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Trying to reassure husband before radical cystectomy

Daddypoos
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Hi, husband is having radical cystectomy with prostate removal and removal of lymph in area, in 2 days time.   As everyone knows this is the point where we are having a few panic incidents , been doing well reassuring him, howeve he keeps coming back to the fact the nurse told him Friday he will be marked up for both bags in case.   He has now got it into his head that because they use a bit of bowel for the stoma, that he will end up with both bags.

obviously I’m doing my best, however I can’t reassure him, that even if he does they can be reversed.

so my question is, firstly what is the percentage of cases that have to have both bags , secondly how many of these are reversed and after what time period and third question is how many are left permanently with 2 bags.

hope you can help, so I can show him and reassure him.   Thanks for your time 

Parents

  • Hello and thank you for posting.

    I am afraid I do not know the percentage of people who have stomas after a cystectomy, as these aren't the sort of statistics that the Office of National Statistics or Cancer Research UK collects. The specialist team caring for your husband may be able to say what the likelihood of him having stomas is.

    Waiting for surgery, tests, and treatments can be a challenging time. Taking each day, and making sure you have support for yourself too is important.

    It may be helpful to make another post in the 'living with cancer' category to hear from others who have a similar experience.

    Do speak to your husband's hospital team or specialist nurse (CNS) if you need other information about his surgery. I hope it all goes well and do call us if you want to talk things through.  The number to ring is Freephone 0808 800 4040 and the lines are open mon-fri 9-5. 

    Sarah.

Reply

  • Hello and thank you for posting.

    I am afraid I do not know the percentage of people who have stomas after a cystectomy, as these aren't the sort of statistics that the Office of National Statistics or Cancer Research UK collects. The specialist team caring for your husband may be able to say what the likelihood of him having stomas is.

    Waiting for surgery, tests, and treatments can be a challenging time. Taking each day, and making sure you have support for yourself too is important.

    It may be helpful to make another post in the 'living with cancer' category to hear from others who have a similar experience.

    Do speak to your husband's hospital team or specialist nurse (CNS) if you need other information about his surgery. I hope it all goes well and do call us if you want to talk things through.  The number to ring is Freephone 0808 800 4040 and the lines are open mon-fri 9-5. 

    Sarah.

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