Waiting for news, but consumed with fear

  1. I've recently had CT scan that showed potential mets to my lung and hilar node from my triple negative breast cancer which I battled against in 2024.
  2. I have now had a bronchoscopy and Pet CT scan but the wait to hear back is agonising and all consuming. 
  3. How do I cope with yet more waiting as suspect it'll be next week before I get confirmation and news about my prognosis and treatment plan.  
  4. I am 55 years old and it's looking unlikely I will see my 60th birthday.
  5. I really want to try to be positive but all things are leading to a poor outcome. 
  6. Can anyone offer any help or advice for the waiting. 
Parents
  • Hello and thanks for posting.

    I'm sorry to read about all you’ve been through and can appreciate that waiting for test results can prey on your mind. Many people describe feeling overwhelmed, with their thoughts going to the worst-case scenario, so it’s no surprise you’re feeling this way. Trying to carry on with everyday life while this uncertainty is there in the background can be exhausting.

    As you can appreciate, until all the results are back, no one can say for certain what they might reveal.

    I see that you've been given some good advice from Lee. I know it’s easier said than done but try and take it one step at a time until you know more. Some people find talking it through with family and friends and keeping busy can sometimes help. Also try and focus on what you can control right now by eating a good diet, getting enough rest, and doing some gentle activities that you enjoy.

    You may find it helpful to know that Breast Cancer Now have an online forum and you may find it helpful talking to other women going through similar things and hear about their different experiences. Macmillan also have an online forum for triple negative breast cancer that may be useful.

    I hope this is of some use. Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

Reply
  • Hello and thanks for posting.

    I'm sorry to read about all you’ve been through and can appreciate that waiting for test results can prey on your mind. Many people describe feeling overwhelmed, with their thoughts going to the worst-case scenario, so it’s no surprise you’re feeling this way. Trying to carry on with everyday life while this uncertainty is there in the background can be exhausting.

    As you can appreciate, until all the results are back, no one can say for certain what they might reveal.

    I see that you've been given some good advice from Lee. I know it’s easier said than done but try and take it one step at a time until you know more. Some people find talking it through with family and friends and keeping busy can sometimes help. Also try and focus on what you can control right now by eating a good diet, getting enough rest, and doing some gentle activities that you enjoy.

    You may find it helpful to know that Breast Cancer Now have an online forum and you may find it helpful talking to other women going through similar things and hear about their different experiences. Macmillan also have an online forum for triple negative breast cancer that may be useful.

    I hope this is of some use. Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

Children
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