Hello, and thank you for posting.

I am sorry that you and your husband are struggling to find peace as he deteriorates from his cancer diagnosis.

It is difficult for me to say exactly why your husband is having blood transfusions. However, I can say they can be needed when the cancer is advancing, and the bone marrow is involved. I am sorry that the doctors have been unable to sit and talk this through with you. Do ask at the hospital to talk to the nurse in charge of his care, so you feel you understand what is happening.

A hospital-based palliative care team would be a great support and would also help with these types of conversations. They are experienced in discharges for terminally ill patients and good at talking through the Do Not Resuscitate forms (for more information, read DNR forms from the Compassion in Dying website). These teams can also navigate the community systems and ensure that the support is there when someone is dying at home (CRUK).

The Coping with Cancer pages on our website talk through all that is incredibly hard and may be useful.

Hopefully, with the right support on board, you will both get the time you need to be together at home, away from the chaos of a hospital environment.

Take care, and if you want to talk any of this through with the nurses on our helpline, the number is 0808 800 4040. Lines are open Mon-Fri, 9-5pm. 

Sarah.

Hello, and thank you for posting.

I am sorry that you and your husband are struggling to find peace as he deteriorates from his cancer diagnosis.

It is difficult for me to say exactly why your husband is having blood transfusions. However, I can say they can be needed when the cancer is advancing, and the bone marrow is involved. I am sorry that the doctors have been unable to sit and talk this through with you. Do ask at the hospital to talk to the nurse in charge of his care, so you feel you understand what is happening.

A hospital-based palliative care team would be a great support and would also help with these types of conversations. They are experienced in discharges for terminally ill patients and good at talking through the Do Not Resuscitate forms (for more information, read DNR forms from the Compassion in Dying website). These teams can also navigate the community systems and ensure that the support is there when someone is dying at home (CRUK).

The Coping with Cancer pages on our website talk through all that is incredibly hard and may be useful.

Hopefully, with the right support on board, you will both get the time you need to be together at home, away from the chaos of a hospital environment.

Take care, and if you want to talk any of this through with the nurses on our helpline, the number is 0808 800 4040. Lines are open Mon-Fri, 9-5pm. 

Sarah.

Hello Sarah 

Thank you for re affirming what I thought might be the case that it is probabley the cancer has it is also in his bones.

Unfortunately the hospital have failed to discharge properly  They have been shockingly disorganised poor communication and I have already complained at ward level and intend to take it further 

My priority is hubby 

Hubby is home now and safe and getting fed and resting ...

The gp is shocked that the hospital did not do their part properly but agrees hubby is better off at home now all the hospital based procedures are done.

I trusted the process the process is broken in our hospital if we never see the inside again it will be too soon