Hi my daughter just been told she has this cancer but she had her appendix removed 19 years ago . Do you still have your appendix or has it already been removed 

Hello and thanks for posting,

Despite the main body of the appendix itself being removed, there are rare cases of cancer occurring at the appendix 'stump' area. This is where the appendix tissue ends and becomes the bowel. So around the area of the original surgical site. This can happen many years later.

Hopefully you will find out more soon, about a treatment plan for her. 

I hope that this helps,

Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Yours sincerely,

Vanda

Hello and thanks for posting,

Despite the main body of the appendix itself being removed, there are rare cases of cancer occurring at the appendix 'stump' area. This is where the appendix tissue ends and becomes the bowel. So around the area of the original surgical site. This can happen many years later.

Hopefully you will find out more soon, about a treatment plan for her. 

I hope that this helps,

Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Yours sincerely,

Vanda

Hello Vanda, thank you for the extra information, it is interesting that an appendix that has been removed can still be the origin of the cancer.  As for my condition, do you have any information on the comparative efficacy of CRS + HIPEC versus CRS + CHPP  (continuous hyperthermic peritoneal perfusjon)? Thank you for any help or information. 

Hello happyboylee and thank you for your further post,

When I searched for both HIPEC (hyperthermic intraperitoneal chemotherapy) and CHPP (continuous hyperthermic peritoneal perfusion), it looked like these were the same treatment which is given after cytoreductive surgery (CRS). However, I would check this with your specialist to clarify this. Some papers compare CRS/ chemotherapy with CRS / HIPEC but I cannot find any with HIPEC versus CHPP

You may have read this already, on our web page about treatment for pseudomyxoma peritonei (PMP) there is a small section about HIPEC  and surgery.

Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Take care, all the best 

Jemma

Hi Jemma, thank you for your reply,  yes, my searches on the internet suggest that they are the same thing too, but not definitively (??).  I was scheduled for CRS + Hot saline wash, rather than CRS + HIPEC and I am pretty sure that they are different things.  I seem to have assumed that the hot saline wash is CHPP but this appears to be incorrect.  I need to find out what the correct terminology is for the saline wash I guess.

However, this has all become a moot point now,  my operation slot was double booked, I have been bumped and I have now been referred to another hospital where I am now scheduled for CRS + HIPEC a month later than my previous date.  As I am now going to recieve the HIPEC treatment, there is no pressing need to understand the difference anymore. 

Such is my nature, I won't rest until I understand it fully, I have a consultation with the specialist at the new hospital at the end of this month, I will bring it up with him then.  I'll let you know what I find out. 

Thanks again,

Lee