The collar bone node aside, you do realise hyperthyroidism can cause every one of your issues?

My aunty has that (thyroid issues run in my family in the females) and has had most of those symptoms for decades.

Also, if you were at that symptomatic stage and PC was involved, and you were over a year out from those starting, it's fairly safe to say you'd not be sat here without having received no treatment. Or if you were, you wouldn't be going about your daily life to the extent you are. 

Floating pale stools, whilst a classic PC symptom, can be symptoms of other issues.  Such as hyperthyroidism, food intolerances, gall bladder and anxiety (food moves too fast through your small bowels). Assume it's your thyroid/anxiety until proven otherwise i say.  I'm no doctor, but I have a close family member that has suffered for decades from an over active thyroid. GI issues are a classic symptom.

Also, when you lose weight, feeling normal structures becomes more common. Less body fat.

Thank you for your reply ProfBaw - I really appreciate it.

I agree with what you are saying about the hyperthyroidism, however this is very different to any of the GI/IBS type symptoms I have had in the time I've known I was hyper (12+ years). 

Unfortunately, last night I was in very bad pain with pain radiating from the site of the abdominal mass through to my back and I felt very ill. I thought that I might have to present at A&E. Things have calmed a little this morning but then I have eaten a small amount and I can feel the pain increasing again now.

I know that many people think that PC is a relatively short illness but that is what people know of from the time of diagnosis...PC can be symptomless or intermittent symptoms for many years. I have had this moving/popping so the mass for over a year without any other symtoms such as abdominal and back pain, node etc. until now. 

If what I was feeling was a normal bodily structure it wouldn't have resulted in such terrible pain, I don't think. I just wish I had seen the GP when I first felt the movement in my abdomen all that time ago.

Thank you so much for your reply, though. 

I'm the same as you ie my extreme health anxiety is debilitating. I'm under investigation ie pancreatic ducts 

Hi Fallmare,

Thank you for your reply. I'm sorry to hear that you're under investigation (and have health anxiety) too. What are your next steps?

I'm struggling massively. I've been told health anxiety is about the need for control and I recognise that I'm posting on this forum because I'm trying to gain a sense of control/get answers.

H

Hi H

I have sent you a friend request so we can chat privately. 

I've accepted.

On Sunday night my pain was so bad that I went to A&E and ended up at the GP out of hours surgery and then back in A&E again! The GP I saw couldn't feel the mass that I thought I'd felt and also couldn't feel any enlarged lymph node on my collarbone. I can still definitely feel a little bump along my collar bone (as could the first GP) but it's definitely gone down somewhat. 

She ended up suspecting that I may have had an entirely different condition (Abdominal Aortic Aneyrusm) and so I had to be assessed by a surgeon before they decided it wasn't that and I was sent on my way! I'm taking some positivity from her not finding those things but I'm still very worried. She did say that she wouldn't be able to feel a tumour on the pancreas due to its deep location so I've still got a question mark over this. 

Last night, I was really bad again. The abdominal pains really ramp up at night time and the pain and strange sensation under my left rib was really very noticeable. It feels like something is pressing on my rib from the inside, like a marble stuck there. I also felt like I was struggling to breathe but that was maybe anxiety. 

I'm updating my symptoms to try help me to think positively. I have my ultrasound this Friday and then a follow up GP appointment next Tuesday. 

+ Supraclavicular lymph node is fluctuating and, at some points, not there at all.
+ No pain in the lymph node.
+ No sciatica.
+ No head pain.
+ No pale bowel movements.
+ I feel like I can swallow and breathe properly again.

- Popping/moving internal sensation is back (I have lost weight due to not eating properly so whatever that may have been held in place by internal fat may now be allowed to move).
- Pain after eating, which is in left abdomen and sometimes at the top of my stomach.
- Pain a lot of the time but increases at night particularly in left abdomen.
- Pressure under left rib (like a marble) in bed at night.
- Back pain is limited to left side in line with the left abdomen pain.
- IBS type bowel movements have continued.

I then had the most awful night of pain imaginable, last night. However, I had had a couple of glasses of wine last night, as my husband was away with work and I was nervous about going to bed feeling anxious and alone so I thought I would take the edge of it. I thought wrong, as the pain was awful and all over my upper abdomen including into the right side. 
 

I'm really not sure about the lump/lymph node now. The first GP felt it when I went and said that it didn't feel particularly like a lymph node, as it wasn't hard and pea-like. It has been up and down and sometimes I can't find it. This morning I can find it, as it is back up again. It's difficult to tell what texture it is, as it rolls around a lot and I'm trying to grasp it between my fingers. On the odd time that I manage to get it, it does feel a bit hard but not really hard! The second GP in Out of Hrs said that she couldn't feel anything but that was at night time. I find that it is more prominent on a morning and shrinks back as the day goes on.

I'm trying very much to focus on my work and also getting ready for Christmas. It is so tricky because I start out positive and then feel in pain and my anxiety comes flooding back in. I normally absolutely love Christmas but I just haven't got the energy or enthusiasm for it and then I get this overwhelming feeling of worry that I won't be here next Christmas. I'm turning off Christmas songs on the radio because they're so nostalgic and sentimental, which sets me off again. 

My question (and also my husband's question) is will the ultrasound put me at ease if nothing is found? I'm not sure if it will and so I know that I have well and truly spiralled. I've done way too much reading about PC and finding out that nothing showing blood tests and ultrasounds can be meaningless and that it is a CT scan with the pancreas protocol which is needed. Ugh. 

Hi 

I wondered how you were... 

Good luck tomorrow 

I'll private message. 

I'm not sure how to add to this post without replying to someone (if that's possible). 

Today is a really bad day for me. I thought that the pain in the abdomen had improved somewhat but last night and today it has been worse than ever. It is awful when I lay down in particular but today has been there all day. 

My lump/bump/node is small but more pea-like and I think it feels harder, which is really worrying me.

I'm very concerned that I have a tumour on the tail of my pancreas and this is why I'm only getting symptoms, such as pain, now. 

So far, my basic bloods (including liver function) were normal and the ultrasound hasn't picked up anything which on one hand feels like it should be reassuring but I'm aware that sometimes pancreatic cancer isn't picked up in blood tests and ultrasound alone. 

I've been back to the GP and they want me to see a General Surgeon now due to my past history with my car accident/perforated bowel. This appointment is on the 6th. Hopefully I'll get a CT shortly after that.