Hi RB

Saw that you are experiencing more angst, which you really don't deserve. This time from the hospital healthcare team. The most powerful factor in getting through this dreadful disease is hope! It is very poor care coming from healthcare professionals not to try and nurture that hope. I'm sure you will not be bullied into DNR arrangements. Whilst palliative care can be open ended. Im on palliative care but do not feel it is end of life care. I'd go with your GP and the nurses on this who with closer contact with your husband probably have the more informed opinion. Im pottering about today making tomato sauce with the glut of tomatoes from our garden while waiting for the nurse to phone to approve next weeks immunotherapy. Wishing you and your husband a better day with some hope for the future.

Ed

Hi RB

Saw that you are experiencing more angst, which you really don't deserve. This time from the hospital healthcare team. The most powerful factor in getting through this dreadful disease is hope! It is very poor care coming from healthcare professionals not to try and nurture that hope. I'm sure you will not be bullied into DNR arrangements. Whilst palliative care can be open ended. Im on palliative care but do not feel it is end of life care. I'd go with your GP and the nurses on this who with closer contact with your husband probably have the more informed opinion. Im pottering about today making tomato sauce with the glut of tomatoes from our garden while waiting for the nurse to phone to approve next weeks immunotherapy. Wishing you and your husband a better day with some hope for the future.

Ed

Dear Ed

Thank you for taking time from your day to offer your support.

I am as you say experiencing angst...

I am quite angry and now distrust the local hospital and hope we never have to go through this again.

Hubby has an appt with oncologist at the Cancer Centre next week see what they say.

It is has you say HOPE that keeps us going and taking that away from patients is cruel and unethical.

I will try to be more positive and wind up my battery to keep going.

The tomato sauce sounds nice ..and a lovely thing to do. Away to ease the wait of wondering 

I hope you got the green light for your next treatment be thinking of you

Thank you for all your support sending strength 

Kindest wishes RB