Tonsil Cancer

For anyone who is about to start their cancer treatment for Tonsil Cancer I would like them to know about my partners journey so far to give some positive vibes. He is almost finished Chemo and Radiotherapy the side effects that he was told would happen haven't been as bad as expected. He has managed without needing a PEG or NG tube. Food has been difficult but has found the drink supplements a big help in keeping calories up when everything has started to taste horrible. His throat has been sore but with soluble paracetamol and co - codamol it's been manageable. Im not saying it's easy but doing the exercises the speech therapist gave him weeks before treatment started really helped. As the weeks went on from 4th week he was only able to do them once a day. Taste is the worst of it all but that should improve once treatment stops. I know each person will respond differently to treatment but I just wanted anyone out there who is starting all this to have some hope. 

Parents
  • Hi

    How many rt and chemo

    hiwsvthe dry mouth ulcers they say we might get

    sickness

  • Hi 30 radiotherapy sessions which has only 2 left and 6 Chemo that has finished. The dry mouth has not been a big problem yes it has happened but not needing really needing to be sipping drinks that much more than normal. Sore mouth but the mouth washes and moisturising gel that has been given has helped a lot. I think the worst thing has been feeling sick from Chemo. This seems to happen around day 5 post chemo but they have switched meds around to help him which has made some difference. I think also the altered taste so he has to make himself eat and drink. His swallowing has not been affected. All these things have been manageable and no where near as bad as we were expecting. I have to add everyone will experience different problems I just wanted people to know going into this what we have seen happen for my husband. I wish you all the best and hope you will of got some positive from what I have posted. 

  • Was the tonsil cancer hpv positive?

    mine is p 16 negative

    but I also May have tumour on 1 adrenal gland

    waiting on pet/ct scan results

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