I just had my first appointment with the oncologist and hopefully my last with her as she was horrific, cold totally lacking empathy and not a sympathic bone in her body.

The cold cap has never been mentioned to me by any of the Bzc nurses or the oncologist even though I know the local hospital was gifted one and had it still in 2022.

All Ive kept being told is I will lose my hair.

I've bought loads of wigs from shein since November when I was first told chemo was a possibility. I was told by the nurse on Tuesday that they will supply a wig and names of salons who can style it for me. (I'm in Scotland) 

Please keep us updated on how your chemo goes x

I'm so sorry to hear this.

My breast care nurse wasn't compassionate.  When she told me in January that I might have to have chemotherapy, I burst into tears. I was on my own that day. When I cried, she got up and walked me out the the door. 

So I completely understand how you feel , I really do. Could you speak to the Oncologist receptionist and ask if you could have the cold cap? If that's what you would like?

Luckily,  I only get calls from her now. The last call was from her colleague as she was absent and she was so much better. Sympathy and didn't rush me.

My Oncologist was amazing and the nurse who accompanied him was amazing.  

I have a extravasation on my hand from when the 1st chemotherapy.  So now I have damaged tissue abs unable to use my right hand,  which is my dominant hand.

Hospital reviewed my hand on Monday when I went for my chemotherapy and I'm not happy. 

I was listed from pillar to post and now I'm having sleepless nights in agony. 

I'm going to ring my brwast care nurse for support and advice because no-one wants to take responsibility. 

Thank you I shall have a look x

That's shocking, as if chemo isn't bad enough. I hope you get it sorted sending you lots of love ️ 

Had my appointment with my NEW oncologist and a total difference from that awful one I saw.

I will be getting 1 treatment of chemotherapy a week, with 3wks off, for 12wks.

Then 1 a week for 9 wks.

They are getting things started. Had my letter through for making an appointment to get a wig fitted but I don't think I will do it. I think I will be too emotional xx

Thank you 

I'm glad you have had a better experience with your new Oncologist. 

I know what you mean.  It is emotional.  Is there someone you could take with you for emotional support? Xx

I'm pleased that things are going in the right direction for you. At least you now know what you are dealing with in terms of treatment. 

My next chemotherapy is tomorrow. I know what to expect in terms of side effects.  I think once you have had a couple of treatments,  you will be prepared for the next one , emotionally more than anything xx

I'm on morphine now but that's only because I've put a complaint in.  Prior to this, no one wanted to take responsibility of prescribing me medication.  Got an xray today because no movement in my right hand. 

My sister, but I'm still undecided about making the appointment. 

First chemo tomorrow, got fitted for the cold cap on friday when i was there for bloods etc.

At least after tomorrow I will know how everything goes.

Sadly my sister is away on holiday as we never thought the appointment for chemo would come through so quickly so I'm on my own, a friend is dropping me off and picking me up.

Got a heart scan at the end of May.

How are you doing regards side effects?

The morphine... that's shocking, especially in this day and age!

Hopefully they can sort out your hand, that's scary stuff xx

Thank you xx

How are you doing?

I had my first chemo on Wednesday and used the cold cap. Though i wake up expecting to find my hair on my pillow!

I feel constantly nauseous and very tired but that's about it. I've slept more than anything else in the two days since my first chemo.

They couldn't get the line in on my hand so had to use the hand of the side I had the two lumpectomies, besides that and the first 10 mins of pain with the cap, it was OK.

Hope your doing OK xx

Glad the cold cap went well for you. I've noticed after about a week after chemo,  the nausea stops and you're feeling better. 

That's a shame that you had to have the 1st chemotherapy without anyone there. My last two was by myself. 

I hope you have more energy as the week goes on xx

The pain in my hand is unbearable.  Saw a tissue Viability Nurse on Monday when I had my chemotherapy and she gave me cream to  speed up the healing process.  She said it will get worse before it gets better. She was right, my hand looks awful and in constant pain.  I just don't want to become reliant on the Morphine xx

Glad the cold cap went well for you. I've noticed after about a week after chemo,  the nausea stops and you're feeling better. 

That's a shame that you had to have the 1st chemotherapy without anyone there. My last two was by myself. 

I hope you have more energy as the week goes on xx

The pain in my hand is unbearable.  Saw a tissue Viability Nurse on Monday when I had my chemotherapy and she gave me cream to  speed up the healing process.  She said it will get worse before it gets better. She was right, my hand looks awful and in constant pain.  I just don't want to become reliant on the Morphine xx

I've been through the ringer these past few days since chemo, only getting up because my wee dog needs out. It's been like a coinstant hangover, haven't eaten anything since Thursday no energy once my wee dog is sorted, the joys of living alone.

I've been up today for the longest since Thursday, I'm hoping I'm over the worst be because I can't cope with feeling like this for a week after chemo.

Your poor hand, putting up with chemo plus that, just awful. I hope it won't take too long before it's on the mend.

Xx

Big hugs to you xx

I'm sorry you're going through this on your 1st one.  Don't feel like you're alone, I'm here anytime you wish to have a chat. I mean this too xx

I'm pleased that you managed to get up for longer. Hopefully,  this is worst bit for you now and there's a bit of normality for you xx

This has got to be my worst session of chemotherapy and the dosage has been reduced too. I've decided that I'm not going to have anymore.  I've done half, I just can't do anymore. I finally ate yesterday  only to throw it all up this morning. 

I'm fed up with the hand situation.  I've had enough now xx

Hi Anjaya, sorry to hear that you have being going through such a tough time on chemo. Was your next chemo changing over to a different one. One nurse told me that some people who have a rough time on one chemo, have a better time on a different one. If yours is due to change, would it be worth trying one to see how it goes? Hope your hand starts to improve, it sounds so painful. Xx

Oh Anjaya, I totally understand how you feel, I was contemplating the possibility of not going through with any more if it was going to be like this. 

Have you told them what you have decided? Will what you have had be enough to keep you safe?

You have been through so much with chemo and the mess they made of your hand, I can understand how you don't want to continue on with it.

But there are tablets they can give you for the sickness etc, until they find the ones that work for you.

It's an awful situation to be in, having to have something that makes us so unwell so that we will be well!

Xx