Facing the idea of losing my mum and not sure how to cope

Hi everyone

Im 34 and very very close to my mum (she is 78 but looks and acts about 40!)

2 years ago my mum went from being a very independent and active lady to disabled overnight due to a near fatal infection in her hip replacement which has to be removed and she now has no hip joint at all.

fast forward a year to the day and we find out she has stage 3B cervical cancer

we were blown away and devastated. 
I live with my mum and she has carers 4 times a day who are great 

my mum is being so strong and positive which is amazing but some days I am so overwhelmed and devastated at the fact she will never get better.

she had 10 sessions of palliative radiotherapy to try and shrink the tumour and renounce symptoms such as bleeding etc.

she feels well in her self which is great but the doctor and oncologist advised they wouldn’t do any follow up scans to see how successful it was as they don’t want to subject her to further radiation 

therefore I feel like I’m in no man’s land - not knowing how well it worked or how long I have my mum for

some days I feel so upset and scared as the idea of losing her is just incomprehensible 

it would be great to hear some of your coping skills and/or similar experiences as I don’t know anyone in my friend group who has gone through this

thanks

holly xx

Parents
  • Hi Holly,

    I’m so sorry to hear what you are going through. Your mum sounds lovely and so strong. My mum (69) has stage 4 and the feelings and emotions that come with it all are unbearable aren’t they. I’m 35. I don’t have any coping strategies to share as I’ve not really worked that out for myself yet, it’s only been two months since I found out. What I try to do is spend as much time with her as I can and be so very present in that moment but also give her and myself space when needed. I’m focusing on making as many nice memories as we can, we are going to make hand casts and make memory books but that in itself feels emotional. I try and make her laugh and do normal things too, although it’s always there isn’t it. It feels very unfair, the pain of not having them in our futures, that was never the plan. I presumed I’d have her for another 20+ years. We’ve all started eating healthy together which makes us feel that we have a bit of control, we have considered repurposed medications but the research base isn’t as strong as we would like. I go to Maggie’s sometimes when it feels too much or text a close friend who I know will always listen. I did get a short prescription of diazepam from the doctor to help me manage my initial insomnia and stress, that did help calm me when I felt hysterical but trying not to use it now, still hysterical at times, I think that’s normal considering the circumstances. I have also taken time off work as I can’t do what I need to, my priorities have changed now. I also find spending time with my cats calms me a little. My mum joined a group for women who have secondary cancer, that gave her hope as there was women there who lived way past their originally prognosis. I think hope is something that really helps us. I noticed after her hearing this me, my mum and my dad all felt a little bit more upbeat knowing that she may be here for longer. It’s just unbelievable how life can change and it become the worst thing we have ever imagined.

    i am sending you the biggest of hugs, and although it may feel lonely know you are not alone. Happy to chat x

Reply
  • Hi Holly,

    I’m so sorry to hear what you are going through. Your mum sounds lovely and so strong. My mum (69) has stage 4 and the feelings and emotions that come with it all are unbearable aren’t they. I’m 35. I don’t have any coping strategies to share as I’ve not really worked that out for myself yet, it’s only been two months since I found out. What I try to do is spend as much time with her as I can and be so very present in that moment but also give her and myself space when needed. I’m focusing on making as many nice memories as we can, we are going to make hand casts and make memory books but that in itself feels emotional. I try and make her laugh and do normal things too, although it’s always there isn’t it. It feels very unfair, the pain of not having them in our futures, that was never the plan. I presumed I’d have her for another 20+ years. We’ve all started eating healthy together which makes us feel that we have a bit of control, we have considered repurposed medications but the research base isn’t as strong as we would like. I go to Maggie’s sometimes when it feels too much or text a close friend who I know will always listen. I did get a short prescription of diazepam from the doctor to help me manage my initial insomnia and stress, that did help calm me when I felt hysterical but trying not to use it now, still hysterical at times, I think that’s normal considering the circumstances. I have also taken time off work as I can’t do what I need to, my priorities have changed now. I also find spending time with my cats calms me a little. My mum joined a group for women who have secondary cancer, that gave her hope as there was women there who lived way past their originally prognosis. I think hope is something that really helps us. I noticed after her hearing this me, my mum and my dad all felt a little bit more upbeat knowing that she may be here for longer. It’s just unbelievable how life can change and it become the worst thing we have ever imagined.

    i am sending you the biggest of hugs, and although it may feel lonely know you are not alone. Happy to chat x

Children
No Data