Very worried about symptoms of pancreatic cancer

I've never posted before... A bit about me: Female, 44, overweight with long term hyperthyroidism (strange, I know, as normally people who are hyper are underweight) I had an emergency laparotomy 6 years ago due to a perforated bowel after a car accident. I've had IBS symptoms since being a teen.

I've had health anxiety for as long as I can remember. My mum had HA. However, around 3 years ago, I stepped away from Google and tried to rationalise my worries as much as possible. 

Then, about 12-18 months ago, it all started to go wrong...I started with a 'popping' sensation in my left abdomen. This happened when I bent over, moved suddenly, applied pressure to my abdomen. I could feel movement but I couldn't feel a mass but I wasn't trying to. There was definitely something, as when I pressed from the left side, I could feel internal movement. I could feel a weird sensation when laying in bed. I tried rationalising this as 'it could be scar tissue/adhesions' from my bowel surgery.


I've basically buried my head in the sand and ignored it, hoping that it would go away. It hasn't. At one point, after losing a lot of weight (intentionally) it was popping about up to 10 x a day. I wasn't in any pain. I also convinced myself that if something is moving/palpable it's not an issue.


Fast forward to early October and I was randomly feeling along my collarbone and I discovered a small lump along the left collarbone. I can honestly hold my hands up and say, I've never been one to feel for lymph nodes so I didn't know what it was. It's small (probably 0.5cm) - not overly hard and seems to change in size a bit. I've no idea how long it has been there. I wondered if it might be a lipoma (note, positive thinking!) so I Googled (bad move) and discovered that it is probably my supraclavicular lymph node and that these are linked to problems in the abdomen. I had a panic and filled in an E-Consult and I was called to attend a follow up appointment in under a week. 


The GP appointment was great but, due to COVID and hardly any other patients, so thorough. I was able to talk about every little niggle I was suffering with - pain shooting behind nasal passage, sciatica type pain plus the big hitters - the movement in the abdomen and the lump on my collarbone. I was in for 40 mins! The GP ordered bloods and an ultrasound. My bloods have come back all normal but the ultrasound has been an absolute pain - I haven't had it yet despite having BUPA. The hospital couldn't find my referral and then both my twins took it in turns to get COVID and I've been told that I must go 10 days from the date they stop quarantine to have my ultrasound so I'm booked in for this next Friday.

In the last two weeks, in particular, it has completely ramped up in terms of symptoms and also my anxiety, I've been a complete wreck with the following symptoms:

- Pain when I lay down in left abdomen

- Pressure under left rib when laying down

- Pain at the top of my stomach, which is happening a lot of the time now

- Pain in the lymph node

- Middle back pain

- Nausea 

- Noisy stomach (?) after eating or drink

- No appetite

- IBS symptoms as always but I've recently had a couple of lighter coloured, floating poos

- and the worst of all - I have pressed deeply for the first time where the left sided pain is and I've now felt a mass. 

 

I'm absolutely distraught. My husband is trying to comfort me and bolster me by telling me the stats for my age group but I just think that it is a foregone conclusion. 

Thank you if you've read to this point - sorry I've gone on a bit! 
 

  • Updating this to say that I'm still in the same situation with the pain in left abdomen and the popping/moving sensation on my left side. My pain has become more regular, as in every day but hasn't been as severe as it was when I felt I needed to attend a&e. The sensation of a marble being under my left rib when laying on that side is every night. The node (if that's what it is) on my left collarbone is small and like a lentil but the whole area looks swollen and like I've lost definition of my left collarbone bone.

    I'm very scared and struggling to sleep and feel consumed with worries about it being pancreatic cancer. Is anyone in the same situation - worried about pc or having tests? 
     

    I'm seeing a specialist on Wednesday. 
     

    Take care all. X

     

  • Hi SunshineH. I remember you from another thread I started. I'm so sorry to hear your symptoms are getting worse. I hope the specialist can give you some answers ans reassurance on Wednesday.

    im a nervous wreck now about bowel cancer. I have terrible wind indigestion and changes to stool. At an ovarian scan they said I was full of bowel gas so get a colonoscopy. I'm terrified now. Can't eat or slee and when I do I'm awoken with gas pains ans wind. It's so so awful. 
    Im seeing a gastroenterologist tomorrow ans I'm a wreck. 
    thinking of you x 

  • Hi Hoping1977,

     

    Thank you for your reply. It's so horrible. I'm sorry that one worry (about ovarian cancer) has eased but another worry about bowel cancer has reared its ugly head. There could be all sorts of reasons for excessive bowel gas, which aren't sinister. One being anxiety, as we breathe in quicker and more frequently, which in turn fills us up with gas. The speckle of blood you've seen could be cause by irritation to the area. I hope that your appointment tomorrow also gives you some answers. 

     

    As for me, I'm so worried and really hope that mine turns out to be health anxiety but it seems so different to any previous worries because, instead of vague symptoms, which I am (in better moments) able to recognise as could be being caused by anxiety, I am feeling very real physical sensations such as lumps and bumps and I can physically see the changes to my collar bone.

    Previously, when I've looked on Google, I've found a symptom of an illness and then gone onto develop it (what a coincidence!) but this time, I've found symptoms and realised that I've been having them for 6+ months and not paid any attention to them...this is why I'm unravelling.

    I'm crying a lot and not sleeping very well at all. So, 'a wreck' is a good word to describe me too!

    Thinking of you too. x

     

     

     

     

  • Saw the gastroenterologist today, who was great. It was a relief to be able to talk through all of my symptoms and worries. He said that he doesn't think I have pancreatic cancer but also wants to investigate further. He is booking an MRI scan for me, which I'm hoping will be next week with results the week after. 

    I'm hoping that the consultant is right. 

  • My MRI is booked for this Thursday afternoon. I'm finding it really difficult and feel constantly anxious and teary.
     

    These feelings have been amplified because my husband has tested positive for Covid so I'm having to isolate from him to try avoid catching it so my MRI can go ahead. He has had symptoms since last Wednesday and so far I'm still negative so fingers crossed it stays that way.

  • I received the appointment letter today. Although my consultant said he didn’t think I have pancreatic cancer, he’s requested an MRCP with the pancreas protocol and contrast.


    Isn't MRCP is used after a cancer diagnosis for staging pancreatic cancer? 

    Utterly freaked out. 

  • Hi SunshineH

    Did you ever get a diagnosis?

    Having the same symptoms myself, waiting for ct and endoscopy results, my anxiety is off the scale.

    So scared.

  • Hi deeD

     I had this last year and now being monitored.

    It's very scary isn't it.

    I wish you well 

  • Hi DeeD, 

    It was all clear. I ended up having an MRI with contrast and when that came back ok all of my abdominal symptoms went away. The little node or fat lump is still on my collarbone and has remained unchanged. It was all health anxiety - a year later, I'm now in the midst of another health worry but hopefully that will be anxiety too. 

     

    Sending you best wishes. Have you had any results back?

     

    Helen