Hello and thank you for posting.

I am sorry that you are going through this, and I can understand why you are reaching out for information. It looks like you have had some good advice and support from other forum users.

When someone is unwell and at home it is not unusual to be referred to a palliative care team (sometimes called Macmillan nurses). They are based in the community and work alongside the GP and the district nurses to provide support and symptom management. It may be worth talking to someone in your hospital team or your GP about a referral if you think this hasn't already happened.

The palliative care team are experts in pain control and would advise and prescribe the medicines as and when needed when someone is at home and terminally ill.

When someone needs care at home sometimes social services are involved, or when very sick packages of care can be organised again by the community teams. Once you have been referred to your local team they will talk through end-of-life care, how it can be managed, and what your wishes are.

There is more information, that may be difficult to read, on our website that may answer some other questions you have. Marie Curie also has information on getting care if useful.

Take care and I hope you get the support you need. If you want to talk things through with the nurses on our helpline on freephone 0808 800 4040, lines are open mon -fri, 9-5.

Sarah.

Hello and thank you for posting.

I am sorry that you are going through this, and I can understand why you are reaching out for information. It looks like you have had some good advice and support from other forum users.

When someone is unwell and at home it is not unusual to be referred to a palliative care team (sometimes called Macmillan nurses). They are based in the community and work alongside the GP and the district nurses to provide support and symptom management. It may be worth talking to someone in your hospital team or your GP about a referral if you think this hasn't already happened.

The palliative care team are experts in pain control and would advise and prescribe the medicines as and when needed when someone is at home and terminally ill.

When someone needs care at home sometimes social services are involved, or when very sick packages of care can be organised again by the community teams. Once you have been referred to your local team they will talk through end-of-life care, how it can be managed, and what your wishes are.

There is more information, that may be difficult to read, on our website that may answer some other questions you have. Marie Curie also has information on getting care if useful.

Take care and I hope you get the support you need. If you want to talk things through with the nurses on our helpline on freephone 0808 800 4040, lines are open mon -fri, 9-5.

Sarah.