I'm sorry you are going through this and your husband ,I would go with your Doctor not the hospital ,I say this because my Father in law a few years ago was admitted to hospital after a fall although he seemed fine to us and was just in shock after falling in the house ,( he didn't have cancer) on the same day he was admitted we were asked to sign a DNR in our ignorance we did ,big mistake ,they took him into a room I don't know what happened but the next time we saw him he couldn't breathe he died the next Day ,don't be bullied into DNR I wish you well ...

Oh my Jenny3109 i am so sorry to hear this happened to your father 

Thank you for taking time to share what must be very painful for you

When you are in the moment it is hard to think straight isnt it?

And we trust the medics and nurses

I am now very untrusting except of the gp......and of my own judgement too.

Im sending you hugs for caring 

Kind wishes

RB

My oesophagal tumour was diagnosed over 2 years ago and several consultants suggested that I'd be unlikely to see the year. But since I'm writing this you can see that hasn't come about. However, around February last my consultant suggested to the GP that the palliative care nurses ought to be visiting. They did, twice, but then decided that I wasn't as sick as others who needed their help more. So they stopped coming and knocked me off their list. I now get no help from anyone other than the hospital, where I'm for a barium swallow next week, as the oesophagus has narrowed to the point where I can't swallow except for tea, coffee, soup! I feel a bit abandoned. 

Hello Greysquirrels

Im not surprised you feel unsupported at the moment when your condition has altered. 

Hubby had to have a new stent inserted hence hospital inpatient.

It has made all the difference again and he is now eating and drinking much better/ variety I mention this incase its suggested to you....the team that did that was great....fingers crossed for a good outcome 

I wonder if you might try having a chat with nurses here or Macmillan nurse support line ?  They really helpful 

Mostly im sending you a hug 

Kindest wishes RB

Dear Ed

Thank you for taking time from your day to offer your support.

I am as you say experiencing angst...

I am quite angry and now distrust the local hospital and hope we never have to go through this again.

Hubby has an appt with oncologist at the Cancer Centre next week see what they say.

It is has you say HOPE that keeps us going and taking that away from patients is cruel and unethical.

I will try to be more positive and wind up my battery to keep going.

The tomato sauce sounds nice ..and a lovely thing to do. Away to ease the wait of wondering 

I hope you got the green light for your next treatment be thinking of you

Thank you for all your support sending strength 

Kindest wishes RB