Finding peace amongst the chaos

Hi Nurses 

More emotional than physical 

How to help partner find peace amongst the stress of cancer.  Its been over a year and reaching thr limit of predicted  time to live.

Hubby keeps needing transfusions and although I asked why all o got was blank looks from the junior drs.

He is feeling pressured to fill in DNR forms and he needs to come home.

The care is shocking and Iv made a complaint he is heading towards end of life and we are so stressed its awful I dont wNt this to be his/ our last memories 

Help

Parents
  • Hi RB

    So pleased you have got your husband home at last but saddened that he is not well and under stress that he could do without. I hope you can get some help with sharing his care so at least you can get an hour to yourself from time to time. I know how hard work being a carer 24 hours is. I cant offer any practical advice but send you a big hug.

    Ed

  • Hello Ed 

    Lovely to hear from you How are you doing today? Thank you for the hug it really helps.

    Update

    Hubby is definitely better than when he was admitted they fixed things they could. His cancer has spread but he is feeling more positive in himself which is nice to see.

    Our gp is coming out ( I know!?) to see him/ us so that is something

    I think once we both get a good nights sleep ( lets face it no one sleeps well in hospital) we will feel better. 

    I am so grateful for your support and other chatters too....thank you Ed

    Kindest wishes RB

Reply
  • Hello Ed 

    Lovely to hear from you How are you doing today? Thank you for the hug it really helps.

    Update

    Hubby is definitely better than when he was admitted they fixed things they could. His cancer has spread but he is feeling more positive in himself which is nice to see.

    Our gp is coming out ( I know!?) to see him/ us so that is something

    I think once we both get a good nights sleep ( lets face it no one sleeps well in hospital) we will feel better. 

    I am so grateful for your support and other chatters too....thank you Ed

    Kindest wishes RB

Children
  • Hi RB

    The update that your husband is feeling more positive is heartening news. I hope that you both got that longed for good nights sleep. Hospital with the constant activity all night is not the most conducive place for sleep. The visit from your GP is reassuring too to assess his situation and hopefully put in place things for his and your wellbeing. For me Im getting on Ok the immunotherapy is working well and slowing the advance of cancer. Im making the most of the extra quality time it is giving me. Pain is becoming a more constant feature of life but is bearable with analgesics. Today is a good day but tempered with a visit to see a relative with lung cancer in hospital. It seems Im never away from that place. Hope your day ahead brings some joy.

    Ed

  • Hi Ed 

    Its good to here your current treatment is working for you.

    Giving you precious time to enjoy what is important to you.

    You are such a kind compassionate person support myself/ hubby and others that pop along to the Chats.

    Thank you so very much.

    Re visiting your relative today perhaps plan in a something to give you pause afterwards to help  rebalance. Hugs its a lot to deal with 

    I hope you are able to find some further relief from your pain in a way that is right for you so you can get some rest and good sleep 

    Us we both fell asleep quite early and much to the family hounds disdain didnt get up at 6am Lol

    It really is good to be in your own environment 

    1. Take care of yourself Kindest Wishes RB
  • HI RB

    It is good to be in your own environment. At night you rest well as you know all the familiar creaks and groans the house makes without jumping out of your skin. You are surrounded by all your familier things and being at home with your hounds is very therapeutic. They know when you are not well. 

    Ive taken on your suggestion to plan something for after the hospital visit to my relative and we will go down to the coast for a walk and an ice cream. Simple pleasures are the best. Hoping that your day goes well.

    Ed

  • Hi Ed 

    You are right re simple pleasures

    I hope you got to enjoy your ice cream yesterday and had a peaceful day today however that looks for you x

    We enjoyed peace and quiet today being  Sunday no professionals calling

    Just a slow pace and snoozing me more than hubby having him home relaxed me enough to pause.

    We watched all the sport his fave and he managed to spend all day out of bed and in his comfy chair with hound dog for company ....

    The moments we end up treasuring  are often so ordinary that unless we are forced to take notice by something big like cancer we miss them.....

    So here is to the moments when we can pause and just be

    With thanks for your kindness peaceful dreams 

    RB