Hi Lilyanne, I'm really sorry to hear this, it's such a shock. I always get shocked lately when I hear people are told likely cancer - I wasn't, but it is for me (not meaning to scare you) as mostly they're not, im told and hearing all the time. 
Any idea when you will get your biopsy results? I had a mammogram last October and was given the all clear and by this August I had three different cancer sites of two different cancers in my right breast. My lump was not as large as yours, but mammogram then detected two further areas of concern. I did ask the consultant how this could possibly not have been picked up in my mammogram only ten months earlier, the consultant says it would go to audit to check, but the breast care nurse told me cancer can just appear over night - I have no idea - official websites I have seen say a lump takes a period to develop, but I know these are sometimes missed On Mammograms. This is just my experience I hope it helps you though as that was my intention x sending hugs Mickey x 

Hi MickeyM,

Thank you for your reply. I'm sorry to hear your news. Have you started any treatment yet?  I'm shocked to hear that your mammograms were only 10 months apart and it wasn't caught. Like you I've also read that it usually takes time to develop. Although I have heard Aggressive breast cancer can spread quite quickly.

It seems that I didn't pay enough attention to mine because my breasts have always been lumpy so I didn't think anything of it till it got quite big.

Due to Covid restrictions, it then took me a month to get an appointment with my GP (although I was diverted to a  practice nurse who fast tracked me to the breast clinic) I should get my results within 2 weeks which seems like ages.

After my mammograms & scans, the doctor at the clinic told me & my husband that it looks very likely that I do have BC and that the biopsy will inform us what type & whether it's spread.

A big hug to you too.

Lily x

Hi Shona, I thought I'd read that was the case, lump or breast tissue or unsure? What day is your apt? I wasn't allowed anyone to my first clinic apt, but for the results (changes in covid withstanding) you should be able to. Of course hopefully they will be able to confirm it's benign on the day, but that's not always possible even if it is, which mostly they are.  I hope this site is helping you, but do ask if there's something you are thinking about, we'll all try to help. Take care Mickey x

Hello 

it's in my left breast, is quite large under my nipple but it's movable feels around 5cm oval ish I think, doesn't hurt at all.

I am very small chested only an A cup!!! I also have an inherited condition called neurofibromas type one which is basically benign tuners in nevrve endings but I don't have any as big as this one... there is also a slightly higher change of breast cancer with this condition..

my appointment is next Wednesday. 
 

what stage stage are you at ?

That's tumours. 

Good luck for your appointment on Wednesday. X 

a lot of the appointments seems to be on Wednesdays for some reason... 

Will do thank you x

Hi Shona, My lump was not as large as yours, but not really moveable. They do say if it's moveable it's a positive sign, however, as you know until it's been screened and examined it's hard to say. It's good you have the appointment booked in now, but I know a week can feel like an eternity. Sorry to hear about your inherited condition and that it raises your risk. Are you managing with the wait ok?

I got my initial cancer diagnosis September for the lump that's invasive, but fortunately one of the least aggressive, but they found two other areas of concern on my mammogram at my first breast clinic apt in the same breast (right) one microcalcifications and the other, I'm still not really sure. I had to have further biopsies under mammogram and only just had it confirmed that they've turned out to be different grades of DCIS. I have another clinic apt tomorrow and hope to get a provisional treatment plan then (as I've been told things can change when they conduct surgery), but hopefully not. I have been told different things by different consultants though and so it's all a bit mind boggling and I just want to walk out tomorrow with a clear plan - at least about surgery. X

Can't stop thinking about it and getting cross with the kids. Obviously they have no idea. 
 

