Sorry, what i should have also said was that neither my mum or sister were offered immunotherapy, which I think has now been made part of the treatment package for this type, which has now made a difference with curing it.

I really didnt want to scare you more!

Sorry, what i should have also said was that neither my mum or sister were offered immunotherapy, which I think has now been made part of the treatment package for this type, which has now made a difference with curing it.

I really didnt want to scare you more!

Hi Annie, 

Thank you for your reply’s, I appreciate it. I am aware that the cancer is an aggressive one, but I don’t know why when it comes to treatment I can’t do it, I have turned many treatments down due to sever panic attacks. I got diagnosed at the age of 30, having a 3 year old and a 10 year old. Yet I feel so vulnerable as a grown women. It’s so hard and I can’t get out of my own mind. I’m terrified about going for more treatment, but I’m also terrified about getting cancer again. I feel stuck with no end to any of it. I came on here as a last resort, I don’t know why maybe I was looking for positive similar experiences. I really don’t know what to do. The immunotherapy left me bedbound for 2 weeks at a time, it was really hard, I had allergic reactions to the chemos I was on also, so over the last 6 months everything’s built up and I just don’t want to do it anymore. I feel selfish for saying it but the mind is so powerful I can’t get out of the funk I’m in. 

Gen x 

I am so sorry that you are going through this, it is understandable why you feel like this if the treatment has affected you so badly in the past.

Its easy for everyone to tell you the sensible thing to do, but its you that are suffering from the side effects.  If you re-post your message under one of the general headings, you may get someone message you that has actually had this type of cancer that can help you, most people dont answer posts on 'ask the nurse' category (unless they are nurses of course!).

I really hope that you find some way forward with this, 

xxx

In the midst of me crying replying to your comments thinking only about myself I forgot to say I am so very sorry about your mum and sister  truly heartbreaking. Apologises for not considering your feelings aswel as my own. 

thank you for your kind words Annie xxxx

Oh Gen, dont be silly, I am not the one going through this, my feelings are fine.  I lost my sister 15 years ago and have come to terms with it, my mum died 18 months ago and I like to think that they are now together, that really does help the pain. 

I really hope that you find strength today, to decide what to do.

xxx