Lost

Hi I'm a bit lost tbh so hoping posting on here will help clear what's on my mind. 
i was diagnosed with TNBC June 2021. I've completed  chemo, a lumpectomy and reexcision and yesterday was talking to my consultant about my upcoming radiotherapy sessions, which are being given as a precaution as they have managed to remove all the tumour. However, as I only had a partial response to chemo before surgery she said there's a  high risk of my cancer returning. 
It's thrown me for 6 and I can't stop crying. I understand that TNBC has a higher recurrence rate but to also be told this because of the chemo has just more or less devastated me. I should be happy that I'm about to start another part of my journey, radiotherapy, but instead cant get the words high risk out of my head and feel like  I've no hope, like it's definitely going to come back.  I just wish I had a bit more to cling onto. My husband and friends have told me that I've beat this at the moment so should focus on that and concentrate on the radiotherapy but it's so easier said than done.  

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  • Hello amazingafterall and thanks for posting, 

    I am not sure exactly what she meant, but I think these sort of things are relative. Your consultant may be thinking that because the cancer didn't completely respond your risk of recurrence is higher than if it had, but this doesn't mean it is a given that the cancer will come back - don't underestimate the value of surgery and radiotherapy which are important components of treatment.   

    Unfortunately as Jolamine remarked, the ability to come back after treatment is a hallmark of cancer that there is no getting away from, and most people find this understandably difficult to cope with. I don't think you should berate yourself for not feeling happy to be starting radiotherapy, adjusting to a new normal with seemingly less certainty takes time and sometimes the emotional impact of everything that has happened rears up and can be overwhelming. 

    It might be an idea to have a chat with your breast care nurse and see what they say. 

    I expect you have already come across them, but if not, it might be worth knowing about the charity Breast Cancer Now which provides support and information. See what they offer here. 

    If you want to talk anything over please do give us a ring. We are around weekdays 9-5 and the number to call is Freephone 0808 800 4040. 

    Best wishes, 

    Julia

  • Thank you Julia, I think I need to talk more about how I am feeling tbh. I've spent the last 7 months focused on getting through chemo then surgery and after being told it had all been removed last week I was looking forward to my next and hopefully final step of radiotherapy. I think perhaps I'm just overwhelmed again and hearing the chemo had such a little effect kinda upset me though the surgery was a success so that I'm grateful for. I suppose I have to try and remember that each step is a way forward  and hopefully keep that in mind on my bad days. Thanks again xx

  •  

    Hi amazingafterall,

    I know that this comes as a real slap in the face when you've complied with all your chemo and were naturally looking forward to good news. Don't lose hope. Brighter days are around the corner.

    It really does help to talk about how you feel. There's no point in bottling it up. Do you think that talking to a counsellor, who really knows how you are feeling might help? Sometimes it is easier to talk to an experienced stranger, than to listen to the well-meant platitudes of friends and family. There are many cancer charities who offer this service if you think that it might help.

    Kind regards,

    Jolamine xx

Reply
  •  

    Hi amazingafterall,

    I know that this comes as a real slap in the face when you've complied with all your chemo and were naturally looking forward to good news. Don't lose hope. Brighter days are around the corner.

    It really does help to talk about how you feel. There's no point in bottling it up. Do you think that talking to a counsellor, who really knows how you are feeling might help? Sometimes it is easier to talk to an experienced stranger, than to listen to the well-meant platitudes of friends and family. There are many cancer charities who offer this service if you think that it might help.

    Kind regards,

    Jolamine xx

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