us but her son had been in hospital on life support fro 10 days and came out two days after we let for Cyprus and he needed someone looking after him for a while unti he got back to relatively normal.  That left my eldest sister and my neice.  Not much of a family team.  The others are doing it this year and I have said this year might be a bit too soon for me do I will no next year.  i will start training once my treatment is over which should be June.  I will need that much time to prepare as I am so unfit.  One of my old work colleagues who is a runner does it every year and is pretty quick and whilst I do not want to kepp up with her I do not want to embarass myself either.

    I hope you got browny points for the goggles from you grandson.  They must be ok otherwise he would not have showed them off to his friends.

    Best wishes.

    Gill

  • Hi Gill

    You're right he made it there and has made it home again!!(  Decided not to stay over as did not fancy spending the afternoon/evening alone in a hotel so he will be  back  up there tomorrow. He is of course weary but it gave him 'focus' for a while.  He will probably have a doze now until evening meal later. When he was working he used to travel a great deal and spend a lot of time in hotels but its different now that he cannot manage any physical work.  He gives them guidance as and when they need it (every couple of months or so when a new job comes in).

    My brownie points are mounting as I also bought him a bag of his favourite 'noodles' when we were doing our own shopping.(He insisted on having them for his dinner last night so lots of hugs coming my way next time they visit)  Its lovely getting the feedback and that what grannies do - its better than sweets which he rarely gets as treats (though grandad does have a 'chocolate box' for his own booster food which has become a bit of a favourite visiting point.  The opening line is usually 'I am really hungry for grandad's chocolate' and he usually shares it with his Mum.

    I hope your treatment goes well and bet you are looking forward to June when it will be finished - need to plan some serious pampering in celebration I reckon.  Thanks for your continued support.Its good to chat.  Jules xx

  • Good morning Jules,

    Haven't been on here quite so much the past couple of days as I am trying hard to get one of my stories finished. As  my microphone headset is playing up have been typing by hand and its much slower. I am the original one finger Joe and I am sure they keep moving the letters about on the keyboard just to confuse me further. Have a new headset arriving early next week hopefully so should be able to speed up then.

    Glad your husband made it into work and hope he was okay to return the next day and that all the travelling didn't take too much out of him. At least he now has the weekend to recover. Mrs B's brother came to see her last Saturday while I was at my cancer charity and she said he didn't look at all well and just the short walk from his car to our house had completely puffed him out. She has not slept that well since so know she is concerned. What have you got planned for the weekend Jules? Hope it's nothing too strenuous.

    Take care Jules, sending best wishes to you and your husband and family, Brian.

  • Hi Susananne,

    Hope you are well and Rusty and you are still taking the walks each day. Your mention of kindle is someplace I hope to start uploading my stories to in the near future. I will keep you up to date with any progress on this. I have been working hard to get that story finished and am now on page 24 and hope to make it up to about forty A5 pages when finished. Take care and I hope you have a good weekend, best wishes, Brian

  • Hi Brian

    I can understand that your wife is worrying about her  brother and actually seeing him brings it home what he is going through. Its certainly not easy being a 'watcher'.Has her brother begun treatment yet?

    Hubby managed two trips up to Milton Keynes (though was home both days by 4). He did not want to stay away overnight in the end so on top of the working he had double journeys. Yes, he is physically tired (having been up just half an hour he is dozing again and his breakfast remains uneaten but suspect he is waiting for his medication to kick in). Also know that he will be apprehensive about his check up next Tuesday (think they want to change his drugs and he apparently told them he does not like the idea of being an 'addict'.  This leads me to assume he is trying to put up with the pain he has rather than accept the help being offered butI am hoping I am wrong.  Hopefully I will be a little more in the know once we see his consultant.

    We are hoping to be out for our usual Friday night social evening but other than that have no plans for the weekend..  Its sounds like its going to  be a chilly one but if its dry I will potter in the garden. Have done my housework and washing and ironing first thing (still cannot lie in!!) so looks like a lazy day unless we go to do the shopping.  Hope you both have a restful weekend though knowing your Brian you will be busy writing (typing) as you aim to finish your current story.  Take care Jules xx

  • Hi Jules

    Pleased to hear your husband made it to MK and back twice.  It must have been hard going for him.

    I am not suprised he is waiting for meds to kick in before eating.  Unfortuantely does not work for me at present.  Everything tastes horrible and i have no appetite.  This is likely yo lst through until end of next week.  I then have about a week of eating normally before next round.

    I am not sure you will be able to get out in the garden much.  Forecast is saying heavy showers on Saturday and about 9 ot 10 degrees and not much better on Sunday.  Mind you they have been wrong before.  I have some work planned for our garden which hubby will do although he does not yet know about it.  Nice surprise for him!

    Hoe you get out for your usual tonight.

    Have a good weekend.

    Gill