Hi Anjaya,

Just came across your post. Wondered how you got on with the prosigna test? I'm currently waiting for my results, i'm 43, so pre menopausal, had one lymph node with cancer. ER8PR8 HER2 Negative...I fit into that strange grey area where they're not sure how much i'll benefit from chemo but i'm worried there's not enough evidence on the prosigna test with pre menopausal women! Just wondered how you were getting on what your score was and what you ended up doing with regards to Chemo. Part of me wants to avoid chemo and the other part wants to throw everything at this and go buckles and braces! the waiting is so hard. Hope you're doing ok! x

Hi, I had my results on Friday and unfortunately I scored 64 which is classed as a high risk of reoccurrence if I didn't have chemotherapy. 

I'm now going to have 6 rounds of chemotherapy every three weeks.  I have to gave blood tests two days before each one. 

My 1st chemo is on the 21st March and I have an appointment at the hospital on the 12th match to go through everything with me. The nurse has referred me to the wig specialist and I should hear from them this week.

I was adamant I wouldn't have chemotherapy. I was keep saying to myself that I would refuse it but when I saw the Oncologist,  he gave me percentages of this and that and if I refuse and it comes back, then it will be stage 4 cancer and not curable. The stats he gave me was the minimum so the risk could in fact be aloy higher.

Based on this, I'm having chemo followed by 9 sessions of radiotherapy followed by hormone tablets xx

The wait is hard. They will give you all the stats, percentages etc if you do require it. The ProSigna test is very accurate.  I'm pre menstrual too. 

I've been crying since Friday and still trying to take it all in. They wanted me to start next week but I told them I want my wig first x

My lymph nodes were clear and stage 2.

How long have you been waiting and have you had an appointment come through?xx

Big hugs to you xx

Oh Anjala, i'm so sorry you've had to go through all of this and so sorry to hear you've been so upset. 

Try and look at the positives, that chemo is really going to help you and help reduce the risk of this coming back. It's going to be a good thing and will stop this horrid disease returningk. You will get through the chemo...take one day at a time and you'll be absolutely fine...and it will all be totally worth it. You have so many treatment options, chemo, radio and hormone that it's all going to be doing its job to stop it coming back...and we have to look at ourselves as the lucky ones that we do have options and treatments available. You'll be ok. I'm sure you have lots of friends and family to lean on...and please do lean on them and make sure you look after yourself. Your mental well being is just as important as your physical health..be kind to yourself.

I am stage 2, one lymph node involvement. Really hoping to get my results back this week...no appt or phonecall yet hoping by Friday i'll have a plan in place. It's the waiting which is hard, i kind of just want to know what treatment i'm going to be having...but hopefuly not too much longer....

I'm here if you need to offload or chat....please don't be sad. It's a positive that they can offer you this treatment and that you will benefit from it. Good luck and hope you're out the other side of chemo before you know it.

big hugs back x

Thank you for your kind words.

You're right, we are lucky that we have all these options and only stage two cancer.

Long term, it will help reduce the risk of it returning abd this time next year it be all over xx

Same to you, if you ever want to talk please let me know.

If you haven't had the appointment within 3 weeks,  I'd chase this up with your breast care nurse as it shouldn't take longer than three weeks.  I had to chase mine up. Turns out the secretary forgot to send me my appointment xx

Thank you for your kind words.

You're right, we are lucky that we have all these options and only stage two cancer.

Long term, it will help reduce the risk of it returning abd this time next year it be all over xx

Same to you, if you ever want to talk please let me know.

If you haven't had the appointment within 3 weeks,  I'd chase this up with your breast care nurse as it shouldn't take longer than three weeks.  I had to chase mine up. Turns out the secretary forgot to send me my appointment xx

Exactly - and yes here's to next year!! Good luck with all the treament I hope the side effects are minimal and you sail through. One day at a time! You've got this!

All the best, take care xx

Thank you so much ️.  Hope it all goes well for you too. Let me know how you get on with your results xx