Living alone with terminal cancer

Hello 

I have incurable cancer with only months left to live. I know from looking after my husband as he died of metastatic disease that I will need a lot of care and pain control. I managed this for him. What happens to people like myself with no one to care for them? What sort of home care and nursing is provided by the NHS?  

Parents
  • Hello Anne-Mary.  I am also terminal, so I understand your fears.  Do you have a MacMillan nurse that you can talk to about this?  At this stage of your illness, MacMillan should be involved.  My brother-in-law died of cancer a couple of years ago and he received excellent care at home, when he was in the last few months of life.  He was asked if he would like to go to a Hospice but he had already decided that he wanted to die in his own home, and as I said, he was given very good care right up till the end.  

  • No. My only experience of MacMillan nurses was when my husband was dying in 2007. They worked 9-5 and not at week ends so we were left alone as my husband died in the early hours of a Saturday morning. I have been introduced to specialist cancer nurses I don’t know if these are what some people call McMillan nurses but these are hospital based. 

  • Hello again Anne-Mary.  I am surprised that you have not been referred to MacMillan, but here is their phone number and they will be able to advise you on home care. or anything else that you need to know about.   0808-808-0000.   Also, you could ask the specialist nurses at your hospital what will happen to you and explain that you have no-one to take care of you, and you could also speak to your GP about your situation.  Good luck. 

Reply
  • Hello again Anne-Mary.  I am surprised that you have not been referred to MacMillan, but here is their phone number and they will be able to advise you on home care. or anything else that you need to know about.   0808-808-0000.   Also, you could ask the specialist nurses at your hospital what will happen to you and explain that you have no-one to take care of you, and you could also speak to your GP about your situation.  Good luck. 

Children
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