And I keep googling things !! And thinking I am finding more lumps under my arm but May be imagining it. 
 

hope it's a bit more positive tomorrow xx 

It's usual for it to play on your mind - believe me it consumes me a lot. It's hard to remain calm when your emotions are all over the place. Kids pick up on stuff like that and so I hope you have some support with them at this 'waiting stage'. I know everyone says it, but try to avoid googling, it just spirals your mind and is often out of date or not true.  Reality is, you won't know anything until at least your apt next Wed, so please be kind to yourself and if posting how out of control you feel helps, do that. We understand and you'll be supported x 

Thanks Shona, me too, I'm putting all my eggs on this basket hatching a plan tomorrow x 

Thank you for your supportive words. X 

Hi lily

i was diagnosed with invasive ducal carcinoma in dec 2020. My tumour was approx 10cm. My treatment plan was 8 cycles of chemo followed by surgery. Because the chemo didn't remove all the tumour (but surgery did as far as they could see) I was started on 8 cycles of an oral chemo tablet called capecitabine (Xyloda is the other name for it). Is this the drug your doctor was talking about. I have just finished my 4th cycle so thankfully half way through. 
hopefully your treatment plan is started and that you are doing well 

Best wishes

Lilywhite

Hi lily

i was diagnosed with invasive ducal carcinoma in dec 2020. My tumour was approx 10cm. My treatment plan was 8 cycles of chemo followed by surgery. Because the chemo didn't remove all the tumour (but surgery did as far as they could see) I was started on 8 cycles of an oral chemo tablet called capecitabine (Xyloda is the other name for it). Is this the drug your doctor was talking about. I have just finished my 4th cycle so thankfully half way through. 
hopefully your treatment plan is started and that you are doing well 

Best wishes

Lilywhite

Sorry to hear this, how have you been feeling on the chemo? Did you loose you hair and have you been very sick with it. ? 

I lost my hair during my initial chemo of A/C + Taxol. It had started to grow back reasonably well but just the other day I noticed my eyebrows were beginning to disappear again and there are definitely some thinning spots on my head, however I know it will grow back. On the oral chemo I'm not too bad however the nausea has gotten worse with each cycle in that when I started I took the anti sickness tablets twice a day, I'm now up to 4 times a day but it's manageable definitely compared to the original chemo. For me the nausea that came with A/C treatment floored me but I know of a lady who had the exact same treatment flew through it with no side effects  Everyone is different and may experience different degrees of the side effects. 

I hope that you are doing ok. The waiting is absolutely the worst part. Once you have a diagnosis and a treatment plan if needed will help you cope a lot. 

Take care x

lillywhite 

Bless you so you have been going through treatment for almost a year that's so long and must be so hard. X 

what was your Inital lump like? It was quite big ?

To me a lump is round like a pea or a grape that sort of shape. Mine was flat and long like a thickening of a muscle if that makes sense. It was approx 10 cm in size and the initial chemo reduced it to 1.5cm so it was a good result from that. The mastectomy then removed the remaining tumour. I could have had a lumpectomy but I chose to have the mastectomy for my own peace of mind!
Fingers crossed I will be finished my oral chemo on 23rd Jan 2022. I will have a break of approx 3 weeks then I will have 3 weeks of radiotherapy. By the time that is finished my treatment will have lasted 15 long months. Because I was slightly oestrogen positive I will then commence some hormone therapy presumably for the next 5 years!

My brother in law had cancer just over a year ago they first few cycles where very bad then he got told about another anti sickness drug so asked for that...so the rest of it wasn't as bad. 
 

he is now cancer free but had a different type of cancer think it was lymphoma....

My lump/ mass is around 5cm that I can feel. I'd say oval in shape, feels firm, doesn't hurt and is movable from what I can feel. 
 

does sound really rough for you x 
 

Shona x 

I sure felt like I was having a rough time but I'm sure that other people have had a much harder time than me! Is your appointment tomorrow? Good luck with it and let us know how you get on. We're all here to support each other xx

No next week. X 

Thank you for your reply.

I hope you are ok. Your treatment sounds to be going well but I'm sure it must have been really tough for you.

I'm seeing my Consultant on Friday to finalise my treatment plan so don't know the details yet.

Love from Lily x

Shona 

I will keep you in my thoughts. Sending positive vibes for next week x

lily

best of luck for Friday. Also sending you positive vibes x