My oesophagal tumour was diagnosed over 2 years ago and several consultants suggested that I'd be unlikely to see the year. But since I'm writing this you can see that hasn't come about. However, around February last my consultant suggested to the GP that the palliative care nurses ought to be visiting. They did, twice, but then decided that I wasn't as sick as others who needed their help more. So they stopped coming and knocked me off their list. I now get no help from anyone other than the hospital, where I'm for a barium swallow next week, as the oesophagus has narrowed to the point where I can't swallow except for tea, coffee, soup! I feel a bit abandoned. 

My oesophagal tumour was diagnosed over 2 years ago and several consultants suggested that I'd be unlikely to see the year. But since I'm writing this you can see that hasn't come about. However, around February last my consultant suggested to the GP that the palliative care nurses ought to be visiting. They did, twice, but then decided that I wasn't as sick as others who needed their help more. So they stopped coming and knocked me off their list. I now get no help from anyone other than the hospital, where I'm for a barium swallow next week, as the oesophagus has narrowed to the point where I can't swallow except for tea, coffee, soup! I feel a bit abandoned. 

Hello Greysquirrels

Im not surprised you feel unsupported at the moment when your condition has altered. 

Hubby had to have a new stent inserted hence hospital inpatient.

It has made all the difference again and he is now eating and drinking much better/ variety I mention this incase its suggested to you....the team that did that was great....fingers crossed for a good outcome 

I wonder if you might try having a chat with nurses here or Macmillan nurse support line ?  They really helpful 

Mostly im sending you a hug 

Kindest wishes RB