Immunotherapy for Squamous Cell Throat Cancer

Hi, my mum was diagnosed with Squamous Cell Throat Cancer in Feb. There have been some setbacks along the way which has prolonged a treatment plan being put into place. 

She hasn't eaten or drank since January and had NG tube fitted which then had to be replaced with a PEG as the NG wasn't tolerable. She swills her mouth but can't swallow so that's about as far as it goes. 

She was also recovering from an infection so that put the treatment back even further. They initially said radiation & chemo but now it's just immunotherapy (permbrolizumab). This is due to start on Monday & will take place every 3 weeks for up to 2 years. 
 

My mum is struggling to see a way out of this, she's also had to have a tracheostomy fitted as it was discovered that the tumour is making its way down her airway. 
 

Does anyone have any positive stories re this type of cancer or treatment & can life return back to normal? Will the immunotherapy shrink the tumour as I'm confused as to how she's ever going to be able to eat or drink again & feeling so helpless. 

  • Hello emchase, 

    I am so sorry to hear about your mum's diagnosis and I hope that the treatment plan can now go ahead after the initial setbacks like the infection she has been recovering from. How awful that she has not been able to eat or drink since January and that she can't swallow. 

    I hope that everything goes well on Monday with the Pembrozulab immunotherapy treatment. There is useful information on our website on pembrozulab immunotherapy treatment for squamous cell cancer and a nice little video on how pembrozulab works. 

    If there is anything you would like to discuss or ask, don't hesitate to get in touch with our cancer nurses on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

    Our general section on immunotherapy will also explain to you what immunotherapy is and how it works. Pembrolizumab is what is called a checkpoint inhibitor and you can read more about this type of immunotherapy on this page. 

    I hope that you will meet other forum members who have had a similar diagnosis and that they will come and share their experiences with you. I had a look around the forum and found [@samster1]‍ had posted this thread a few months ago about being diagnosed with squamous cell throat cancer and also asked on this thread about immunotherapy options. 

    I hope that things will improve quickly for your mum now that the treatment plan has been activated. Keep us updated if you get a chance on how things develop for her. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

     

     

  • Hi emchase

    sending much love  to you and your mother as you negotiate this challenging time. 
    the macmillan throat cancer online  forum is quite active, if you’ve not joined, you might find this helpful for some feedback from others.