Hello Lee,

Thank you for your post.

I am sorry to hear about your diagnosis and I can appreciate you want to know more about it.

Appendiceal mucinous neoplasms are a rare type of type of tumour that depending on the level of abnormality (also referred to as the grade) can be low grade or high grade.  They account for 0.4% to 1% of all tumours found.

Because they are rare there is little data collected about survival rates however, there have been a number of medical papers written by specialist doctors so there is a consensus about how to treat it. 

If it is found in the peritoneum then surgery may be recommended to remove the peritoneum ( this lines the abdomen). 

I am afraid that we cannot tell you exactly what will happen as this type of surgery will vary depending on the extent of surgery needed.  Only the surgeon planning your surgery can tell you more about this.

I realise that this must be quite a shock for you, If you can you do need to talk to the hospital team again about your situation. And perhaps asking them what would happen if you did not have surgery. 

Sometimes people ask for a second opinion but that does not always change a treatment plan but might give some reassurance about the treatment offered. 

You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Take care,

Caroline