Hi my daughter just been told she has this cancer but she had her appendix removed 19 years ago . Do you still have your appendix or has it already been removed 

I still have my appendix, it is enlarged and inflamed.  A biopsy was taken which showed no cancer cells, but the oncologist said that a biopsy taken by a colonoscopy tube can only take a surface sample, and the cancerous source is likely deeper inside. 

Hi thanks for replying my daughter has had previous very large cysts on ovary and so the ovary tube and cyst was removed then last year very large cyst was removed from within the void that surgery caused and now a year on another large mass has appeared and they now say peritoneal cancer I’m just hoping they got wrong diagnosis we waiting on biopsies at this time 

Hi, I am no expert on this, I am also a male so I haven’t been reading anything related to ovarian cancers.   I have been diagnosed with a weird kind of half cancer, where cancer from another location has entered the peritoneal cavity and is causing the peritoneum to produce a thick mucus.  Does your daughter have a bloated tummy due to a build up of mucus ? This seems to be a less aggressive type of cancer and is called PMP, (pseudomyxoma peritonei).  I have been reading a lot about this condition but I know very little about other similar conditions.  There are 2 main categories of peritoneal cancers, primary and secondary.  Primary being where the peritoneum itself produces cancer and secondary where cancer from elsewhere settles in the peritoneum.  I believe the secondary type has a better prognosis generally, but everything I read says there are no typical cases with these kinds of cancers and everyone is on a different path.  My best advice to you is to do what you are doing, don’t sit around waiting and hoping for a misdiagnosis, get active on these kind of forums and read as much as you can.    A good source of support, particularly if you are in the UK and end up referred to a specialist hospital in Hampshire or Manchester, is the PMP forum on Facebook.  They can give advice on anything from good questions to ask, to good places to stay nearby, to the best way to get out of bed after major abdominal surgery.  It’s very helpful just to have someone to talk to that understands what you are going through. I find that not that many people are active on this site but on the Facebook forum you will get lots of quick replies to anything you post.  I wish your daughter a good recovery and good luck with your research. 

Hi, I am no expert on this, I am also a male so I haven’t been reading anything related to ovarian cancers.   I have been diagnosed with a weird kind of half cancer, where cancer from another location has entered the peritoneal cavity and is causing the peritoneum to produce a thick mucus.  Does your daughter have a bloated tummy due to a build up of mucus ? This seems to be a less aggressive type of cancer and is called PMP, (pseudomyxoma peritonei).  I have been reading a lot about this condition but I know very little about other similar conditions.  There are 2 main categories of peritoneal cancers, primary and secondary.  Primary being where the peritoneum itself produces cancer and secondary where cancer from elsewhere settles in the peritoneum.  I believe the secondary type has a better prognosis generally, but everything I read says there are no typical cases with these kinds of cancers and everyone is on a different path.  My best advice to you is to do what you are doing, don’t sit around waiting and hoping for a misdiagnosis, get active on these kind of forums and read as much as you can.    A good source of support, particularly if you are in the UK and end up referred to a specialist hospital in Hampshire or Manchester, is the PMP forum on Facebook.  They can give advice on anything from good questions to ask, to good places to stay nearby, to the best way to get out of bed after major abdominal surgery.  It’s very helpful just to have someone to talk to that understands what you are going through. I find that not that many people are active on this site but on the Facebook forum you will get lots of quick replies to anything you post.  I wish your daughter a good recovery and good luck with your research.