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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Jules,

    Hope when you meet with your mother it all goes as well as can be expected. I have this afternoon ordered a new washing machine as ours is about twenty two years old and when it starts to spin, It sounds like concord taking off at full power.  We were told two years ago the sub frame was nearly rusted through and couldn't be repaired again. The bearings have finally given out so I am just hoping it will last until the new one is delivered. It is so noisy now I have had to bring my ear defenders in from the garage. But I have got into trouble as I cant hear my wife talking to me now!!!!!!!!!!!.  Think even when the new machine is in and installed may just forget to take them back to the gararge. Hope my wife doesnt read this

    Take care Jules. will talk again soon, Brian


  • Hi Jules,

    How right you and Hope are for saying that we can only take one day at a time. It's true for all of us but we don't all realise it. I think you have hit on another good point which is that as we get older we are aware of time passing, and that life is more stressful as it gets faster and more sophisticated. I also think if you are a natural worrier( and I am,) then things can soon get even more stressful. 

    Your daughter sounds as old and sensible as mine, indeed there have been moments when I have wondered who is the parent.

    I won't mention parents tonight, I am having a difficult time with mine as they get older, and I don't know whether it's me being a grumpy getting older woman or them being ever demanding second childhood parents. (Sorry I said I wouldn't go there!!!!!!)

    Jules I really came on tonight to say I won't be on the forum until Sunday night now as am lending my laptop to husband who is off to Wales for 3 nights, so he can answer business emails whilst away.

    Will catch up with everyone on Sunday eve. Hope you all have a lovely weekend.

    Annabelxx.

  • Hi Jules,

    Sorry to read that you have been having so much hassle with your mums situation whilst having to deal with your husband's illness.  At least your Mum made the decision to stay herself.  Hopefully something comes up closer to home soon.  Take care.xxx

  • Hi Jules

    I am so sorry to read what you are going through where has the humanity gone within our country, you only have one mother and in our life time we try to do the very best for our parents only to come up against social service panels who make these decisions have they not got parents themselves I am absolutlry horrified at the way the are treating you and your mum do they also not know about the turmoil you are having, ie hubby's illness can you not talk to you local MP.  The way you have been treated is absolutely horrendous, is this the future for many elderly people who cannot defend themselves.

    What can I say my love only take it one step at a time.

    I am thinking of you lovely Jules

    Take cafe darling

    Beryl xxxxx

  • Thanks so much Beaker to responding on my thread when dealing with your own sadness.  I will be visiting Mum later this week and it really is a case of taking things day by day now as it looks as though by Mum refusing to even look at an alternative solution to her care arrangements, there may well be no financial support from social services as they do not recognise the need for full residential care and say this was a luxury whilst she could afford it (and they cannot support that!!).  In the next breath they say its not about the cost, just that the 'service user' can be managed just as well in what they are offering. They might as well just issue my Mum with a number. Very frustrating but with Mum having chosen to make a stand she will have to use what little money she has now to stay where she is for as long as she can. After that, well who knows!

    Hubby is plodding along and is managing to still do a few days a week at work in a consultancy/teaching role at present. It leaves him pretty tired the rest of the time but work is where he is happiest so we are coping like so many others in this situation.

    Take care of yourself. Jules x

  • Thanks for  your very kind words Beryl.  Life is certainly not meant to be straightforward these days!!  Having said that the positiveness of my Mum took us all by surprise given her recent moods so as they say there is life in the old dog yet. Not certain what the future holds regarding her Care so one day at a time is the only way to go for now.  The government view is that everyone should be looked after in 'own home' environment' with full residential care being a last resort and they do not feel Mum's needs require the current level of 'residency' at such a high cost. In the next breath they say its now about the money.  Hey ho.  By the way they are fully aware of our home situation and even offered us extra help (not required at present) - hard to understand their way of thinking but it does all come down to rules, regulations, guidelines, tick boxes etc etc.  Will visit Mum probably tomorrow now as thats my next day off and am sure it will be an interesting conversation if she is in the right mood.  Having spoken to her care team she is doing okay - stronger in  mind than in body perhaps!!

    Hope you are managing the  day to day mantra we are all trying to cope by. Sending virtual hugs. Jules xx

  • Hi Jules,  Have just realised that I've sort of replied to your last post on my thread but wanted to touch base anyway and say that I hope you are feeling a bit better today.  Mental health issues are always difficult as is dealing with elderly parents and all that that entails, I hope your inner strength comes through for you.  Good luck to your daughter today at the hospital.  A trip to the hairdressers is always good for self-esteem too!  Take care.  Hope x

  • Good morning Jules,

    We have a nice clear blue sky here this morning with a touch of fog and the temperature is only 6 degrees outside so feeling very chilly went I went outside to put the rubbish out. Hope you are able to have a good conversation with your mother tomorow and that the S.S. visit has not upset her too much. I cant get over the fact that they wanted you to do their work for them in try to change your mothers mind. Talk about trying to pass the buck. I bet they were a bit taken aback by your mothers refusal to do what they wanted. I hope your extended hours at work has not been to tiring. Hope you have a quite weekend planned. Take care Jules and will talk again soon, Brian.

  • Hi Jules,

    I only just saw your thread this morning, but felt so upset for you reading all that you have all gone through this week.  I really hope a good night's sleep was had last night and that this has revived you for what today holds in store; I hope your visit to Mum goes well.  On the plus side, it does sound a little like these decisions have given your Mum some of her fight back which I think is a good thing.  Sounds like your husband and daughter are providing great support and giving you the right level of love and 'talkings to' as needed!  I have seen many comments in this thread about taking each day at a time, and as you will know from my previous postings, this is valuable advice I give to everyone - it just makes coping that much easier when you deal with one thing at a time rather than trying to deal with the whole thing all of the time (which never works I have found!)

    As well as that, do keep focussing on the imminent birth of your next Grandchild - as we have said many times, children are a wonderful way of diverting the mind to more positive thoughts and I really hope this will be the case for you and your family.

    Take good care, thinking of you as always,

    Catherine x

  • Hi Brian

    Sounds like a washing machine virus thats spreading!!  Your description matched perfectly with how my machine was two weeks back (not been used since!!) and I have just got back from local launderette and now the washing is on the line. No idea when we will manage to get replacement!!

      Visit to Mum moved to tomorrow now as I am needed to pick up grandson from school.  Daughter at hospital all day yesterday and back there again today for more tests as to her liver function and as baby was not playing 'ball' whilst  she was on heart monitor, they going to re-do that as well this morning.  With only a few weeks to her due date think she is rather hoping they will say 'lets get the tyke out!!' but its a waiting game.  According to care home staff Mum doing okay so her brush with the authorities seems not to have fazed her.

    Hubby has done a four day week and  will be glad to 'catch his breath' over next few days before going back in Monday. Certainly now seem to be in 'new normal' as we cope on a daily basis but still make plans along the way.   Chat again soon. Jules xx