Hi Lucy. It is scary but the first thing to say is that I am glad that you have carers to support him, you need people to support you too so please do reach out to family, friends and professionals. 

The first few days are the scariest, after that a sort of routine gets going. The only advice I can give is to make the most of the time you have remaining, impossible though it sounds I will have some very happy memories of these past few months.

This is a club nobody wants to belong to but, if you look through these forums you will find how much stronger we are than we think we are and how we cope with things that seem impossible to cope with.

Take care of yourself in all of this, it is terrifying, it is overwhelming but help is at hand 

thank you    for   your    reply  .it has been  a   big   reading   your    message

thank you    for   your    reply  .it has been  a   big   reading   your    message