Small intestine tumour

Hello,

So Worried & trying to find out more about Cancer of Small Intestine.

I Have recently had an urgent CT scan with contrast & Colonoscopy(2 Week rule) due to abnormal/high  FIT test & Fecal Calprotectin results. Was called into hospital within days to see Consultant regarding my results. Was shocked to be told a 7cm tumour(Small Intestine)  has been spotted on CT scan & I need major surgery within days to remove it(and part of intestine).I'm in complete shock & very worried, I hadn't been feeling too good for a little while with tummy ache & subtle bowel changes, also anaemic, but I never in a million years expected this. I'm trying to see if anybody else has gone through a similar situation. I'm worried about the surgery which the Consultant has stressed is a serious operation. Feel so worried & in a daze with it all. 
 

Thank you N

  • Hi,I am also going through similar had tests fir acid reflux then an uktrasound, were they found,a 10 cm mass in small bowel and attached to mesentry c blood vessels I amc63 with heart problems and having my op nc25th nov.They have booked me an icu bed  ,I haven't had,a,biopsy because they think it's a ,qmgist tunour which cud seed.. .Terrified of outcome..I hope you get Yr treatment soon.much love 

  • Hi Bluejue,

    Thank you so much for the message.

    I truly hope everything turns out positive for you & you make a speedy recovery.I've also got my Op on Nov 25th, I'm trying to stay focused, I'm just so worried. I've read that tumours/Cancer of the Small Intestine/Bowel are very rare. I have been trying to find more information these past few days & I'm trying to find others who are going through a similar situation or who have been through it. Also, trying to speak to Specialist Bowel Cancer Hospital's to gain more info & understanding.

    I truly wish you all the very best & a good outcome, speedy recovery from the Op.

    Take care & much Love from N.

     

  • Wat a coincidences th november,let hope it is good for us both.i have read a lot, and the csn be a gist, gastric stroma,tumour, you mite want to look that up.here is hoping wat we have,a benign.i wish you all the best, let's keep in touch.xx

  • Hi there!

    I recently had a right hemicolectomy as had been experiencing quite bad pain at my right hand side. My CT Scan showed part of my intestine was going inside another bit and the reason this had happened was because of a tumour. The surgery was done keyhole with an incision down the centre of my tummy too and recovery... the first week it was sore but it did heal very quickly. I am nearly 8 weeks post op and able to go for  short runs etc and run after my little girl. I think I was very lucky as the tumour was removed, it hadn't spread and lymph nodes were all clear so now I am being reviewed every 6 months for the next while. It is terrifying receiving the news. I was so scared and googling like mad but it made me feel worse as there were so many bad stories out there so I made myself only read positive stories and only read information on bowel cancer UK website, cancer research website and macmillan and that way I felt so informed. Sending you gentle hugs and hope you are OK xx

  • Hello bluejue, 

    Thanks so much for the reply
    Yes, what a coincidence both Ops on 25th Nov & here's to a good op & speedy recovery for us both
    I'm so glad I've seen your replies, because so far I'm pretty much in the dark &  I've been told nothing about my tumour by my Consultant. Other than it's a tumour Thank you for mentioning the gist gastric stroma tumour etc, I can't believe my Consultant has explained more about such possibilities. I think he has almost assumed it to be a cancerous tumour. I'm going to definitely look up what you have mentioned, Thank you so much for the info.

    Yes, absolutely, please let's keep in touch
    I'm new to this forum, so I'm not 100% sure how it works, but, please keep in touch & here's to a positive outcome for us both next week & a speedy recovery for us both Xx 

  • Hello, 

    Its reassuring to read your post, about your own personal experience of the bowel tumour. Thank you so much for sharing.  Your recovery sounds incredible
    I've found It's a "Steep learning Curve" being told I have a tumour, trying to gain  as much information I can before next weeks op. 
    The Consultant seems very  nice, but I've only met him once & I have so many questions to ask before the op. I hope you don't mind me asking, but, did your Consultant stress how the Op was a major op & the risks, as well as the chance of not making it through? I understand, the Surgeon's have to stress the risks, but, I was quite frustrated as I'm trying to focus of keeping strong & positive.

     

    Thank you for your post, it's so helpful to get an insight from others who have been through something so similar Xx

     

  • Hiya.  Yeah, not always the best stuff to hear before you require something major, but like you probably already know, they have to cover themselves and the healthboard/trust from litigation. It's a legal requirement that, if in sound mind, and an adult, they have to allow the patient to make an informed choice. If not in sound mind, it moves over to the next of Kin/legal guardian.

    I used to work in the NHS legal division for over 10 years.