Trying to reassure husband before radical cystectomy

Hi, husband is having radical cystectomy with prostate removal and removal of lymph in area, in 2 days time.   As everyone knows this is the point where we are having a few panic incidents , been doing well reassuring him, howeve he keeps coming back to the fact the nurse told him Friday he will be marked up for both bags in case.   He has now got it into his head that because they use a bit of bowel for the stoma, that he will end up with both bags.

obviously I’m doing my best, however I can’t reassure him, that even if he does they can be reversed.

so my question is, firstly what is the percentage of cases that have to have both bags , secondly how many of these are reversed and after what time period and third question is how many are left permanently with 2 bags.

hope you can help, so I can show him and reassure him.   Thanks for your time 

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  • Hello   , I'm just sending you this as the nurses won't be replying until office hours .I'm like you , need to know everything and be prepared for anything . I got a lot of info from a bladder cancer charity .they sent a lot of literature, very helpful .

    My hubby had the same op . for muscle invasive Bladder cancer 18 months ago.  He has a permanent urostomy to substitute for his bladder . He can't really recall much of the stay in hospital,  but was glad to get home. He's 75 and had a previous stroke which had affected his memory and cognitive function,  so it's all down to me to keep asking for answers from staff . 

    My nephew had a colostomy for a perforated bowel 4 years ago,   his cancer was treated with immunotherapy and has gone completely.....he is just going through the preparation for a reversal. 

    It's all scary stuff , with a lot of new things to learn,  but  put your trust in the surgeons , and especially the stoma nurses .This waiting phase is really awful isn't it ? But we're thankful to have got rid of the cancer and the problems it was causing . 

    I hope all goes well on Friday and on into the future, 

    Zillah 

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