Lost

Hi I'm a bit lost tbh so hoping posting on here will help clear what's on my mind. 
i was diagnosed with TNBC June 2021. I've completed  chemo, a lumpectomy and reexcision and yesterday was talking to my consultant about my upcoming radiotherapy sessions, which are being given as a precaution as they have managed to remove all the tumour. However, as I only had a partial response to chemo before surgery she said there's a  high risk of my cancer returning. 
It's thrown me for 6 and I can't stop crying. I understand that TNBC has a higher recurrence rate but to also be told this because of the chemo has just more or less devastated me. I should be happy that I'm about to start another part of my journey, radiotherapy, but instead cant get the words high risk out of my head and feel like  I've no hope, like it's definitely going to come back.  I just wish I had a bit more to cling onto. My husband and friends have told me that I've beat this at the moment so should focus on that and concentrate on the radiotherapy but it's so easier said than done.  

Parents
  •  

    Hi Amazingafterall,

    I can fully understand your anxiety. Fear of recurrence is something that anyone with a cancer diagnosis has to learn to live with. I have had 2 bouts of breast cancer in the past 12 years and, having already experienced a second bout, I live with this fear every day. It is difficult not to let this become all consuming, but life is too short to let these thoughts take over your life.

    It is hard to accept that you are fortunate to be able to start another part of your journey when you are feeling as you are at the moment. Once you embark on your radiotherapy, you will probably find that you will gradually begin to feel a little more positive about things. We all talk about the cancer rollercoaster. Sadly, this is what you are experiencing at the moment.

    It is always disappointing when a cancer treatment doesn't work as well as it should. This happened with my first cancer too. Fortunately, when I had the second bout a year later, I had a double mastectomy and changed treatment. Since then, I have had 11 years in which I have led a busy and fulfilling life and, I hope to continue for many years to come. Try to look at the positives here - this is still treatable and, that's the main factor.

    I sincerely hope that your radiotherapy works better. Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

Reply
  •  

    Hi Amazingafterall,

    I can fully understand your anxiety. Fear of recurrence is something that anyone with a cancer diagnosis has to learn to live with. I have had 2 bouts of breast cancer in the past 12 years and, having already experienced a second bout, I live with this fear every day. It is difficult not to let this become all consuming, but life is too short to let these thoughts take over your life.

    It is hard to accept that you are fortunate to be able to start another part of your journey when you are feeling as you are at the moment. Once you embark on your radiotherapy, you will probably find that you will gradually begin to feel a little more positive about things. We all talk about the cancer rollercoaster. Sadly, this is what you are experiencing at the moment.

    It is always disappointing when a cancer treatment doesn't work as well as it should. This happened with my first cancer too. Fortunately, when I had the second bout a year later, I had a double mastectomy and changed treatment. Since then, I have had 11 years in which I have led a busy and fulfilling life and, I hope to continue for many years to come. Try to look at the positives here - this is still treatable and, that's the main factor.

    I sincerely hope that your radiotherapy works better. Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

Children
  • Thank you so much for your kind words, I truly appreciate you taking the time to reply. I'm happy for you to have been living a fulfilling life after having to cope with two bouts of breast cancer. 
    I think I always assume if there is a recurrence then it's not good news   As always I'm jumping ahead of myself and like you say I'm on that rollercoaster at the moment and it's not a fun part at all. My main focus has to be radiotherapy and then deal with what the future holds, which no one knows. Thanks again xx